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  1. pipmom

    Cdiff

    Two rounds of Vanco since April. Still showing up in stool on assay test. Doc says this is just shedding from previous infection. Problem is she is still nauseated with belly cramping and diarrhea up to 4 x daily usually after meals. Scopes are clear. Haven't heard what bx showed. MRE said some...
  2. pipmom

    Cdiff

    My daughter has had Cdiff since December with two rounds of Vancomycin. She is sick again. Anyone done fecal transplant for Cdiff ?
  3. pipmom

    Elevated Hgb A1C

    Elevated HgbA1C of 5.7 considered prediabetic. 17 yr old with perianal Crohns. What else is going to happen ? Exhausted.
  4. pipmom

    C Diff

    My daughter suffered with horrible diarrhea for 3 months. In hospital twice for dehydation. Tested stool each time and came up with nothing. Labs,scopes,everything negative. She does have perianal Crohns, but they said in remission. Our ped GI said it was just emotional/nerves and to...
  5. pipmom

    IBD plus IBS

    Ongoing diarrhea/pain. Scopes look ok, labs ok,no fecal test ever suggested in peds setting. Already on antidepressant. Lomotil not working. Have just added Bentyl. On Remi 7.5 mg per kg every six weeks. Doc says she now has IBS even though IBD looks in remission. Is this a sub underlying...
  6. pipmom

    GI and surgeon not on same page

    My 16 yr old cut her Seton and pulled it out. Surgeon at Vandy replaced it with regular suture in fistula tract. Increasing discomfort now with discharge. Surgeon says it is mucous, but GI thinks it is pus. Labs show no increase in white count,sed rate or CRP. GI wants to go on antibiotics and...
  7. pipmom

    Pcos

    My daughter has PCOS (Polycystic Ovarian Syndrome) and probably endometriosis.
  8. pipmom

    Pcos

    Anyone diagnosed with PCOS (Polycystic Ovarian Syndrome) ? I think Remicade exacerbated this condition and also caused cholecystitis with resulting cholecystectomy soon after. All in a 16 yr old.
  9. pipmom

    Look at this

    http://m.theatlantic.com/health/archive/2013/06/in-autism-the-importance-of-the-gut/276648/
  10. pipmom

    Daughter #1

    Daughter #1 going for her ileostomy reversal on May 29th. Her first bowel resection/ostomy March 13th technically very difficult. Worried too soon and was in a flare first time. Guess doc is afraid too much adhesion will form if he waits longer. Any feedback on reversals. Anxious about this...
  11. pipmom

    What is this ?

    Daughter has Seton, and looks like a blister around the exit from the buttock.Very painful. Any input ?
  12. pipmom

    Perianal disease update

    Back to Vandy last week with excruciating butt pain which she says is located at Seton site. MRI negative. Added Nifedipine and Lidocaine Ointments. Increased her Celexa and added Trazadone for sleep. Anyone used Calcium Channel Blocker in rectal area? Not happy adding all of these...
  13. pipmom

    So frustrated

    16 yr had an exam under anesthesia today for increasing pain in bottom and bad smell. Doc said they didn't see any new abscesses or fistulas. Still has one seton in place. Any ideas on smell and pain. Her seton was not bothering prior to this. It really smells like a dead animal. What does C...
  14. pipmom

    Update on daughter #1

    In hospital with tetany. Still high output ostomy and her doctors at large teaching hospital have let her slip through the crack. She has a PICC and gets IV fluids, but her Ca,Mg,K levels kept dropping until thumbs were drawing,face,hands,feet tingling and numb.We knew 7 days post op that this...
  15. pipmom

    Good/Bad News Today

    My youngest daughter has been in hospital for five days with what they thought was Crohns flare. Turns out with EGD/Colonoscopy her Crohns is in remission, but now testing for Gallbladder Disease. Oldest daughter's PICC line infected and removed. New PICC tomorrow. One day at a time.
  16. pipmom

    Help with new ileostomy post bowel resection for Crohns

    Everyone with ileostomies please give input. My daughter coming home tomorrow with new ileostomy with high output which doctors say happens in 50 percent of patients after bowel resection. They have tried four meds to slow output including Opium. Say they are putting in PICC line and getting...
  17. pipmom

    Prayers

    Hello everyone. Sitting here at Vandy with daughter #1(31 yrs old) who just had her first surgery with bowel resection/ileostomy after 16 yr fight with Crohns. Dr took out softball size mass of matted bowel that he had to make larger incision for to get out. Said she was in the 5% of Crohns...
  18. pipmom

    Odor from Bottom

    My daughter has developed a bad odor in bottom in last two days. She has a seton and wound they layed open that has granulated in. She has been off Flagyl and Cipro since Feb 21st but restarted on Rifaximin yesterday. Nurse said it could be granulating tissue smell. All of you experienced...
  19. pipmom

    Rifaximin

    My daughter went for Remicade today and her dose was increased along with Methotrexate because of new flare. He added an antibiotic called Rifaximin.Said it is expensive. Anyone on this or other input?
  20. pipmom

    Tip for abscess/fistula care

    My 15 yr old has a Seton and additional wound they layed open to heal inside out. I have been packing wound with Aquacel which is impregnated with an antibiotic. Also contains a silver base so not rec. for patients with metal allergy. This has worked wonderfully and healing has been...
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