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  1. Sea_Star

    How would you describe your flare pain?

    I'm sure Crohns'/UC manifests itself differently for all of us, but my "flare"-as I'm learning more about my symptoms over the past several years- seems to be RLQ pain...kind of like someone cut my ileum open and is pouring hot water in it. It's amazing how connected the mind and the gut are...
  2. Sea_Star

    Has Anyone Lowered/Skipped Doses of 6MP?

    Unintentionally of course. The past several months have been overwhelming that I'm too exhausted to take/cut the 25mg every other day to complete the 75mg alternating dose. So i've pretty much just been on 50mg daily with biweekly Humira for the past several months...I've been fine! Until 2...
  3. Sea_Star

    How many times have you slapped yourself?

    8 years with Crohn's...and moments like these I ask if I was born yesterday because of mistakes made. Has anybody on here repeated mistakes? First, I'm sorry for running to this forum whenever something comes up...I feel really bad I haven't been as active on here. My history is on other...
  4. Sea_Star

    Is this really my Crohn's acting up...after a month off Humira?!

    I swear...if it's not one thing, it's the other. I am so vulnerable right now.... I had elective surgery for lipodystrophy of my upper arms (major confidence killer...last time i wore a tank top in public i was like 10 lol...27 y/o now and I haven't had a bf or really dated...ok sry tmi!). Of...
  5. Sea_Star

    Stopping Humira for Elective Surgery-Antibodies??

    Hi everybody, Long story short, I'm 27, started Humira 1.5 years ago and have been doing great! I've had lipodystrophy of the arms since a teen, and I've never worn sleeveless shirts---last time, I was 9 years old lol. ANYWHO, I decided to get it taken care of now while I can, so I'm undergoing...
  6. Sea_Star

    I did it again :( Help??

    Last year, I volunteered with Marine reptiles (Sea Turtles) and my doc basically said they'd prefer me not to be in those environments. This last Sunday, was my first deployment as an animal responder, assisting in sheltering dogs that came from a puppy mill. When I got there, they assigned me...
  7. Sea_Star

    Loading dose wearing off??

    After my initial 4 injections June 26th my symptoms(RLQ pain) went away and came back a few days before the 2nd loading dose. I have my symptoms back since Fri and am due for the first single shot Fri, but I also feel swollen in the rectal area...almost feeling worse. Is this normal to feel...
  8. Sea_Star

    How many ended up with psoriasis after/during Humira?

    This is ridiculous. I'm 26, never dated or even been kissed and am freaking out over Humira more than I did with 6mp. I'd rather go back to a high level of 6mp which put me in remission instead of psoriasis, heart palps, future new problems with Humira, even if the cancer risk is higher in...
  9. Sea_Star

    What is so bad about having a high level of 6mp?!

    The first and last time I went into remission, my MMP level was 13,000+...an accident of being too high lol, sure my liver was slightly elevated...took myself off eventually because I felt great. This time when it came back, not too much progression,I feel like my GI didn't give it enough time...
  10. Sea_Star

    Palpitations/Shortness of Breath??

    Irony-I posted about this exactly 1 year ago when I was taking Entocort! 2 Fridays ago, I had my loading dose. The following Thursday, after kickball the night before and exercising Tuesday, I woke up on Thursday with palpitations. Shortness of breath later developed that afternoon. That night...
  11. Sea_Star

    Biologics Effects vs Immunosuppressants effects

    Ok, first off, Happy 4th to all in the US :) Alright, I succumbed to my Dr prescribing Humira and had my 1st loading doses 2 Fridays ago....however, thinking things through, I'm questioning why Humira and the other Biologics have the risk for Fungal, TB, infections vs 6mp/Imuran? They are both...
  12. Sea_Star

    Do you have RLQ pain? LLQ?

    How many of you have frequent BM but NO pain? How many have normal BM but RLQ/LLQ pain? And how many have both? How would you describe Crohn's pains? I can't remember if my medical notes from previous doctor visits which state abdominal pain mean RLQ tenderness/pain...lol. If it does, it'd...
  13. Sea_Star

    Has anyone had Chronic inflammation but no scarring?

    I mean Chronic as in...more than 1 or 2 years...consistently... is there anybody out there with no scarring whatsoever?
  14. Sea_Star

    Any asymptomatic Crohnies with Scar tissue/surgery?

    Are there any Crohnies out there with hardly any symptoms but have developed scar tissue/needing surgery? Has anybody had long-standing inflammation and NOT gotten scar tissue? In 5 years, this is the 2nd time I've had any problem (took myself off meds 2 years ago) and I'm so facing the...
  15. Sea_Star

    I'm so so scared...

    ...of what I "may" have done to myself. I'm sorry to keep repeating on this forum but it's the only way I am able to feel at peace :( 2010(diagnosis)-2013: rocky treatment; non-compliant with 6MP at first since my disease is not typical (no diarrhea)...just had abdominal pain and some rectal...
  16. Sea_Star

    Push through taper...? Help :(

    I'm trying not to call my Dr's office (Mayo Clinic) for every little symptom I have (been doing that for the past couple months almost every week lol). I started 6mp (again, after 2 years) in Nov on 50 mg. Increased to 75 last month and developed abd pain within 2 days. Amylase a liiiiitle high...
  17. Sea_Star

    Possible Pancreatitis? Can you...

    Hi All! I restarted 6mp on Nov 10, 2014 at 50 mg (After being off of it for 2 years). I asked my Dr if I should increase it (since he said last time I should be on 75mg...weighig between 170-180 lbs and I'm 5'6.5''-5'7'') and I increased it to 75 this last Friday night and Saturday night...
  18. Sea_Star

    Alcohol and meds?!

    Soo I don't like alcohol, I've never had a complete drink I don't think. I had a sip on Halloween and tonight I had maybe 5 sips(the neck of a beer bottle)...I'm on pentasa 2x/day, entocort in the morning and 6MP at night. A) I'm worried about pancreatitis now and B) we're going to Vegas and...
  19. Sea_Star

    Can you build resistance to Entocort?

    Let's say you take 6mg for about 4-5 months. You're off it for a month, only to need it again and re-start 9mg. Say it removes the pain for 1 week but then you start getting RLQ soreness again...is that because you've lost response to Entocort?
  20. Sea_Star

    How many of you DON'T have scar tissue?

    Just wondering if everybody eventually develops scar tissue, or are there folks who are in and out of remission with the luck of not having scarring? Or does it take years of inflammation to develop some? I admit I was a little rebellious not taking things seriously since I'm mild, but now I...
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