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  1. Charleigh

    Extended time for exams?

    Does your child have extended test time? I know that most crohn's kiddos have stop the clock testing but what about extended time. DS has not been feeling that great lately. He is suddenly more anemic, etc and he had his first exam today and he didn't finish it. I think his focus is just...
  2. Charleigh

    Fecal Calprotectin - how high before concern?

    E's Dr. added fecal calprotectin to his lab draws for the first time and it is elevated. Realistically, how high before you are concerned? I assume that even with meds it isn't in a perfect normal range, right? The lab uses a 0-120 ug/g range.
  3. Charleigh

    E is going to school

    He is fourteen now. He has always been homeschooled. He wants to go to high school next year. E won a nice merit scholarship to a local, private day school. I didn't feel that the public schools here were a good option for him. This private school is a small, non stressful environment. Only...
  4. Charleigh

    6 weeks on enteral

    E had labs drawn on Monday, which was his 6 week mark on a 100% liquid diet. We saw the doctor yesterday and he was thrilled. RBC, albumin, vit d, iron, etc, etc are all normal for the first time ever. E has put on 4 pounds in 6 weeks. His c-rp is down to a 4!!!!!! His SED is still a...
  5. Charleigh

    Tailbone pain?

    DS is having terrible pain in his tailbone area. He can't remember falling, but he was working on a ladder a few days ago and said he was sitting on it funny. I am assuming it all comes down to a bruise from how he was on the ladder, but I don't want to overlook anything. Should I be...
  6. Charleigh

    We've added Enteral to the mix

    We've added Enteral to the mix *UPDATE* E began LDN a few months ago. While it has been an improvement, it hasn't been the magic bullet we'd hoped for :/ We met with a research doctor at Chapel Hill and he wanted us to try Enteral. They suggest Ensure. Today is two weeks of a completely...
  7. Charleigh

    I think our prescription was messed up - wdyt?

    So E began LDN four months ago. By the end of the first month we were seeing huge improvements. He has been doing great. He is still on a restricted diet but we've even allowed a few GF items that are not paleo and he has still done great. Then, within 2-3 days after a new prescription...
  8. Charleigh

    Starting LDN tonight

    E has not been on any meds, except for two rounds of prednisone. He will take his first dose of LDN (4.5mg) tonight. I am a little nervous. I know to take it before bed, that it might interfere with sleep at first, etc. Anything else I should know?
  9. Charleigh

    Is it okay to start at 4.5mg?

    I FINALLY found someone to prescribe LDN! I really want to try it with E. He is doing good with diet, but I hope that LDN can give some more freedom in his diet for social purposes. Can we begin with 4.5mg? The person we are looking to prescribe is a PA who is friend's husband. He doesn't...
  10. Charleigh

    Bad reaction to psyllium husks?

    E has been doing wonderful. I had this great idea to add psyllium husks to his diet and within 12 hours of having it, he is symptomatic. Has anyone else had this sort of reaction?
  11. Charleigh

    Is medication or ENT able to keep inflammatory markers in the normal range?

    We saw a research doctor at Chapel Hill in November. It was a great visit. E's inflammatory numbers (ESR and C-RP) have made an incredible improvement using the paleo diet and probiotics. His symptoms are great most days (some days/weeks are better than others, so he is not perfect by any...
  12. Charleigh

    Stabbing pain and sudden constipation?

    UPDATE Stabbing pain and sudden constipation? This all came on suddenly.....stomach pain. E says that it feels stabbing but is only severe if I press. He says it is generally achy and he feels like he needs to go to the bathroom but he can't. He usually has loose stool a few times a day so...
  13. Charleigh

    My current thoughts on SCD

    I feel like I left you all hanging :) I think SCD is great. My varied approach (looked more like Whole 30 by the time I was done with it, lol) worked wonders for E's symptoms. It is a very, very difficult diet to follow, particularly for a kid. Also, particularly for us since we had to be...
  14. Charleigh

    EN ?'s

    E had his appt with his dr yesterday. He definitely will not prescribe LDN. He did a great amount of research though, so I will give him a kudos for that. He spoke with a special researcher at Chapel Hill. This researcher seemed pretty excited about the progress in trial studies with EN so...
  15. Charleigh

    Crohn's med with the least side effects?

    I really want E to try LDN but his doctor won't prescribe. He has been great to read all of the studies I have emailed him and he has even called a few universities and sought information. In the end, he isn't comfortable prescribing it :( Originally he wanted E on 6-MP, but I am not liking...
  16. Charleigh

    E's GI has asked me to send him links concerning LDN and its use in children?

    Does anyone have any links they can share? I really want to present a strong case. I love E's GI, but he is hesitant. Thanks ya'll!
  17. Charleigh

    LDN and SCD?

    Does anyone here combine the two? E is losing some progress :(. While we are committed to this diet, we are thinking about adding LDN to it to help reduce inflammation. I would love feedback on this :)
  18. Charleigh

    Cobbler recipe - SCD, paleo, gaps :)

    Made this for breakfast this morning. I simply replaced the maple syrup with honey. I also omitted the stevia. I did stir a little honey into the fruit (just a touch) before adding the topping. I used peaches and fresh blackberries. Just thought I would share...
  19. Charleigh

    SED and c-rp?

    If symptoms were okay, growth outstanding, vit. d "remarkable" then would you worry about an increasing SED and c-rp? Just curious :)
  20. Charleigh

    Paleo Somoa Donuts

    These looks so awesome. I haven't tried them yet and I will update when I get a chance to make them. http://paleomg.com/guest-post-samoa-donuts/
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