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  1. mccindy

    Colonoscopy scheduled!

    :dance: I will finally be having my colonoscopy! Well, not for another month but at least it's scheduled. August 7th is the day. I had to postpone it for a month, since I will be having my craniotomy with brain tumor resection on July 11th! Need some time to heal from that before having the...
  2. mccindy

    Brain update

    Hello everyone, I know several of you are wondering how things went for me yesterday at the neuro oncologist. He says he's about 90% sure that the tumor is benign and slow-growing. He called it an astrocytoma, which means it grew from the white matter of my brain. It's just under an inch in...
  3. mccindy

    New news, not good news (Crohn's unrelated)

    So Friday I had a seizure in my office and woke up on the floor. I went to my staff and they took me to the ER, where I had a CT and an MRI, and then was transferred to Abbott-Northwestern in the Twin Cities. Turns out I have a brain tumor on the outer left part of my brain. It's about an inch...
  4. mccindy

    Crampy pain

    This morning I woke up with crampy pain throughout my abdomen, went the bathroom but no relief.:poo: I have less cramping now but still feel very full and crampy. Still have what I think of as "shadow" pain, where it is not intense but is very uncomfortable. Is this something that others have...
  5. mccindy

    Cheese?

    I have been lactose intolerant for several years, so I have had to learn a lot about what I can and can't eat. I have always been able to eat aged cheese (a doc explained that aging cheese takes the lactose out of it), so I've been a big fan of sharp cheddar, parmesan, aged swiss, and other...
  6. mccindy

    Sad and Frustrated

    Well I just had a visit with the doctor. The mass they saw on CT looks like a water-filled ovarian cyst, nothing to worry about. It doesn't explain the bowel symptoms though. He didn't see any inflammation anywhere and all blood tests were negative. SO back to square one. :ybatty: I'm so...
  7. mccindy

    Update - not what I expected

    Well the doc called me Friday after work and said he had the results from my CT already. He didn't see any inflammation in my intestines or any strictures or anything. What he did see was a 2-inch "dense mass" in my right abdomen. Freaking out a bit! :eek2: He wants me to have an MRI to get...
  8. mccindy

    Contrast dye for CT

    I had my CT today, and I had to drink the contrast first and then they also did the IV. I'm not experiencing much more than some mild discomfort today, but I seem to have an awful lot of rumbling going on in my belly today. :eek2: I haven't been able to go to the bathroom today (pretty...
  9. mccindy

    OMG cookies!

    I've been pining away for something to eat that wasn't fish, chicken breast, rice or sweet potatoes.... I finally bought a bag of gluten-free, dairy-free, nut-free cookie mix and some "chocolate" chunks that are the same "free" style. It cost me 10 bucks but I made about three dozen cookies...
  10. mccindy

    Need to rant!

    So I usually think I'm a pretty strong person, I can handle a lot of things and I'm tough. But last night, I couldn't help it, I just started crying. :frown: I have to deal with back pain every day of my life. Some days it's hard just to get out of bed in the morning, because it hurts so...
  11. mccindy

    Question for those without typical flare pains

    I have a question for those of you who do not experience much pain. I was diagnosed with Crohn's in 1995, with burning in my right abdomen. I was put on Prednisone at that time, then had exploratory surgery in April and an appendectomy, and they told me that it was in remission. For the last 18...
  12. mccindy

    What a mistake, eating nuts

    So yesterday a friend gave me a Kind bar - almond cranberry - which is gluten free and dairy free. I haven't had nuts since I started this elimination diet so I thought I'd give it a try. Last night I felt fabulous! Better than I've felt in a few weeks. I thought, hey, maybe I can eat nuts...
  13. mccindy

    More confused than ever!

    So I just had a chat with one of the docs here at the hospital where I work. I told him my symptoms and he says he's not sure if it's really a Crohn's flare or IBS, and he wants to see my original diagnosis information to see if I really have Crohn's since it's been so many years. Ugh now I am...
  14. mccindy

    Foods during a flare

    I've been doing a lot of research recently, and frankly, it's making me more confused. :confused2: One source says one kind of food will work, and another source says that food is a no-no. What's the truth? I found several that say that oatmeal, well-cooked, is a good idea, but others say that...
  15. mccindy

    Settling?

    It seemed like my symptoms increased gradually over the last couple of months (mostly gas and excessive bloating), then the last couple weeks the pain got severe. I stopped taking the daily ibuprofen and started an elimination diet, and now I feel like I'm on a roller coaster. In the course of...
  16. mccindy

    Quinoa?

    I'm looking for something to use as a nice filler with meals. Obviously in mid-flare where I am I can't do bread, pasta, etc. Does anyone know if quinoa is okay to eat during a flare?
  17. mccindy

    Question about symptoms

    I'm a little curious - I've been spending the last couple of days reading others' posts. I do have a lot of the same symptoms with this current flare, but I'm wondering why I don't have the diarrhea problem that so many here seem to have experienced. I do have it occasionally (usually after...
  18. mccindy

    Pain location?

    I am experiencing a painful flare (which I might have caused myself by taking ibuprofen daily :ybatty:), but the pain is not localized. Previously I had pain only in the lower right quadrant, because my Crohn's is at the junction of the small and large intestine. However, besides having pain...
  19. mccindy

    Curious about treats?

    Not that I eat a lot of desserts or treats, but what is there for such things (besides peeled canned fruit)? I've heard that chocolate is a no-no. I am lactose intolerant so I do like to grab a Lactaid ice cream now and then, but now I am afraid to try it because of the sugar. Obviously it's...
  20. mccindy

    First flare, and it's a doozy

    I was diagnosed in 1994 with Crohn's disease, and placed on Prednisone. After three months (and thirty gained pounds), I was officially declared to be in remission. 19 years later, and now I'm experiencing my first real flare. I've had times over the years when I felt some minor discomfort...
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