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  1. cleuger

    Checking in to see how everyone is doing 9 monthe post op

    I havnt been on for a while I see now why you don't see many people that are well making topics, once there better they move on. Since my proctocolectomy last September I'm a totally different person. I have not had any major problem sonce surgery. one thing that puzzles me is, is it crohns or...
  2. cleuger

    What a nightmare my bag leaked while out to Dinner

    Yesterday morning I thought I would try the Mio bag that was sent to me. I worked all day then went to dinner with a friend sitting in dinner I put my hand in my lap and guess what was there? a pile of poo wow!! that was embarrassing. I excused myself to go to the restroom cleaned up enough to...
  3. cleuger

    Medecines that you can no longer take after colon removed

    I thought I had read a post about having your colon removed and not being able to absorb certain medecines. Does anyone know what they are? I was thinking about taking advil instead of pain pills they last about 8 hours and don't have to worry about getting addicted. I'm still having some...
  4. cleuger

    Illostomy and my output is very thick

    I thought my output would be more watery since I have an ileostomy but its oposit of that it's so thick it pulls my pouch off, am I eating too much?? I have a crazy apatite sometimes. I've gained about 10 pounds since surgery I weigh 98 pounds now :):) but I'm going through a pouch every 24...
  5. cleuger

    Symptoms of dehydration and bag leaks lots of Bile

    Hello everyone. What are the symptom's of dehydration? What should I look for? how will I know that's the actual problem im having? Monday I was not feeling very good didn't have my normal amazing appetite. right before I went to bed my bag sprung a leak and these were the new Mio bags that I...
  6. cleuger

    Body aches all the time especially my back help!

    Hi everyone I'm 4 weeks post op now I'm getting around pretty good actually started back to work half days. I seem fine most of the time. I'm trying really hard to not take the pain pills but I'm really achy mostly in my lower back it's not like I've been hit or anything its a sore achy pain...
  7. cleuger

    Food you ate when you got home post op

    I think I came across a simular topic but couldn't find it. First day home post op what did you eat? Was it something good you would have avoided before? I know the diet for the first few weeks are be kind to your tummy diet. After that what did you eat? I've been restricted so long due to...
  8. cleuger

    My crappy surgey experience ongoing

    Well I'm in day #5 post surgery proctocolectomy. I had my cathitor removed and my NG tube removed only for them to have to put it back today I spent the better part of yesterday puking green bile my bowels are not move I h at 100% even though there is out puttering stoma it's not enough and I...
  9. cleuger

    Post-Op Proctocolectomy Would do it again

    This should have been done a long time ago. I've been sick for a long time so glad its done now. My one complaint is I still have the drain tube down my throat. I don't like being confined in the hospital it sort of puts you at their mercy but I have no regrets I would do again. I'm still in...
  10. cleuger

    How common and Safe is proctocolectomy surgery

    My Uncle who is in his 70's worries about me he and my father were very close since my father has passed he has become closer to me and my sisters. He sent me a text tonight telling me he has a bad feeling about this surgery and he didn't think it was a normal or common thing to have the whole...
  11. cleuger

    How's weight gain after colon removal

    I feel like sometimes I'm beating a dead horse and this may have been answered already but for those that have had total colon removal how was your weight gain after surgery and in the future? I weight about 90 now I really hope to gain about 20 pounds In the future after surgery I would...
  12. cleuger

    Surgery In 2 weeks instead of 8 days

    All I know is at this point they are calling me for surgery in a day or two told it will be in the next 2 weeks have to have check up with family doctor to make sure ok for surgery he has to give clearance for surgery is this normal? They are type matching my blood In case blood is needed...
  13. cleuger

    Joint pant ankles and knees mostly help!! This hurts

    About a couple of weeks ago I was in the hospitol for a few procedures was released after 3 days. Im getting ready for a proctocolectomy, about the 3rd day home I noticed my knees and ankles were hurting when I sit still for a long time if I get up walking around stay active they pain resides...
  14. cleuger

    Foods you can now eat since you got your stoma

    Since getting your stoma how many of you eat salad. Pop corn and corn and maybe nuts? I miss these foods so much want something to look forward to trying to keep my brain entertained. Thanks cindy
  15. cleuger

    Proctocolectomy boy Surgery 8 days from now

    Dr Changed Surgery Date now September 4th Boy am I having overload of anxiety and to top it off I'm recovering from a nasty virus was coming out both ends. I can't seem to get over 100 pounds what's going to happan when I have surgery are they going to give me something by IV so I don't loose...
  16. cleuger

    What would be a reason they could not do Laparoscopic surgery

    I my surgeon that the hospital Ill be staying for surgery prides themselves on laparoscopic surgery this was one of the reasons I like Cleveland Clinic I'm not in Cleveland this is in Fort Lauderdale Florida. I am having a proctocolectomy, they are removing the rectum as well. My question is...
  17. cleuger

    After Proctocolectomy has your crohns returned

    I was reading that if you just have UC then usually having a Proctocolectomy cures you but with crohns its different. Has anyone thats had this have their crohns return? just gathering info before my surgery. What about obstructions I thought having thesurgery was suppose to fix things. Is...
  18. cleuger

    I'm so scared and depressed talked to surgeon

    Well I am scheduled for surgery on the 28th of August they are removing my colon and rectum as they are to diseased to reconnect to anything I will have a permanent bag Does anyone here have that? I really need support on this one Thanks in advance.
  19. cleuger

    I have questionas about having a bag

    Ok so im learning here trying to unload my depression and anxiety using that energy to be more productive so Im trying to learn more about resections and having a bag. This is going to be my life I want to know more how to manage it. I go tomorrow for my evaluation with the surgeon. I would...
  20. cleuger

    Future resection, I cant stop crying newly divorced and alone

    Ever feel abandoned? The reason for our divorce was he couldnt handle me being sick all the time. So I am alone with my teenager now. I work full time. Gi put me on Flagyl and another antibiotic because of a fistuala coming to the surface of my tummy then started leaking poo but has since...
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