• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. M

    Injection Question

    I did my second loading dose of humira (using pens) yesterday. The first dose was done by a nurse, and she showed me how to do them, but I didn't actually do any. Yesterday I did the two by myself, and while it went fine, I noticed that when I injected it looked like there was a bit of a bubble...
  2. M

    Has anyone ever used Accredo?

    My doctor is switching me from Remicade to Humira, so I have to use a specialty pharmacy to get the syringes. We had a choice between Accredo and Walgreens, and we picked Accredo randomly. The day that it was prescribed I called them and got everything sorted out. They had a copy of my...
  3. M

    Humira after remicade?

    I've been on remicade since June 2013, and have never noticed a difference after an infusion. After four remicade infusions my doctor decided to try doubling my dose, and a blood test said that it was at a therapeutic level in my system. I only noticed a difference in my symptoms when I added...
  4. M

    Blood after colonoscopy

    Hi there! I just had my second upper GI and colonoscopy this morning, probably about three hours ago. My doctor told me he took a ton of biopsies. When I went to the bathroom I noticed a bit of blood, and a few small blood clots. Is this normal? I have no pain or discomfort, just some...
  5. M

    Brain fog tips?

    When I'm flaring I tend to have lots of days when I just can't concentrate. It can be really frustrating when I'm trying to do school work, as it takes me three times as long and I tend to do worse than I would like. I have been checked out by my doctor, and there are no specific nutritional...
  6. M

    6mp Question-should I be worried?

    Hi! I was started on azathioprine in August 2013. About two months after I started it I began to feel nauseous. For an entire month I felt mildly nauseous until suddenly I started throwing up at least once daily. I tried taking it with food and was told to take prevacid with it. That helped...
  7. M

    Problems drinking water on an empty stomach?

    For the past few weeks any time I drink water on an empty stomach it makes me nauseous and I almost always throw up. If I eat food along with the water I'm just fine, and food almost always makes the nausea better. Has anyone else ever had this problem?
  8. M

    Is it IBS?

    I was diagnosed with Crohn's almost a year ago, but have had symptoms for almost five years now. Through a lot of trial and error I found that I can't tolerate dairy well at all, and my symptoms get worse when I have other random foods like apples and eggs. I have been tested for allergies and...
  9. M

    Crohn's Related or am I Crazy?

    Sorry if this is in the wrong place, I wasn't sure where to put it! I was put on Remicade at the beginning of June, and then after it didn't seem to be making much difference I was sent to a specialist who put me on Imuran in addition to the Remicade. I started noticing an improvement right...
  10. M

    How long did you try Remicade before switching?

    Hi there, I have had the three loading doses of Remicade, plus a fourth infusion where my doctor doubled the dose. I have not noticed a difference at all, in inflammation or in symptoms, and so my doctor is sending me to a specialist because he thinks that I should be responding more than I...
  11. M

    What is going on?

    I am currently doing my loading doses of remicade, and in the meantime my doctor had me trying to taper off of prednisone. I was doing okay until I got down to 5mg of prednisone, at which point my diarrhea came back in full force (10-15x a day) and I was feeling pretty miserable. I waited a few...
  12. M

    Disability Services for College?

    Hi there, I have been in University for a couple of years now. I've had crohn's for all of that, and was finally officially diagnosed in December. I am hoping to take a class over the summer to catch up on my degree since I've had to take so much time off. Lots of people suggested that I talk...
  13. M

    Coming off pred, waiting for remicade to work?

    I've been on Prednisone since I was diagnosed in December. My doctor started me on Remicade, and I had my second loading dose yesterday. Since I've been on prednisone for a long time he wanted me to taper off of it right away. I got down to 5mg and I have been having a horrible Time. I've been...
  14. M

    Random Fever?

    I got my first Remicade infusion today, and before they put the IV in they took my vitals and my temperature was completely normal. They gave me two tylenols and an allegra for premeds, and then when they took my vitals again before starting the Remicade my temperature had gone up to 101. I felt...
  15. M

    Resistance to remicade?

    I saw an internist on Wednesday to get a second opinion on my crohn's treatment (we don't have a gastro doctor near here) and he put me on remicade. He said that I will have the infusions at 0,2, and 6 weeks and then if I am in remission I can just take pentasa as a maintenance med. he said that...
  16. M

    Next Medicine?

    I was diagnosed in December and given 40mg of prednisone per day, as well as 4000mg of Pentasa. I had a hard time tapering off of the prednisone, so about a month ago my doctor put me on Cipro and Flagyl, as well as leaving me on 20mg of prednisone to try and get my inflammation down. My crohn's...
  17. M

    Issues with Milk?

    I am lactose intolerant, so I figured that drinking lactose free milk would fix that problem. I had originally been using Lactaid pills, but I found that I was still having trouble. Even with the lactose free milk, whenever I drink it my stomach starts to cramp within 10 minutes, and I always...
  18. M

    Prednisone Problem

    I've been on prednisone since I was diagnosed in mid December. I started on 40mg, and had finally managed to get down to 10mg a few weeks ago when I suddenly had a ton of symptoms again. I started feeling extremely tired (to the point of waking up at 7 and having breakfast and then needing a nap...
  19. M

    Bleeding on prednisone

    I've been tapering down from 40mg of prednisone, and when I made it down to 10mg I started feeling sick again. I went back up to 12.5mg and when that didn't work I went up to 15mg. I've been on that almost a week, and I've noticed small amounts of blood in my stool a few times. I've only ever...
  20. M

    Trouble with Prednisone Taper-what happens next?

    I was diagnosed with Crohn's in mid-December, and put on 40mg of prednisone along with pentasa. I've been tapering since mid-January and had to go back up a couple of times because my diarrhea came back. I finally got down to 10mg this week, and I think I'm going to have to go back up again. Is...
Top