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  1. ccerulean

    What would you do in my situation?

    Hi, so a little background... I was diagnosed a year and a half ago after intense ubdominant pain. Didn't have many other symptoms before diagnosis, had loose stool from time to time but nothing that I thought was serious. My main symptom since the initial episode has been PAIN -- stabbing pains...
  2. ccerulean

    Never-ending disappointment: "normal" MRI

    I had an MRI on Monday to see what was going in with my disease after 8 months on azathioprine. The dr sent me an email on Thursday saying the MRI came back normal...! I called immediately, and he called back later in the day to say the report found no significant pathology in the abdomen, and...
  3. ccerulean

    Is my aza working?

    Hello, I was diagnosed with Crohn's in February 2014. I've been on aza since October 2014 (nearly 7 months). I weigh about 105 lb so I was on a 100mg dose up until last month when blood tests showed that both my 6-TG and 6-MMP levels were too high. My doctor reduced my dose to 75mg. I am also on...
  4. ccerulean

    VSL#3 causes intestinal cramping

    Hi, my doctor recommended I try VSL#3 as part of my treatment for Crohn's disease. I've tried it for several days on three separate occasions now, and find that each time I experience increased intestinal cramping and discomfort. Prior to speaking with the doctor I had been taking Florajen3...
  5. ccerulean

    Does this sound like IBD?

    My boyfriend has always had some GI issues. He'll get a flare up where he gets very painful bloody diarrhea for one day. This will put him into a cycle where he is extremely constipated followed by diarrhea and intense stomach pain once it releases. This will go on back and forth for a couple...
  6. ccerulean

    Overly emotional

    Is anyone else overly emotional during a flare? I've always been an emotionally sensitive person, but since I've been dxed in February I've been crying at the drop of a hat. Happy things and sad things make me cry. I'm almost always on the verge of tears. I don't think I'm depressed, but...? I...
  7. ccerulean

    Has anyone had good results with Imuran?

    I'm going to start it soon and am scaring myself reading the horror stories. :( Does anyone have a success story to share?
  8. ccerulean

    Blood work before Humira?

    What types of blood work did you get before starting Humira? My doc has ordered a PPD (is this TB?) and Hep B. I asked about doing a full blood panel since they have never done one on me. They are still referring back to the workup I had done while in the hospital in the middle of a huge flare...
  9. ccerulean

    Looking for doctor recommendation in Syracuse NY

    Hi, does anyone here live in Central NY and have a GI doc that they really like? Looking for a second opinion. Thank you.
  10. ccerulean

    Study: Acupuncture reduces inflammation in sepsis cases

    Not sure if this has been posted already, but it seems to have promising implications. http://www.scientificamerican.com/article/can-acupuncture-curb-killer-immune-reactions/
  11. ccerulean

    How often do you get bloodwork?

    How often does your doctor do bloodwork? Mine took blood at my scope and diagnosis back in February. Since then I've seen him twice, been on and now off Entocort, but he hasn't taken bloodwork. At my follow-up to diagnosis, I asked if I was at increased risk for vitamin deficiencies, and...
  12. ccerulean

    Should I start Remicade/Humira?

    Hi, I was dxed with Crohn's this past February after a flare in January, (no prior GI problems). I take Pentasa and just finished tapering off of Entocort as of last Thursday. I've been on a low residue diet for 5 months so far. This June has been the best I've felt since the beginning of the...
  13. ccerulean

    Tapering off Entocort/Budesonide -- should I call dr?

    Hi, I've been on entocort since the end of February, after my first flare and diagnosis. I did 9mg for 2 months, then began to taper to 6mg for a month. This went well, with no side effects. My main symptom of pain was very gradually decreasing throughout this period. Last week, I started to...
  14. ccerulean

    Experience with doctors after diagnosis - is this typical?

    Hello everyone, I just passed the 2 month mark since my diagnosis of Crohn's disease. I was diagnosed after a colonoscopy, which I was having to "rule out" Crohn's so my surgeon could remove my appendix. Guess what? It turned out to be Crohn's. So the doctor told me this while I am waking up...
  15. ccerulean

    Juicing causing pains?

    So I bought a juicer. I've been using it for one week making juices with different combos of apples, pears, pineapple, carrots, and oranges and have really liked it. It certainly makes the pills go down easier. I drink one glass of juice per day. I've been having what I can best describe as an...
  16. ccerulean

    Oral thrush won't go away

    Hi, I was diagnosed with Crohn's this last February. Before they figured out the diagnosis, the docs thought I had appendicitis and put me on Cipro and Flagyl which gave me thrush on my tongue. They then prescribed 10 days of Nystatin swish and swallow (did nothing) followed by 4 days of...
  17. ccerulean

    New to Crohn's... Are my meds working?

    Hi, I was just recently diagnosed with Crohn's one month ago. My first flare started on Dec. 31 when I had some major abdominal cramping. The doctors thought I had appendicitis and put me on antibiotics, I had a second attack of pain on Feb. 7. In the meantime, my main symptom has been a...
  18. ccerulean

    Colitis without diarrhea?

    Hello, I'm new here. I had some abdominal pain on Dec 31 and Feb 7 that were thought to be appendicitis. After undergoing a colo to rule out Crohn's before appendix surgery, the doc found ulcers in my terminal ileum. The pathology came back as colitis. (whole backstory here...
  19. ccerulean

    Surprise! I have Crohn's, and confusion.

    Hello, I'm feeling very confused. I'm hoping I can get some support/advice from this forum. I'm a 32-year-old woman with no history of health problems, GI or otherwise, until now. Here's my story: On Dec. 31, 2013, I awoke at 5:00 am to what I thought was a very bad gas pain in my low abdomen...
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