• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Kero

    Liver Enzyme Spike

    Just got off the phone with my IBD nurse, apparently my bloodwork from last week showed a jump in my enzymes. I have to go for another blood test tomorrow, but what could cause this? Does this mean I may have to switch drugs? Or can this happen and nothing to worry about? Only thing that changed...
  2. Kero

    First infusion in the AM

    First Remicade infusion in the AM. Excited and nervous all at the same time. Afraid it won't work and I will have to wait to get something that will.
  3. Kero

    How soon can symptoms be back when starting to taper?

    My taper started on Sat, woke up this morning in lots of pain. I haven't felt this crappy in a few weeks. Is it because I am starting my taper? Went from 9mg to 6 mg. I am miserable today, and ready to cry. Can't wait until I start Remicade, I sure hope it helps!
  4. Kero

    Canadian disability tax credit..

    Just wondering if Crohn's counts for the DTC? It says bowel issues, but not specifics. Thanks :)
  5. Kero

    It took awhile, but the Crohn's has presented itself with a vengence

    Saw my GI today, and now have a course of action. She is thinking it has been simmering for a long time and has finally decided to make itself known. She apologized for making me wait so long but she had to be sure. Well the scan I had the beginning of October showed it without a doubt. Because...
  6. Kero

    Anyone on Remicade in the Edmonton Area?

    My GI will be putting me on Remicade and just wondering what to expect? Thanks in advance!
  7. Kero

    Is it normal to still have good and bad days on Entocort?

    Started Entocort about 2 weeks ago. Was feeling fab for about a week until this morning. IS it normal to still have bad days after having so many good ones? I felt fantastic for about a week. Thanks all!
  8. Kero

    Finally a diagnosis after 2 years

    Took me 2 years + to get to this point, and I was told this morning my official diagnosis is Crohn's. My family doctor has been fighting for me all week. After a trip to the ER and a CT scan, I was told to follow up ASAP with my GI. Earliest they could get me in was Nov 13th. My GP wasn't...
  9. Kero

    So angry right now....

    My GI continued to insist its IBS and the inflammation means nothing. Well, fast forward to Friday morning. Woke up with bad pain and went to the ER. They did another CT scan and found I now have 25cms (almost a foot) of inflamed bowel, up from the 10 cms. ER doc and radiologist both say Crohns...
  10. Kero

    Increase in symptoms, pain as you do more activity?

    Does anyone else notice and increase in symptoms as the day goes on? I notice that I usually feel better in the mornings, but as I move around and do more active things my pain increases, sometimes my D increases. The more intense the activity, the more it can hurt by the end of the day. Makes...
  11. Kero

    Ugh! In Limbo again, still no diagnosis....

    I saw my GI on Wednesday, well ex GI now. She said that there maybe, a little bit of IBD starting. She asked if the Pentasa helped, I told her no so she took me off of it. She told me the next step will be a pill cam, but that could be a wait of months and months. She then said she doesn't think...
  12. Kero

    Chunks of Pentasa in my stools, normal?

    Exactly as the title reads, I am finding chunks of the Pentasa in my stool when I wipe. It also hasn't aleviated any of my symptoms. I don't see my GI again until Aug 26! :(
  13. Kero

    GI has never ordered bloods or stool sample, is this odd?

    So I have been seeing my GI for just over a year now. Through the whole time, she has been insisting IBS, I had a scope done on May 7th, and I have active colitis in my terminal ileum. The whole time I have seen her, she has never ordered bloodwork or stool samples, but insisted it was IBS. Is...
  14. Kero

    Finally have a diagnosis.....

    And it is active colitis in the terminal ileum, coinciding with Crohns. Glad to finally know what is happening. Unfortunately have to wait almost a month before I see my GI doctor again :( Hoping we find something that puts me in remission quickly
  15. Kero

    Really struggling, no end in sight, still no answers :(

    Really struggling, no end in sight, still no answers :( Updated with answers! I must first apologize for not being around much. The depression has started to get to me and I haven't felt I could be supportive being as depressed as I have been. My thread title basically says it all. Almost 2...
  16. Kero

    FODMAP diet, how long 'til results?

    Hey everyone! I haven't been around a whole lot because I have been really down about this whole tummy thing. 18 months now of fighting to get help and get the tests I need :( What it seems to come down to is IBS. Biopsies from the scope have come back negative for any kind of IBD. So I am...
  17. Kero

    In lots of pain, kinda scared :(

    Heading to the ER soon Just waiting for my hubby to get home. My abdomen hurts all over from the belly button down. Pain started on Friday and hasn't really gotten better. I was afraid to go to the ER in case they admitted me, because hubby is at work and I would have had no one to watch my...
  18. Kero

    Update on me

    Hey everyone, I know I haven't been around much. Mainly because things haven't changed. Still don't know wtf is going on, still in pain almost every day :( I had my scope done in July, and I don't see my GI again until next month. Depression is getting bad. the list of foods I can eat continues...
  19. Kero

    Inflammation in terminal ileum

    So what is the chances that my ileum inflammation was caused by my prep? I don't see my gastro again until November. I went to my reg doc's office yesterday to see if they could access the results. I didn't see my usual doc I saw someone who was filling in and he looked and said there was...
  20. Kero

    House is ready to go

    After a month of busting my ass and suffering through my tummy pain, my house is finally going on the market. Might even get a showing on it tonight!! Woo hoo! Thankfully my hubby and a good friend were soooo much help. Kepp us in your thoughts for a quick sale :)
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