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    Anyone Had Vitamin D Deficiency?

    I got a call from doc office my blood test show Vit D level of 18 ( normal range as 32-150) Started prescription strength Vit D. Anyone had this problem? I'm battling fatigue but assumed it was from tapering off predisone (stopped now) I'm also weak and dizzy. When I stand up I usually have to...
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    I Don't Have Crohns

    Last week. I was admitted to the local small hospital for several days with stomach and bleeding problems. I was given a ton of steroids and released Sunday. Tuesday, I went to the Vanderbilt Emergency Room in Nashville with the same problems with more pain. I returned home this morning...
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    Diarrhea to Constipation

    I have gone from years of Diarrhea to this new place of Constipation. I don't like it. Since I was hospitalized Fri I can't go to the bathroom. I am partially obstructed. I was given enemas and laxatives in the hospital and no direction on how to go the bathroom. I guess I'll try a enema...
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    Home from Hospital

    Friday, I hemorrhaged again and went to the ER. When the ulcers bleed a lot my BP drops, I get anemic and my heart starts throwing PVCs. I have to get blood transfusions and shots to make my bone marrow produce iron. Now I’m home again awaiting appointment to see to see a new surgeon. Enjoying...
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    In the Hospital

    Went to ER inback and bleeding. Partial obstruction, given meds and high/hot enema. Still bleeding willsee what doc says tomorrow. Typing hard on Kindle. are enemas standard for partial obstruction? In a small town hospital. Still in pain but getting pain shots every two hours...
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    Back Pain and Bleeding

    I started bleeding a lot this morning. A lot of dark blood and red blood in my stools and my back is killing me. I have a call into the doctor. The back pain is crushing like pressure. This is a new symptom for me. Anyone know what it may be? Thanks.
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    Surgeon Appt. today. I am Angry!

    I've waited weeks for today's surgeon appointment. I put all my eggs in todays basket. I have been SOOO anxious to find out what is going to happen only to have the rug ripped out from under me. My GI doctor didn't send the x-ray results to the surgeon so after weeks of waiting, an hour and...
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    Surgeon Appt Tomorrow. What Questions?

    I have an early appointment with a surgeon tomorrow. We'll discuss open or laproscopic surgery for 2 areas 1. dilation or resegment (upper left quad) 2. cutting out bleeding ulcer area. (lower right quad) What questions should I ask? What question did you wish you asked? My blood levels are...
  9. H

    Broke two ribs

    A few nights ago the goats and dogs got out of the barn. It was in the single digits so I had to put them back up. Someone moved a steel fence corner in the dark I did'nt see it and fell on it. Skinned booth knees bad and broke two ribs (waited a few days before seeing dr.) I don't know if a...
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    My Apologies to Prednisone

    I've complained about the side effects since the day I started Prednisone. Ben't but I hav not bleed in over a week and my blood levels are going up. Yesterday I forgot my Prednisone. (i know its bad but I broke my ribs and got sidetracked with that) Last night I started bleeding and...
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    Horrible Pain: Stricture or Kink

    I'm having a strange pain I have never had that brings me to my knees. I stopped all food. It feels lik someone grabbed my intestines and twisted them like a balloon. The first time it took me to the floor It didn't last long (5 minutes) and then went completely away. Now its like an ache...
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    Spiritual Roots of Diseases

    I believe there are spiritual roots to my diseases I took a week class in GA over the summer on understanding the spiritual roots of diseases called Be In Health. I'm taking an online interactive course in Feb on the same topics at Journey 2 Wholeness Ministries online. Thought someone here...
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    I am not taking the Prednisone!

    I can't take it. They increased me to 20 and I can't sleep. My mind races. I'm gittery, I feel like I'm going insane. After 3 nights no sleep I took Ambien -- MISTAKE. Ambien put me to slep alright then I had an accident while asleep got up to clean up and stumbled all over the bathroom. I...
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    Should be Crohns Button LOL

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    Crohns Comic

    The author/comic Tom Humberstone participated in a 24 hour comic marathon and did this piece about living with Crohn's. http://www.ventedspleen.com/blog/2007/10/22/24-hour-comic-everything-you-never-wanted-to-know-about-crohns-disease/
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    Crohn's Tracker (diary)

    I'm using a worksheet from Crohnsandme.com to track progress on meds for my doctor. He loves it. Tracks # of BM, abdominal pain, hours of sleep, fatigue levels, ect on a point system. Very handy. Guess where I keep it? Yep in the bathrrom. I have SO much time in there. You can get it...
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    Bone Marrow Test

    Saw my GI today. He's concerned about anemia and ordered a bone marrow test. I heard these are very painful. Any one have one? He also upped Predizone to 20. I'm very tired, getting over a nasty cold, sores in mouth, 4-8 X day D, achy joints, craving ice, short of breath, tired of being...
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    Blood Levels down

    I had a transfusion (2 units) 2 weeks ago. My hematocrit levels went up from 27 to 36 and hemoglobin went from 9 to 12. As of Wednesday levels are down to hematocrit 31 and hemoglobin 11. Cardiologist wants another transfusion when I get to 30 or 10. My heart is bouncing all over the place...
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    Thrush from Predizone?

    I have a lot of cancer sores in my mouth I assume from the Predizone. I got the thrush medicine but not helping much. My throat is really sore. I don't know if thrush can go into your throat but it feels like it. We've all been sick with colds since Christmas. I'm tired of feeling bad. The...
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    Crohn's disease documentary (download)

    Download this for free. Week In Week Out - Gut Feeling (Crohn's disease documentary) http://www.mininova.org/tor/1297919 Professor Hermon-Taylor, based at King's College London, has been investigating Crohn's disease for over thirty years. He has carried out pioneering research - much of it...
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