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  1. tonya_n_ky

    Humira, Cimzia, Stelara or Remicade?

    I have been in "remission"...if there's really such a thing with this disease? We're always dealing with other issues due to it. I went in the hospital the last week in Feb. with a bowel obstruction. It was from scar tissue, strictures, etc.. I had a colonoscopy that confirmed what the hospital...
  2. tonya_n_ky

    Mercaptopurine?

    Hi everyone. I began taking Mercaptopurine 10 days ago. Starting dose 25mg. I have had a lot of nausea, headache, and feel overall horrible. I can barely carry my body around. The best way to explain would be flu-like. I am wanting to know if these are normal side effects and if this is what...
  3. tonya_n_ky

    Severe Body Aches :(

    For about the past 4 years I have dealt with fatigue off and on. I get a b12 shot every 2 weeks. But about 2 weeks ago I started being nauseated, low grade temp (off and on) and the worst body aches I have ever felt. I feel like I have the flu without the cold symptoms. Everything hurts... :( I...
  4. tonya_n_ky

    Entocort Question

    Hi everyone. I was just wondering if there is a generic form of Entocort? My Dr. put me on it and quite frankly I simply can't afford it, even with insurance. My dosage is 3 pills a day.. (3mg). I got a quote from my insurance that this would run me roughly $335 a month. Thanks for any input.
  5. tonya_n_ky

    What do you think about the H1N1 Vaccine and Crohn's

    Hi Everyone! I am just curious on what everyone thoughts are on the H1N1 (Swine Flu)? I ask this because I am on Imuran and we all know that our immune systems are just weaker than that of a healthy person... so I wonder...Am I better off to get the vaccine or just hope I don't get it. I have 2...
  6. tonya_n_ky

    Help! Ouch! Ugh!

    Hi everyone. I was wondering if anyone else has this problem..and if "yes" then please PLEASE tell me how to make it end! My stomach is looking like I have a basketball under my shirt and Ohhhh the pain in my tummy (upper middle mostly)! It's not as bad when I am sitting but when I stand up I...
  7. tonya_n_ky

    What diarrhea meds help you?

    Hey all. I had surgery 6 1/2 years ago and since then I have been on cholestyramine powder and it has always worked really well for me except for some bloating. I was using it every 2-3 days as needed until recently. Now I am having to use it almost daily to keep the diarrhea settled. I don't...
  8. tonya_n_ky

    Hello Again :)

    Hey all! I've been MIA for awhile but popping in to say hi. How is everyone? I posted on the facebook/myspace thread of Jeff's. If anyone wants to add me just let me know. I'm doing well..I guess...I have been smoke free for 6 months. :D I think I am trying to flare up again though. I had...
  9. tonya_n_ky

    Popping In To Say Hi :)

    :) Hey all!! How is everyone? I haven't been around in awhile but wanted to stop in and say hi. I am getting married soon. I haven't picked the date but it'll be spring probably as I want an outside wedding. :) I quit smoking! 4 months ago today so I am thrilled about both. If you are a smoker...
  10. tonya_n_ky

    Fissure & Hemorroid Help

    Hey. I have a fissure that was bothering me tremendously this past week. I was practically crawling out of the bathroom, sweating in tears. Anyone else been there? Anyways, I got to thinking and when I gave birth to my son they gave me Tucks medicated pads to use. They had Witch Hazel in them...
  11. tonya_n_ky

    Lymph Nodes

    I've posted about this before but going to again because it's happening once again...my axillary lymph nodes are swollen, red, warm to the touch and OUCH! I was just wondering if anyone else has this problem. I've asked my family dr about it and he tells me to use a different razor for my legs...
  12. tonya_n_ky

    Being Little

    I was just wondering if ya'll are mostly "small" framed, ect. I am 5'3" and 122 lbs and all I seem to hear is how "little" I am. UGH! I eat all the time and it just seems that I stay the same. Although food doesn't stay with me long so I'm sure that has something to do with it. I've thought...
  13. tonya_n_ky

    Just Funny

    I work in a Nursing Facility and the other day we had a lady who was drinking the yummy golytely prep...and wouldn't you know it :voodoo: I am the one who had to mix it and take it to her. So I'm standing there mixing and I'm gagging and about to puke right where I stood. Several co-workers...
  14. tonya_n_ky

    Joint Pain

    Hey Ya'll. How's things going? I know joint pain is sometimes a part of having crohn's BUT what are ya'll taking to help it? My dr prescribed me something for pain but of course the insurance company is an ass and it's not covered ( and that was the generic brand). I'm on another pain pill that...
  15. tonya_n_ky

    Have you heard about this?

    I saw this in CVS the other day and got the site off the box to see what all it said, ect. and to get some opinions about it before I bought it...and still unsure so I figured I'd post and see if any of u have tried it and what results u have had, or if anyone knows anything about it. Here's...
  16. tonya_n_ky

    Humor Me

    I'm sitting here and POW all of a sudden my stomach growled like a bear. You know what growl I mean! The one that sounds like a huge fart on the inside..lol...I was just wondering if any of u have had that happen in a very embarrassing place... and the story that goes with it. It happens to me a...
  17. tonya_n_ky

    Howdy

    Hi all...I've disappeared for a bit so just wanted to give a welcome to everyone who's on the newer side of the forum. I hope it helps you the way it has for me, there's some wonderful people here.
  18. tonya_n_ky

    Entocort

    Hey guys, the last time at the GI and he put me on entocort. Needless to say I started having major headaches and nausea so I just stopped taking it and when I go back going to see if he can try something else. I had just started a new job and wasn't willing to feel worse that I was off of it. I...
  19. tonya_n_ky

    GI appt today

    I went to my GI today. I think he's really a vampire...he only wants my blood, lol. He's sending me for a small bowel follow through. I guess the colonsoscopy in Oct. just wasn't enough to satisfy him. Since I had a resection, he said the colonoscopy scope can only go so far and he wants to make...
  20. tonya_n_ky

    Imuran and Nausea

    Hey guys, me again...lol I have been slowly moving up on my dosage of Imuran, I just reached the dose my doctor wants me at, which is 125mg. When I was at 100mg I wasn't having any probs at all but after moving up to 125mg I have been nauseated for 2 days now. Has anyone else ever had this...
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