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  1. kello82

    Megace/Megastrol-appetite stimulant?

    hey everyone i have just started on this drug. the trade name is Megace but generically it is megastrol. it is sort of strange how it is used.....its used for stimulating appetite in conditions like AIDS patients or eating disorders, and then also is a breast/uterine cancer drug? how weird is...
  2. kello82

    Pain after eating

    the past....4 meals, like 5 mins after i eat i get horrible pains, i think in my STOMACH stomach though. it is high up, like a couple inches down from my sternum. then it kinda radiates to my back and dissapates eventually. im pretty sure it has nothing to do with my ileo, im still pooing...
  3. kello82

    Idea to help with dating/relationships

    idea to help with dating/relationships ok, so like a week ago i joined up on one of those free dating sites you know? NOT to go on dates, but more just to, get out of my element, get out of my head, chat with some completely random people, and maybe have a little innocent flirting ;) hah no but...
  4. kello82

    Stabbing pain in upper left chest

    this is the second episode of this pain that ive had. the first was about a month ago, it comes on suddenly and feels like a stich in your side. it is sharp pain everytime i inhale and exhale. i chalked it up to a pinched nerve and after about a day and a half, the pain disappeared. today, the...
  5. kello82

    The anti-diet

    the anti-diet ok so ive been trying out a different way of eating. i know a lot of you all are the same, i have a really hard time eating. nothing sounds good, it doesnt taste good, etc. i realized that i AM hungry a lot of the time, i feel the emptyness in my stomach, but for some reason that...
  6. kello82

    I'm proud of myself today because......

    the title about says it all. i am going to try to find things in my daily life that make me proud of myself. i hope this is an exercise that will help everyone else here who feels like theyre walking around with a big fail stamped on their forehead. i ask that this thread be more on topic and...
  7. kello82

    Trying to get rid of Ostomy Supplies, BRAND NEW

    im hoping some of my osto-homies here can use this stuff, i dont know what to do with it!. i dont use these products anymore and i have a load of brand new boxes of supplies. make an offer, pay for the shipping and its yours! i will total the catalog price for each item, just for reference. i DO...
  8. kello82

    Fat in poo

    fat in poo as this is a roundtable of poo discussions, i thought id share this tidbit... i was watching the dr oz show a few days ago and learned that poo with a high fat content *can* be a symptom of pancreatic cancer. fatty poo floats, but i mean we all have floaty poos right? his...
  9. kello82

    Reaction to Intravenous Vancomycin

    well, just last night i discovered a reaction to IV Vancomycin. it is called Red Man Syndrome. can anyone guess what color youre skin turns? nope, youre all wrong, its green. heh, just kidding of course :D ok.... so, the nurse set up the bags of meds and started running the vancomycin through...
  10. kello82

    Air travel with ostomy?

    ok so im heading out to IL tommorow to visit my g-parents and totally forgot about the whole stoma+airplane thing.... i remember hearing somewhere that the pouch poofs up in the air? can anyone tell me about that? is it really bad? should i wear a bigger bag or smaller, does it matter...
  11. kello82

    So i went to change my appliance today.....

    ....and my stoma looks totally weird. im worried, what do you guys think is wrong with it??!?! first it looked like this..... then it morpehed into this..... AHHH! its aliiiiveee!
  12. kello82

    Silly Stoma Stories

    hahha ok well i mainly started this because i had a pretty hilarious incident at a dr's office a few weeks ago, then i figured im probably not the only one with funny pooper stories! ok so i was at the derm's office and went over to the appt desk to schedule for next time. there are 2 different...
  13. kello82

    Intestinal surgery staples?

    ok, so this is twice now that one of my mucous poos has resulted in a tiny tiny piece of metal wire stuff coming out my butt end. the first time, i set it on the counter but then it was gone later and i had been half asleep so i didnt even know if it really happened. i definitly have this second...
  14. kello82

    Ostomy and Clothing

    my hope is that this thread will help settle some fears of people are searching the net for ostomy and stoma information. for me, my main concern was what it was actually going to LOOK like, so im thinking theres others out there with the same worries. all the times that i was researching...
  15. kello82

    Losing hair?

    um ok, so my hair is like COMING OUT!! not like huge deal, but every time i run my hand thru it or something i end up with like, 6 strands. then again, 6 more strands, again, it goes on and on and it adds up to a LOT that has fallen out! and if i brush it? holy crap, im scared im gonna go bald...
  16. kello82

    A few words for everyone!

    a few words for everyone! hey guys i just wanna take a sec and really say thank you. i dont even know if there are words to express this. i can honestly say that this past 1/2 year has been the hardest and most painful of my whole life in dealing with this. it has also been the lonliest and...
  17. kello82

    Club toes/fingers and crohns

    club toes/fingers and crohns ok so this came to the front of my mind cause someone (i wont name them until they know that they are being singled out like this lol) posted a pic and i noticed a striking similarity their 4th toe is EXACTLY like mine. like, thinner on the bottom and fatter on...
  18. kello82

    Help!

    help! ughh im scared now! tonight i noticed that the skin around my incision was a little pink and looked a little swollen and has also been stinging a bit, but i thought it was just cause i have been moving around a lot more yesterday and today. but i decided to take a look and i just peeled...
  19. kello82

    Surgery Time

    i will be having the ileostomy done pretty soon, i just have to call on monday and schedule a slot. today we got down there and my GI looked at me for like 2 minutes and could see how bad i was, so we collectively saw no point in infusing tysabri today. i told him i was ready for surg, but not...
  20. kello82

    Weird poo

    ok so i cannot figure out what came out of me today. the rest of the bm was normal, but when i wiped i noticed a bit that was really hard and white. (graphic warning for this next bit).... so i squished it lol, and it was like really really white and creamy-ish. with a hard shell on the outside...
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