• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Lustforlife

    Crohn's Genetic Penetrance

    I've always wondered: if someone has a certain gene for something (like, perhaps, the NOD2/CARD15 gene associated with Crohns), why don't they always develop or express whatever that gene is coding? And now, I've learned there is a term for that - "penetrance". There's a lot of evidence that...
  2. Lustforlife

    Check-ups: how often and to what extent do you have them when you are feeling well?

    Hi folks, I feel silly asking this as I am not diagnosed with IBD, but I think it could help not only myself but others searching the forum on ways to best manage their disease. I was pretty sick for a few months off and on this past winter, went through a whole bunch of tests (blood, stool...
  3. Lustforlife

    Middle of the night Insomnia? Or something like it...

    The last few weeks or so I've been having trouble sleeping through the night. For a while I've always woken up in the middle of the night to pee, like 3am, but now I rarely am able to get much sleep after that. I'll go through the day at half mast it seems and by 8pm that night I'm struggling to...
  4. Lustforlife

    How long after diagnosis (or symptoms started) before experiencing a fistula?

    I'm curious to see different people's experience with fistulae and if it seemed to happen quickly or gradually over time. And did you know what was happening at the time?
  5. Lustforlife

    Better diagnostic tool: pill cam or CT/MRE scan?

    I've been through a lot of tests for my GI woes recently, with minimal findings other than mild gastritis (which is funky because I never feel full and always hungry shortly after eating). The colonoscopy up to terminal ileum showed nada. I and my doc think if I have an IBD it would be in my...
  6. Lustforlife

    Weirdest poop ever

    Ok - so I may be putting myself at risk for being the first person to break the nastiness barrier on this forum - but I just noticed something that concerned me. I'm not even sure how to search it to see if some other people have had this happen. But basically, in my stool, it was normal-ish and...
  7. Lustforlife

    Colonoscopy/EGD sedation?

    I'm going in for a colonoscopy and EGD tomorrow, gotta start that prep soon (urgh...), and it's my first one of both. I have a couple questions! Should I be following the prep instructions to a tee (I have halflytely), or modify them somewhat for better results? What's been your experience...
  8. Lustforlife

    What symptom would you exacerbate (or add)?

    To balance out my question about eliminating a symptom, which would you make worse or add? I'm curious about your reasoning here too! For me personally, I chose to get rid of fatigue, since I figured even if I get rid of one of the others I'd still have several fairly bothersome symptoms. I'd...
  9. Lustforlife

    What symptom would you eliminate?

    Assuming you have it, which would you choose to no longer have?
  10. Lustforlife

    What symptoms are common for you?

    As a data nut, I'm interested in seeing what symptoms are common for you (particularly while in flare)? Not just one time things, but recurring.
  11. Lustforlife

    Journey to Diagnosis - Any help understanding the info I have so far?

    Hi Everybody -- I've been reading around this forum for several weeks now and have really felt good about the amount of support that seems to be out there. I could use a little bit of help, if you all wouldn't mind. It would be so much appreciated. I am currently undiagnosed, and perhaps my...
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