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  1. Eternal_Howl

    It's been a while esophagitis and gastric issues

    I was posting in the undiagnosed group's forum for a while back in 2014 when my gastro thought I might have Crohn's. I met some wonderful people experiencing unpleasant things with their health. I am grateful to all of those people who supported each other and myself while we were/are trying to...
  2. Eternal_Howl

    Clinical Trial for Crohns in countries including US and New Zealand

    I haven't been on here in a while as I'm still undiagnosed as to my issues, but did have total bowel obstruction. They never did find out what was wrong aside from non h.pylori gastritis and adhesions. But when I read this article, I thought of my fellow undiagnosed people that I conferred with...
  3. Eternal_Howl

    Certain foods making you sick - undiagnosed?

    Hey guys, It's been a long time since I've been on the forum. I was under investigation for Crohn's last year and then when my bowel finally obstructed, they determined that I had adhesions, most likely caused by a previous abdominal surgery in 2005. Anyhow, I think I just found a cause to...
  4. Eternal_Howl

    Should I go ahead with the CTE? Honest opinion, not just generic doctor stuff

    Was going to cancel my CTE, but guts ache started last Tuesday. Bowel hasn't moved since probably Monday and I've now got more symptoms. Will the CTE pick all this 'crap' up? Or should I just cancel. A CT with contrast back in May indicated that I had thickening in an area of my small intestine...
  5. Eternal_Howl

    Suggestions for a good meal replacement?

    I'm 'under attack', and can't get a diagnosis, but best case is it's probably Crohn's or strictures. Either way, I can't eat right now. I was wondering if someone could suggest a good meal replacement that has primarily the nutrients and protein. I don't care for the fat (I've still got...
  6. Eternal_Howl

    Naturopath? Do you? Don't you? Would you? Wouldn't you?

    So, out of the blue I was thinking "I should go see a naturopath". I'm one of those people that generally sticks with conventional medicine, because I already have a medical condition that is 'suppressed' by modern medicine. However, I also believe that it is better to take a more natural...
  7. Eternal_Howl

    Does anyone take Gelatin?

    I was wondering if anyone here takes Gelatin to help relieve their symptoms. Does it work? The reason I ask is I remember my Aunt who has Celiac Sprue said that she takes it. She's in her 70s and has been on a strict gluten-free diet for years. I haven't yet been diagnosed with Celiac and didn't...
  8. Eternal_Howl

    New gut virus discovered

    http://www.livescience.com/46994-new-gut-virus-discovered.html "The new virus, which the researchers have named crAssphage, is a type of virus known as a bacteriophage, meaning it infects bacteria. It's likely that crAssphage infects a very common type of gut bacteria called Bacteroidetes...
  9. Eternal_Howl

    Double balloon, MRI, CT or small bowel series

    Hi, I had a colonoscopy and EGD done today. They found a few things, but did not make it to the region of greatest concern - the ileum. I have visual thickening of a part of the ileum that has shown up on a CT with contrast. I've had the small bowel series with barium and that probably...
  10. Eternal_Howl

    Geez Louise - how many laxatives do I need?

    Colonoscopy and endoscopy in 2 days and took my first lot of magnesium citrate about 4 hours ago. Nothing yet. So, I took a couple of the dulcolax. I know, that's a timed release thing and should work in the morning. But if it doesn't, I should probably look at chugging some miralax too...
  11. Eternal_Howl

    Does Pentasa cause kidney / back pain?

    Just started a short course (short because I won't be able to afford the prescription and was given samples and told the dosage) of 500mg capsules at 2 x 4 daily. Started noticing back pain around kidneys. It's constant. Can't reach the doc. It's not severe, but I assume this is from the...
  12. Eternal_Howl

    Tight throat - did something not make it past my swallow reflex?

    Something's jammed in my throat. My throat was a bit tight and not right before, and I just ate a few pieces of dried fruit and it feels like there's a piece of dried banana or something just stuck there. Had a few sips of soda - just belching and can't dislodge it, if it is indeed something to...
  13. Eternal_Howl

    Did anyone present with some symptoms of Crohn's and it turned out to be Carcinoid Syndrome?

    Just wondering. Sorry I don't have much of a comment in here. I usually write a book. I just don't feel good in general and some of the carcinoid syndrome symptoms seem similar. I'm exploring all avenues because sometimes the experts get things wrong and since I'm undiagnosed, I don't want to...
  14. Eternal_Howl

    Can thickening of small bowel disappear on its own?

    Just curious about that. Can it disappear or does it not. Because I don't know the cause of the thickening in a portion of my small bowel yet, I'm just wondering. I'm due to take the pill cam soon and wondering if the thickening can rectify itself spontaneously? Anybody know?
  15. Eternal_Howl

    Agile Capsule - Dummy Capsule or Pillcam Patency Capsule

    Hi guys, I wasn't sure where to put this, but there is sometimes a procedure required for people being recommended for doing the pill cam endoscope (where you swallow a camera pill). For people like me where a CT (with contrast) has shown thickening in the small bowel, it was recommended I have...
  16. Eternal_Howl

    Nose started bleeding again today - does yours?

    It's been random, intermittent and the first sign I had issues with sinuses at all was when I was pregnant and had rhinitis of pregnancy. That was back in 2011. My first bout of allergies was in 2013. I didn't know what it was at first, but got the sniffles and watering eyes etc and runny nose...
  17. Eternal_Howl

    Turmeric for internals and Derma E for skin

    This is my attempt at taking a more natural approach. I'm going to start taking Turmeric Supreme by Gaia Herbs and try Derma E Stop Itch for the angry red rash that is from my mail bag I tote around for work - I seem to be allergic to the canvas (scratchy etc) and I have a nasty red rash up my...
  18. Eternal_Howl

    Manuka Honey or similar - taken orally.

    I'm originally from New Zealand and many people around the world are aware of the healing properties in Manuka Honey (Manuka is the Maori name for Tea Tree). Anyway, they use it for burns and bites applied topically. You can buy manuka honey in containers and add it to your tea etc, but I was...
  19. Eternal_Howl

    An alternative to prednisone for skin issues?

    I've got bad contact dermatitis. It might even be gluten related for all I know. Last year the doctor saw my arm (summer, I tote around a canvas satchel for work) and said I had shingles after I said it was not contagious. The rash is back - short sleeves again. Yay. Last year she gave me a...
  20. Eternal_Howl

    Can Ondansetron 8mg cause diarrhea?

    This might seem like a strange question. I find it strange I'm asking it. :ybatty: On the prescription bottle of my Ondansetron 8mg (for nausea), it says can cause constipation. Undiagnosed, possibly with Crohn's. I haven't had the typical signs you get with undiagnosed Crohn's such as...
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