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  1. mish2575

    Types of fistula drainage. What do they mean?

    Hi guys. I have persistent perianal fistula. At this point they are always leaking. I have about 5-6 openings in 2 clusters. The consistency of the drainage changes all the time. Does anyone know what different types if drainage indicate? Is it always bad when blood is present?
  2. mish2575

    Fissure itch help

    Hi guys, After a BM I get about 5 minutes of intense itch pain. Any advice for instant relief? Preparation H? Coconut oil? Aquaphor? Cannabinoid topical? (I am resistant/immune to lidocaine) Thanks.:)
  3. mish2575

    How do i find a specialized doctor

    I want to go for a second opinion. I will be searching the Boston area, so i know there are LOTS to choose from. How can i find a doctor who specializes in Fistulas (or strictures)?
  4. mish2575

    How do i search for a specialuzed doctor

    Fistulae are my biggest issue. How do I find a doctor, for a second opinion, who specializes in fistulizing crohns?
  5. mish2575

    How to tell if your sphincter still works

    They MRI I had a few years ago show complex fistulae running parallel to the sphincter. I've recently had stool that feels like a big firm stool. I feel a bit constipated. But the stool ends up being soft sold. I know I'm not supposed to push very hard but when I push very slightly...
  6. mish2575

    What type of pain management doctor do i pick?

    Hi all, Its been a while. Hope you guys are doing ok. I have been on Tramadol for, what feels like, inflammation type pain in the abdomen. It is great but it doesn't work as well as it initially did. I don't want "stronger" meds. The reason I like Tramadol so much is because it doesn't...
  7. mish2575

    Mesalamine tips needed. (pun not originally intended)

    Hi guys. I am starting a mesalamine enema. There were no detailed instructions. I mean there should be drawings! Im think I'm doing it wrong. I cannot get a third of the bottle in before it starts seeping out, even when I wait many seconds before re-trying. Also I get nervous about...
  8. mish2575

    Enema tips needed. (pun not originally intended)

    Hi guys. I am starting a mesalamine enema. There were no detailed instructions. I mean there should be drawings! Im think I'm doing it wrong. I cannot get a third of the bottle in before it starts seeping out, even when I wait many seconds before re-trying. Also I get nervous about...
  9. mish2575

    Air entering Fistula - ouch!

    I have just had a fistula open up into my anus (there's a chance it may be a boil from my hidradenitis - they are hard to tell apart). Well now when I pass gas a portion will enter the fistula via the anus. it hurts bad. I have to sit down and it forces the air back out through my anus for...
  10. mish2575

    Hidradentitis Suppurative - newer treatment

    Hi all, I developed Hidradenitis (large, excessive, painful boils in the glandular areas) in 2011 during my 2nd pregnancy. After my pregnancy it was determined that I had scarring on my uterus which needed horemones (Mirena) to prevent excessive bleeding/cramping periods. Recently I went to...
  11. mish2575

    Green tea is magic for me

    Hi guys, I had a very bad flare last month from taking an antibiotic (even though I took a probiotic). During the flare, once I finished my last BM (I'd do approx. 4 in 2 hours) I would have severe pain in my gut for 4 hours. The pain felt like inflammation - just a general pain that was...
  12. mish2575

    Http://www.nutraingredients.com/On-your-radar/Probiotics/Danone-probiotic-patent-Improves-enteric-nervous-system

    http://www.nutraingredients.com/On-your-radar/Probiotics/Danone-probiotic-patent-Improves-enteric-nervous-system "This strain can thus be used in preventing and/or reducing gastro-intestinal disorders"
  13. mish2575

    Did Antibiotics make me worse?

    I was put on Doxycycline for my Hidradentitis (an Extra-intestinal manifestation) but I think it made my gut so much more enflamed! I stopped taking it 2 days ago and my painful BM's are much less severe. I have a follow up appt with the dermatologist that prescribed it. I was thinking of...
  14. mish2575

    Mish2575 Story - finally

    I wrote up my story, finally: I am 39. Wife & Mom of two small children. Work FT. Diagnosed in 2001. Been on Asacol since diagnosis. Started Remicade in 2001 to help my draining rectal fistula. Developed Psoriasis in 2005. Developed immunities to Remicade in 2009 and switched to...
  15. mish2575

    What did your internal fistula feel like

    I had an MRI less than a year ago and it determined that I have a lot of communicating fistulae in my anal area - mostly running perpendicular to it. I have since stopped Humira, because evidently it wasn't stopping the fistula's and that is what I was on it for. Now I'm worried that maybe it...
  16. mish2575

    Humira must have helped my Episcleritis

    I stopped taking Humira because I was on it for my fistulas--which it did not help. My Episcleritis has kicked into high gear though since I stopped. I'm fighting with my insurance company who insist that OTC allergy drops work as well as Pataday. They do not. I put in two drops of Zatador...
  17. mish2575

    Exciting news about biologics after surgery

    [URL="http://www.healio.com/gastroenterology/inflammatory-bowel-disease/news/online/%7B9c1741bb-28c7-4a2e-a16c-fec43cb2d22b%7D/adalimumab-effectively-prevented-crohns-disease-recurrence"] Its all in the numbers. It was a very small study but the results are amazing. "Patients receiving...
  18. mish2575

    MRI results - What the heck!?!? Fistulae and IUD issues

    I got a call last night from my GI with my MRI results from Saturday. I went in for an MRI because I suspected a urethral fistula because I was having UTI symptoms with negative UA/UC results. Well that came back negative which is confusing because my GI saw a little inflamation near the...
  19. mish2575

    New Gassy issue

    I have recently noticed way more gas growing in my system. It starts in the stomach as a dull ache (i wondered if i had an ulcer) but it started slowly moving. I notice it now whenever I eat it keeps happening. I finished eating about 10 minutes ago and am starting to feel pressure in my...
  20. mish2575

    Daily Apple Cider Vinegar ingestion

    Does anyone regularly sip Apple cider vinegar? If so, notice anything changing for better or worse in your system? I've been researching and it looks like it may help a lot of maladies.
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