• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. JoFowler

    Rooibos tea- Yay or Nay

    My family Dr. highly recommended drinking rooibos tea as a natural inflammatory and a host of of other benefits. I am reading up on it as I sip my first cup and it also says it is an immune booster. And warns that it may interfere with chemo treatment. I know remicade and imuran aren't chemo...
  2. JoFowler

    Should I wear a mask to visit friend in hospital?

    My friend is in the hospital and I would like to visit with her. I am on Remicade and wonder if I should wear a mask there while visiting? I would rather avoid the hospital and germs, but she was the one who sat with me my first night in the ER with a perianal abscess and major crohn's flare...
  3. JoFowler

    Losing Health Benefits Plan

    My husband is changing jobs next month and will not be receiving a benifts plans for a minimum of six months, until he is hired full-time. Which may or may not happen. I currently get Remicade every 8 weeks, take imuran, synthroid, Tecta and zantac. I called the current insurance company to...
  4. JoFowler

    Sinus/throat/chest infection?

    Hi there! On June 18th I got a sore throat that by the end of the day was so bad it was extremely painful to swallow. I had a fever in the evening (temp was 99, usual for me is 96.7-97.4 average). I was flying the next day so I went to the Dr who prescribed penicillin for a sinus infection...
  5. JoFowler

    Insides burning...

    I am going through a lot of symptoms right now, but I am only five days away from my Remicade infusion. I am at the point where I am not sure if I just suck it up and wait or seek medical attention. I will try and make this long story short and to the point. All of January, I had a mild...
  6. JoFowler

    Beginning of the end of Remi?

    I have been taking Remicade since December and doing extremely well. The last couple of months I was pretty much symptom free. My next infusion is Sept.3rd. Since last Tuesday I have been experiencing nausea after eating, or during enough for me to not finish my normal meal. Yesterday the...
  7. JoFowler

    New Symptoms

    I am due to get my infusion on Thursday, and I have more symptoms cropping up this time. Last time, I had pretty extreme fatigue leading up to infusion, this time in addition to that, I have experienced a day of a raging headache, (last week) and this week my knees are killing me, and my hips...
  8. JoFowler

    Capri Sun Drinks Caution

    Popular Drink Contains Fungi A research project at Indiana State Univ. into a popular packaged drink has found five types of fungus. Kathleen Dannelly, associate professor microbiology, says a previous study published online found only one fungus in Capri Sun, the popular drink manufactured by...
  9. JoFowler

    MRI of Pelvic Area questions

    I am having an MRI on Sunday of my pelvic area. Here are my current/new symptoms: 1. Severe bladder irritation some days, especially when lying in bed at night. Have to pee frequently and sometimes have a lot of pressure on right and left lower sides. I have been to family Dr. twice and...
  10. JoFowler

    Took Imuran this morning instead of tonight

    Yikes, :eek2: I take my Imuran before bed at night every day. But this morning I took them again by a mistake(I take Synthroid, Vit D B12 in the morning). So would I take them at normal time tonight, or would that be too much? If I wait until tomorrow night, is that going to long without...
  11. JoFowler

    Infected toe, do I need to worry?

    I have an infected big toe, (swelling on the side of my nail) which I am 99% sure is an ingrown toenail and nothing to do with meds or anything, as I have had this exact same thing before. I am soaking in hot water 3x/day,(started yesterday) hasn't started to drain yet. Pretty sore! I just...
  12. JoFowler

    Blister "ouch"

    I have been dealing with a perianal abscess for six months now. It is really good in the sense that it is barely there anymore, but I still have to keep up my three sitz baths a day. If I skip just one of those, my scar site forms a big blister and is very sore. I put cream on it which makes...
  13. JoFowler

    Can I still enjoy the sun?

    I understand that that being on Imuran and Remicade opens up higher risk to skin cancer, and with the spring and summer seasons coming up, I am wondering if I should do anything different than be more vigilant with the sunscreen? I love being outdoors in the sun whether gardening, reading on...
  14. JoFowler

    What do you take for normal pain such as a headche?

    I am allergic to acetaminophen, and from what I read you shouldn't take Ibuprofen when you have crohn's...what do I take for a headache? I have pain killers for when my abscess is acting up, but I only take them in extreme pain. This headache is more of a nagging pain, not extreme lol
  15. JoFowler

    Fourth Remicade Infusion went well

    I just had my fourth Remicade infusion yesterday and it went well. I was at ten weeks instead of eight due to being on antibiotics. The last two weeks I have been utterly exhausted, and I already feel a bit better today :) My blood pressure(which runs low) did go lower during transfusion but...
  16. JoFowler

    Frequent Urination

    I barely got any sleep last night as I had to repeatedly go to the washroom all night. I counted 8 times. I also had the feeling I still had to go in between. I am due to get a Remicade infusion on Wed. Should I be calling my GI to report this? Should I be checked for a UTI? I suspect...
  17. JoFowler

    I'm in shock

    Here's what my husband just emailed me: Any good responses? See for me it would be different I think, cut out the bad part and make the pain and junk all go away…. Move on with life knowing I have Crohn's and eat accordingly. One less thing to deal with.
  18. JoFowler

    Had 2nd Infusion - feel great today!

    As with the day following my first infusion, I feel like myself today! Energy feels great!! Still very gassy and leaky, but overall feeling is incredible, only the second day in three months I have felt like this. Hope it lasts longer this time!!
  19. JoFowler

    Can I eat popcorn?

    My step brother has crohns and his presented as an obstruction. He was eating popcorn and landed in hospital the next day, and it took him days to naturally pass the obstruction. My question is, is it a rule of thumb for all crohn's people to avoid seeds, nuts, popcorn, etc? Or just a problem...
  20. JoFowler

    My Story...Newbie

    At the end of August, I developed a pain in my butt and after a few days, it started draining and after a week, the whole thing was gone. I had no idea what it was, but once it was gone, I was relieved and didn't think anything of it. I thought maybe it was an internal hemorrhoid or...
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