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  1. FrozenGirl

    How much folic acid with MTX?

    I recently increase my dosage of mtx to 15mg/ week. Along with the increase my GI told me to increase my folic acid to 5mg/day. Previous I was taking 1mg/day (on 12.5mg/week). This seems like a huge jump to me (esp since prenatal vitamins have less than 5mg) but I pressure you can't have too...
  2. FrozenGirl

    Eczema: allergy or Remicade induced?

    So in the last couple months I have been having issues with my hands. They get super dry and then they crack and occasionally bleed. They are also itchy sometimes after washing. At my last appointment my GI noticed and stated it was Eczema probably from an allergy but there was also a...
  3. FrozenGirl

    Lomatil and Immodium?

    Hello, I am on IBD meds however while I am waiting for the latest one to kick in I am taking Lomatil prescribed by my GI. He said to take one before bed then one as needed and he is okay with me taking 2-3 a day if I need to. Trouble is it reduces the frequency I go but not necessarily the...
  4. FrozenGirl

    "Bubbling" feeling??

    Hi everyone: Lately I have been feeling a "bubbling" feeling more and more. It feel like kind of a pressure. No real pain but it is mildly uncomfortable. Any idea on what this is it how to get rid of it? I thought maybe gas but sometime I feel the sensation but don't actually have to go to the...
  5. FrozenGirl

    Methotrexate twice a week?

    Has anyone here ever taken methotrexate twice a week? I am on methotrexate with Remicade and it is helping but I feel like it's a cycle. Inject thurs evening, feel bad on Friday/sat (ibd wise, not just methotrexate hangover) feel pretty decent on Sun-tues then downhill wed/thurs. I'm on 15mg...
  6. FrozenGirl

    Starting methotexate, experiences?

    (This is cross posted please delete is that isn't allowed) So today I saw my GI again. 4 weeks ago I had a cope that showed since stopping Imuran I was flaring (had to stop due to chronically low WBC count even on very low doses) I was put on pred (20mg) which helped but no remission. He...
  7. FrozenGirl

    GI appointment update

    So today I saw my GI again. 4 weeks ago I had a cope that showed since stopping Imuran I was flaring (had to stop due to chronically low WBC count even on very low doses) I was put on pred (20mg) which helped but no remission. He agreed we needed to change something. He gave me 4 options. 1...
  8. FrozenGirl

    Fine in the day- pain and cramping in evening

    Hi everyone So lately I have been having a weird thing going on symptom wise. It has happened a couple times now. I will be okay all day, only have to pee but no D all then. I eat as normal (low residue, safe foods) then in the evening it's like everything that should have been spaced over the...
  9. FrozenGirl

    Microscopic Colitis article

    http://www.medscape.com/viewarticle/841445 An interesting article on MC, a few times it mentions how it can be difficult to distinguish from ibs. Something to think about for the undiagnosed. Note it is on medscape which requires an account but it is free and awesome ( you can subscribe to...
  10. FrozenGirl

    Yet another scope

    Just a flex sig but still. I was in a period of semi remission on Remicade every 4 weeks and 50mg of Imuran but had to stop Imuran due to too low white cell counts, even on 25. I have been getting worse so I called my doctor and he wants to scope on Wednesday. Its disappointing when you feel...
  11. FrozenGirl

    Have to stop Imuran

    So me and Imuran have been have a crazy time for the last year. I started at 50, not many side effects but little actually effects, increase to 100 at 1.5 months, brief dip in white counts, stopped for a week and back on. Fine for 2 months later than another white count drop, down to 50, counts...
  12. FrozenGirl

    Decreasing remicade amount.

    Has anyone gone on an increased dose or shorter time between infusions then gone back? Any experiences Quick summary of me and remicade. After mezavant (Lialda) prednisone, and Imuran were found not to be effective enough I moved to Remicade. First 2 doses did absolutely nothing, prior to dose...
  13. FrozenGirl

    Reducing Remicade dose/ frequency.

    So I talked to my GI (who I haven't talked in in a couple months) asking about my blood work and my continued bleeding even on Rem. I am doing well with about 3 Bms a day, but I still have issues in the morning with urgency, d and gas. My blood work looks really good he said but then sent over...
  14. FrozenGirl

    Does a double dose take longer to infuse?

    Hi everyone, I am now going on to a 10mg/kg Remicade dose vs my previous 5mg/kg and was curious if it would take longer to infuse due to the increase amount of Remicade or if they speed up the iv. (Background: After my induction (which I had no response to)I went to 5mg/kg every 4 weeks...
  15. FrozenGirl

    When do you refill prescription?

    Just curious when everyone here refills their prescriptions, eg. A day before you run out, a week, etc. Personally it depends on the med, pred I get 5 or so days before because I am paranoid about running out but Imuran I will generally wait until about 2 days before. As well how long a supply...
  16. FrozenGirl

    Keeping track of and managing meds

    How does everyone keep track of and manage all the various meds. I feel like it is getting hard to take the right medication with/without/before food. For example my pantazoprole needs to be taken a half hour before food, prednisone and mezavant should be taken with food, iron is preferably...
  17. FrozenGirl

    Newly diagnosed and overwhelmed

    Hi everyone, My name is Megan( or FrozenGirl because I am always cold!). Here is a hopefully not to long summary of my story. Symptoms started in August. Thought it was hemroids so I bought some cream thought it would go away. When it hadn't by September I got concerned and mentioned it to...
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