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  1. Manalishi

    Stelara every 12 weeks in the UK, not frequent enough?

    I'm on 8 week cycle started last spring, the guideline standard I'm told. I've noticed the symptoms return roughly half way through between 4-6 weeks. My consultant has asked me to start recording the dates of attacks. In the UK they need to re-apply for more funding with justification if the...
  2. Manalishi

    Humira injection fail

    Hi all, has anyone else had this issue. I placed the injection pen over the spot... fired... didn't get the needle like pain... watched the yellow indicator travel down, indicating the drug had been injected. Then when I removed the pen lots of liquid flushed out and spilled over the skin...
  3. Manalishi

    Research: Crohn’s disease: Is the natural history changing?

    Research: Crohn’s disease: Is the natural history changing? Just thought I'd share this with everyone. If I've understood properly Crohn's sufferers are more likely to die from complications from their illness then the normal population :( "...mortality rate in CD still exceeds that in the...
  4. Manalishi

    Link between salt and auto-immune diseases

    "The link between salt and overactive immune cells appears to be a gene known as SGK1, which plays a key role in allowing the body to absorb salt. The more salt you ingest, the more active SGK1 becomes. Kuchroo, along with Aviv Regev, a computational biologist at the Broad Institute in Boston...
  5. Manalishi

    Link between Salt and auto-immune diseases

    "The link between salt and overactive immune cells appears to be a gene known as SGK1, which plays a key role in allowing the body to absorb salt. The more salt you ingest, the more active SGK1 becomes. Kuchroo, along with Aviv Regev, a computational biologist at the Broad Institute in Boston...
  6. Manalishi

    Inside Health - BBC 4 Radio talking about "the gut"

    Hello all, an interesting radio show coming up that UK Crohnies might be interested in. Next week's show (March 17) is going to talk about some scientists who've recreated the human gut to investigate all that happens inside. Remember there are thousands of bacteria and bacterial interactions...
  7. Manalishi

    Second opinion - UK

    Hello all, I'm just in the process of getting a second opinion on my just newly discovered Crohns. I've been having a horrible time with constant pain and no respite in sight. I just got out of frightening week in hospital. The docs there say I need to go for a double-balloon endoscopy to check...
  8. Manalishi

    How harmful E numbers get "clean labelled or hidden

    Good article by Joanna Blythmann a UK food investigative journalist with vast experience tracking the history of the modern food industry. Much like the cat and mouse game which regulators play with the financial industry vigilance is needed to keep on top of the every ranging was the food...
  9. Manalishi

    Entocort (Budesinide) - feeling nauseous

    Hello all, I've just started a course of Entocort (Budesinide) and Pentasa (Mesalasine). from day one I started feeling queasy after meals. I've tried reducing meal size. It's helped a little bit but not really getting rid of the unbearable nausea. Does anyone else get these symptoms? It's so...
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