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  1. CrohnsKidMom

    Participating in a study where Remicade dose may be doubled!

    We like to participate in studies where we can, for "the greater good" of all Crohnies, and we have recently been approached by my son's hospital inviting us to participate in a new study. The study is for 12-18 yr olds (my son is 12), and is to investigate if it is more beneficial to double a...
  2. CrohnsKidMom

    Feeding Tube Tutorial Video

    My son's GI and hospital, and a bunch of great kids from Nova Scotia, PEI, and New Brunswick, have posted a very practical guide to tube feeding. Although we did not opt for EEN at diagnosis, our GI is a very big advocate for it. I was going to post the link here, but the video is quite long...
  3. CrohnsKidMom

    Remicade infusion this morning, leg pain this evening. Minor side effect, or cause for concern?

    My son has been on Remicade and oral methotrexate for one year. He had his infusion this morning and has been complaining of substantial leg pain for the last four hours or so. It hurts from the knees to the ankles, and in the front and back of the legs. My son also looks flushed, but has no...
  4. CrohnsKidMom

    Remicade-Methotrexate-Amoxicillin Cocktail

    My 11 yo son is on Remicade with MTX for Crohn's and was dx'd today with a throat infection (possibly strep) and prescribed Amoxicillin. I spoke to the pharmacist about probiotics, but she does not recommend them for patients on Remicade. I am concerned about potential tummy issues related to...
  5. CrohnsKidMom

    Can Remicade cause excessive weight gain?

    My son started Remicade in July, and at the time was in the 70th percentile for both his height and weight for his age. His body is responding well to the med. ESR and hemoglobin are normal, tough level is 8.8 (which I think might actually be a bit high), and no antibodies. My concern is his...
  6. CrohnsKidMom

    Remicade infusion time and feeling "under the weather"

    My son is due to have a Remicade infusion tomorrow, and he is feeling a little under the weather" today as well as yesterday. He had a mild sore throat yesterday, but that resolved after a few hours (with no treatment), and today he has a stuffy nose. He also had some rather bothersome stomach...
  7. CrohnsKidMom

    Change in treatment necessary-here are the options. Got advice?

    My 10 yr old son has been on MTX injections for just about 2 yrs. It was working well. He started having an increase in symptoms in March and his subsequent bloodwork and fecal calprotectin results suggested a flare. He had an MRE 2 week ago and saw the GI today. My son has inflammation from...
  8. CrohnsKidMom

    First flare since diagnosis-need advice

    My son was dx'd 2 years ago and has been doing well on MTX injections for almost that long. Since March however, I have noticed that he seems to be increasingly sensitive to foods that previously didn't bother him (causing cramps and diarrhea). His energy levels have also been gradually...
  9. CrohnsKidMom

    EIMs in kids-which ones are indicative of a flare?

    I have been perusing the EIM section on this forum as my 9 yo son is having some (minor?) issues which may be EIMs. I am confused by which EIMs indicate inflammation and which ones do not run concurrent with a flare. And I'm wondering how to know if they are even EIMs in the first place...
  10. CrohnsKidMom

    Rash on face-Crohn's related?

    Hi All; about 3 weeks ago my son seemed to spontaneously develop a rash under his nose. It is red and blotchy and occasionally has a tiny white bump or two. I did some googling and think it may be peri oral dermatitis, but I really don't know for sure. We haven't used any different lotions...
  11. CrohnsKidMom

    Is it OK to give your immune-suppressed child melatonin?

    Here, halfway between the equator and the North Pole, we get short days in the winter, long days in the summer. As the days get longer, my son with CD has trouble getting to sleep at his usual bedtime. (He has always been like this, and in the dead of winter he's ready for bed before supper!)...
  12. CrohnsKidMom

    Meningitis B Vaccine-recommended for kids with Crohn's?

    I've been hearing a lot about a new vaccine for the prevention of meningitis B (Bexsero). I believe it's been around for awhile in Australia, but is new in Canada. Does anyone know if this vaccine is safe and recommended for kids with IBD? I've done a little internet search, but I can't find...
  13. CrohnsKidMom

    9 yr old son w/ Crohn's-1 yr post diagnosis

    I joined this wonderful forum 1 yr ago, and thought it time to properly share our story. Thank you to all those who have been such a wonderful support and rich source of information. My son is now 9 yrs old and in Jan 2013 at age 8, he got the flu. He seemed to get better for a couple days...
  14. CrohnsKidMom

    Immunosuppressants and dental health

    My son has been on MTX since the summer and is doing well. I have noticed however, that it is hard to keep his teeth clean, and I am wondering if it might have something to do with his immune system being suppressed. I've noticed he has been getting orange coloured stains on his front teeth...
  15. CrohnsKidMom

    Son in remission. More confused than ever about what to feed him.

    My 8 yr old son finished his Prenisone taper last week and continues on MTX injections. His last bloodwork results suggest he is in remission. Up until this point I was giving him a pretty basic diet- soft cooked veggies, low fibre foods, etc. We generally eat healthy anyway, but I'm more...
  16. CrohnsKidMom

    Swollen face-MTX related, or something else?

    My 8 yr old son has been away at camp for the last 5 days. He called home yesterday requesting more sunscreen, as he lost the bottle that went to camp with him. I think he was feeling a little homesick, and this was his excuse to see mom, as I'm sure the camp would have provided the needed...
  17. CrohnsKidMom

    Not enough MTX for son's injection tonight. Can I wait til morning to give it?

    I'm in a bit of a panic... I forgot to pick up my son's MTX at the pharmacy this week, and I have less than half of what I need for his injection tonight. How could I have forgotten this?!?! The pharmacy is now closed, and so is the GI clinic. The printed info I have on MTX says it is...
  18. CrohnsKidMom

    True or False? MTX causes lower IQ and impaired cognitive functioning.

    My 8 yr old son is on Methotrexate injections and I have recently read that this drug can irreversibly (or in some cases, just temporarily) lower your IQ and impair your cognitive functioning. My sister-in-law is a rehab specialist and she said some of her clients have complained about "fuzzy"...
  19. CrohnsKidMom

    Son intolerant of Imuran, now starting Methotrexate injections. Any advice?

    My 8 yr old son was dx'd with CD in March, started Prednisone on Apr 1, which we began to taper on May 1. We were away for a couple weeks in April, which unfortunately delayed our starting of the Imuran until May 1. A couple weeks into it and we realize my son cannot tolerate Imuran, so that's...
  20. CrohnsKidMom

    Dr says Atlantic Canada has the highest rate of Crohn's in the world. Any ideas why?

    My 8 yr old son's GI says Atlantic Canada has the highest rate of Crohn's Disease in the world, and no one seems to know why. Apparently there are environmental factors in addition to genetic ones. But what those environmental factors are is anyone's guess. We live 20 kms outside the city...
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