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  1. CD68

    I think my daughter might have Crohn's also

    She's seven. On and off for months now she's had stomach cramps, complains her shoulders hurt, diarrhea, feels urge but can't go. Checked her poo and it's got mucous in it. Tell the ped that I'm anxious about Crohn's since there is a genetic component to it (I think it's like 10% with a kid...
  2. CD68

    Cheating on my Colon Prep

    Last time I did this I took drank the koolaid so to speak about an hour ahead of schedule and I ended up getting very little sleep due to the insomnarrhea. But that's not all. With the Fleet you go through two rounds of bathroom trips and pray that the second round ends before your trip to the...
  3. CD68

    Do you always get an ostomy with a resection?

    Both the doc and I are worried that I'll need surgery to remove the cecum. They are going to do another colonoscopy, but meanwhile I'm wondering what determines if you get a temporary ostomy or not? Are they automatic with Crohn's patients getting resections?
  4. CD68

    Heartbeat in ears

    Today I started feeling unusually lightheaded. Every now and then I have to stop and get a grip because of the lightheadedness. I felt sort of stuffy in my ears, not like a cold, but like everything is swollen in there. Now I have a constant heartbeat, the hoo-wooooosh sound of blood in each...
  5. CD68

    Meds three times a day: How punctual are you?

    I take my meds at 6am, 2pm, 10pm. I wake up late and take the morning med whenever I wake up..I am not employed, I've got a passel of kids at home--I'm not eager to set an alarm clock. Sometimes I don't pay attention to the clock in the afternoon. I need to get a watch with an alarm or...
  6. CD68

    What's the worst joint pain you've had?

    A couple of summers ago there were a few days in which I couldn't go up and down steps. For almost a year my hips were acting up so badly that I couldn't walk more than a few hundred feet. Thought that would be over when they diagnosed me and got me started on drugs. (Don't you just love it...
  7. CD68

    Is it me or the horsepill that is Pentasa?

    I take those giant 500 mg sized capsules. That's 1000 mg of Pentasa 3 times a day. They are an inch long, yep I measured them, the same length as the pill cam only skinnier. So pretty and blue--they look like a piece of broken crayon. But.... At least once a day I choke on one. Never...
  8. CD68

    "I told you I was sick!"

    Age 40 with atypical presentation of Crohn's. Guess my guts never read the medical text on how they were supposed to act. I had very bad bouts of numbness and tingling in my arms and legs. Sometimes my entire arm would fall asleep at night...couldn't hold a position either standing, sitting...
  9. CD68

    Talk to me about blood tests in Crohn's

    I don't mean what blood tests they use to help decide if a person has Crohn's but the blood tests they use to monitor your health once you've been diagnosed. When I was first diagnosed I was so busy trying to understand the very basics of the standard meds that I didn't pay attention to what...
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