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  1. LNS87

    Vomiting during infusion?

    Hey all, I had my 8th infusion this past wednesday. I've never had any issues or reactions from it in the past, but this time about halfway through i suddenly got very shaky and nauseous and vomited once. I felt better after but was still nauseous off and on so the nurse called my GI and was...
  2. LNS87

    How long after starting Remicade did you stop your old meds?

    Just wondering how long your GI kept you on your old meds after starting Remicade. I have been on Asacol HD since 2012 when I was diagnosed. Had some trial and error with other drugs between Nov 2013 and Jan 2014. I started Remicade February 2014 and doing very well on it so far, I've had...
  3. LNS87

    First Follow Up since Remi - Update

    So I have had 2 remicade infusions so far, my next one will be on 3/28. I had my follow up with the GI's PA today and it went really well. I had a lot of questions for her, especially regarding how to balance my diet and whether to follow my food sensitivity results right now or not. She gave...
  4. LNS87

    Question about when you see your GI

    Just curious, when you go see your GI do they do an exam each time, or do they just talk to you? If they do an exam, do they just palpate your abdomen or do they do a full exam with a rectal exam? My GI will push on my belly if its the first time she's seen me in quite a while, but if its a...
  5. LNS87

    Crohns & Colitis Birthright Israel Trip 2014

    Hey everyone, I wanted to let you know that if you are Jewish, between the ages of 18-26, and qualify to go on a Birthright Israel trip, there is one special for IBD patients. I went last year, and it was the most amazing 10 days of my life! Not only seeing the whole state of Israel, but...
  6. LNS87

    What to do next....biologics vs elimination diet?

    So I'm in a big dilemma that at this point is just making my head spin and making me nervous. Let me explain the situation and I would LOVE your opinions or advice to help me decide what to do. So my GI doctor has decided I need to go to biologics after failing Lialda, Asacol, Canasa, and 6MP...
  7. LNS87

    Update and starting biologics...any tips?

    So i have been dealing with a mild/moderate flare since September. I went on a 5 week course of pred and then about a week after I finished it, I started having symptoms again. I had a scope done in December which showed mild-moderate active inflammation/ulcerative colitis so the GI started me...
  8. LNS87

    Update - starting 6mp and nervous!!

    Was scoped on Dec 12th with mild/moderate inflammation found in the whole colon, and had my follow up to talk with the GI today. They are starting me on 6mp, which after talking to her I feel better about, but still nervous. Maybe it's because I am not experiencing horrible symptoms, they are...
  9. LNS87

    Got my biopsy results - 6MP or Remicade?

    So as most of you know, I had my colonoscopy done last week. I got the biopsy results in the mail yesterday and they showed mild-moderate active pancolitis. I have to make a follow up appt with the GI to find out what meds she plans on putting me on at this point, but it sounds like it will...
  10. LNS87

    2 days post-colonoscopy and not feeling well

    So I had my scope a little over 48 hours ago. I am still not feeling great, however I wasn't feeling well even before I started the prep either so I don't think it is related to the scope but I am not sure. The doc found mild inflammation which she biopsied and thinks IBS is a big part of my...
  11. LNS87

    Prep day, and in a flare :(

    My scope is tomorrow at noon and today is my prep day. I have basically been on clear liquids for 36 hours already, and starting the mag citrate and dulcolax in a few hours. Was only able to sleep about 4 hours today and I woke up nauseous and in pain. This flare is getting worse fast, so i...
  12. LNS87

    Flare getting worse

    So i am apparently still in this flare that started back at the end of September. I went on Pred for 5 weeks and did great, but about a week after finishing my symptoms started coming back slowly. Now its been about 5 weeks since stopping pred and I feel like I am going downhill fast...
  13. LNS87

    Mag citrate/dulcolax prep?

    Hey everyone, So I am going for my 3rd colonoscopy in about a month and after a bad experience with Suprep last time, I asked for Mag Citrate instead. Last time I tried the suprep took about 1 sip and about threw up because i have bad issues with taste and a horrible gag reflex. I called the...
  14. LNS87

    Saw GI today - update and a few questions

    So back in September I had a flare and was put on prednisone for 5 weeks, which I finished about a week ago. I had my follow up with the GI today and I did not like what she had to say. I have minor symptoms starting to come back already after being off the pred, so she wants to scope me...
  15. LNS87

    Just finished pred and symptoms are back...

    So I had a flare of my UC start in August and finally got into the GI and started 5 weeks of pred in September. Now, this flare did not have all my original UC symptoms, i mainly had pain and a little blood on the toilet paper but thats it - no diarrhea, no major weight loss, etc. I just...
  16. LNS87

    Perineal itching

    So for the past 2 years or so (about as long as I've been dx with IBD), i've had issues with perineal itching - as in the entire area front to back. I've talked to my GI, my internist, and my OBGYN multiple times and no one seems to be able to figure it out aside from giving me a steroid cream...
  17. LNS87

    Anyone tried Shape Reclaimed program?

    Wondering if anyone has tried the Shape Reclaimed anti-inflammatory diet program with IBD. Talked to my doctor today and he is really into this and thinks it would help me not only with my UC but also lose some of the pred weight i have gained. However at the moment I am on a pred taper due to...
  18. LNS87

    Night sweats...any advice?

    So I have been prednisone 40mg for about 5 days now for my UC flare. I am already starting to get the night sweats and it is awful! I work night shifts so we will see what happens when I go back to work tonight and sleep during the day, but does anyone have any suggestions to reduce them or...
  19. LNS87

    Can you get waxed while on pred?

    I am starting pred this week for a flare, and just realized I had a waxing appointment scheduled for next week. I know pred makes skin more sensitive/thin, so is it safe to get waxed while taking it or should i cancel my appointment? Thanks.
  20. LNS87

    First Flare since diagnosis :(

    Hey everyone. I posted a week or two ago about not sure if I was having a flare or not. Anyway I made a GI doc appt and went this morning. After a lot of questions and her pressing on my belly, she definitely thinks it is a flare of my UC. Ugh, this is the first time for me since diagnosis...
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