• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    At a loss!

    Hello, I am looking for some advice from you wise lot. So I've had Crohns for 3 years now, been on aza from the start and been on infliximab for one year. Infliximab had been working perfectly, I got a taste of feeling completely healthy and normal, for the first time in years I had energy...
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    Impaired kidney function

    Hello, So this week I've missed numerous calls from my hospital( I don't have access to my phone during the day). Today they left a message saying my kidney function had come back abnormal with my GFR being low and my creatinine raised. They said they would keep trying to get ahold of me but...
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    Vitamin deficiencies

    Hello, Hope everyone is well. I had my Infliximab infusion last Thursday and the usual monitoring bloods were taken. I was called back later that day to be told I'm deficient in many vitamins and anemic again. I was especially low in B12 and vitamin D. I was just wondering what this means...
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    Remicade and weight gain?

    Hello, So on Thursday I have my first remicade infusion. Looking online I've read horror stories of people gaining like 20/40lb while on the infusions and It got me worried about the effects or remicade. I'm really happy with my weight atm, I'm not underweight and do not need to gain any weight...
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    Distension- when is it too much??

    Hello, So since Monday my abdomen has been slowly but surely getting bigger and bigger. It is now huge! It is really distended, I feel like my skin is being stretched and pulled so much, it is really really firm and hard to touch, and I can't suck it in at all! I am really quite uncomfortable...
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    Humuria or Remicade, which one do i choose?

    Hello all, So I've been told that i need more treatment for my crohns :( Im not sure what to think about it, not ideal but my crohns is so poorly managed atm i am kinda glad to have something else which may help get my symptoms under control. Anyway, i was told i can have the choice between...
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    Iron infusion - what to expect

    Hello everyone, After a long time waiting i am finally getting an iron infusion next tuesday. I have been suffering with really bad symptoms related to aneamia with my iron level dropping to 6 now so i am really hoping this infusion will help with the symptoms. I just wanted to see if anyone...
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    Horrible morning nausea

    Hello, All this week i have woken up in the morning with horrendous nausea which is so strong i can't even seem to tolerate water. I haven't been vomiting but i feel very close to if i tried eat or drink anything. It usually passes by the afternoon but when i have it i feel really rotten just...
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    Low ferritin levels - How low is low?

    Hello, Ive had Crohn's for around 1 and half years now. I've always been anaemic with low iron levels, my Hb levels never go beyond 10.5. Recently however my ferritin levels have dropped to 8. I have accepted that with crohns i will always have a constant level of tiredness but over the past...
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