• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. M

    Remicade Premeds?

    The hospital where we go for infusions has decided to stop giving any premeds prior to infusion. I guess they have decided there isn't a need if the child has been on it without problems. Anybody here have no med's prior? ~Ami DS (16) on Remicade since 11.
  2. M

    Need to reintroduce foods? Best way?

    Well, we need to come off of SCD after being on for 1 1/2 yrs. My son has been diagnosed with a very rare genetic condition which doesn't allow him to process plant sterols. So no nuts, avocados, and plant oils of any kind. I am at a loss...... Any advice on what food to add back first? An...
  3. M

    Son has very high LDL level

    My son with Crohn's has had some raised lines across the back of both knees. Went in to see the GI and the GI ordered a cholesterol test (thinking it could be high level of blood cholesterol finding way out). Anyway, blood was drawn yesterday morning and got a call 3 hours later saying his LDL...
  4. M

    Fistula's

    My son has never had a fisuta, but my good friends daughter has one. Her fistula is draining from her abdomen. They have only spoken to a surgeon who said we'll just go in and fix that. No blood draws, no scans or x-rays have been done. Her doctor said that this can't be a sign of Crohn's...
  5. M

    Flu Shot?

    We've don't regularly get the flu shot. Our GI has recommended getting it. What are you doing in your households? My son with Crohn's has had the flu once - it was the year of the swine flu and we all had it. I just don't know what to do. The years I get the flu shot typically are the only...
  6. M

    Sore on Gum

    My son has been on Remicade for 1 year and we've dealt with bumps on legs, that took about 3 months to clear. Now he has a bump on his gum - bright red around outside and white puffy bump in middle. X-ray at dentist says not a problem with the nerve/root. Could this be a Crohn's/Remicade thing...
  7. M

    Sore on Gum?

    My son has been on Remicade for 1 year and we've dealt with bumps on legs, that took about 3 months to clear. Now he has a bump on his gum - bright red around and white puffy bump in middle. X-ray at dentist says not a problem with the nerve/root. Could this be a Crohn's/Remicade thing...
  8. M

    Remicade Dose ?

    My son has been on Remicade since July 2012 at 5ml per kg. His dose hasn't gone up since he's put on 20 lbs. Had a message from GI saying his next infusion will be bumped up to double what it's been. It puts the % to 6.6ml. Normal? I have a call in to get an explanation, but was wondering...
  9. M

    Canker Sores and Remicade Treatment

    My son has developed a canker sore on his top gum. He is due for Remicade this week. Do we need to postpone the infusion? And does anyone have a good home remedy to help heal it up quickly? Thanks!
  10. M

    How long on SCD before adding in foods?

    My son has been on SCD for 6 months. He feels great and has more energy than ever! His bloodwork came back today and looked excellent. So, looking ahead I'd always planned on having him eat exclusively SCD for 2 years before adding foods that aren't allowed back. But, now am wondering if 1...
  11. M

    SCD Sloppy Joe Mix

    Sloppy Joe's 2 lbs. ground beef one can 28oz diced tomatoes w/juice ½ cup water 1 tsp. salt 1 tsp. dried oregano 1 tsp. dried basil ½ tsp. pepper ½ tsp. dried thyme 1 large red bell pepper, coarsely chopped 1 large onion, coarsely, chopped 1 large carrot, coarsely grated 1...
  12. M

    Very Vanilla Cupcakes

    Very Vanilla Cupcakes (makes 10) 2 large eggs, separated ¼ cup butter ½ cup honey 1 T vanilla 1 T freshly squeezed lemon juice 2 ½ cups blanched almond flour ½ tsp salt ½ tsp baking soda Preheat the oven to 350. Line 10 muffin cups with liners. In a large bowl, whisk the egg yolks until pale...
  13. M

    SCD legal hotdogs?

    My son is really wanting a hot dog. Have any of you following SCD found a hotdog that conforms to the diet? I haven't looked and thought I'd check here first :biggrin: I'd like a little break from checking ingredients! ~Beth
  14. M

    Where to buy dry curd cottage cheese?

    I haven't been able to find dry curd cottage cheese anywhere. Do any of you following SCD have a source for this? Many recipes for SCD call for this and my dripped yogurt just doesn't fit the bill. ~Beth
  15. M

    Doctor in Salt Lake City area?

    Looking for a GI for my son with Crohn's in the Salt Lake City area. We are wanting someone who is willing to monitor and help get drug free if possible. Currently we have a doctor that thinks drugs are part of life and he doesn't even believe in EN. Thanks everyone! Beth 12 yr old son...
  16. M

    Son (11) newly diagonsed with Crohn's

    I'm so glad I've stumbled across this board. My son, 11, has recently been diagnosed with Crohn's. His Promethus results didn't show indicators, but his scope was conclusive of Crohn's. He has not had joint pains, fevers or sores in his mouth. He has had lots of diarrheah and lost weight...
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