• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Rev Rog

    Seizures / Patency Capsule / Prednisone

    Quick update. Had Patency Capsule on Friday (now Sunday morning in NZ), and back to hospital tomorrow for xrays to make sure it has/is passing through my strictures. Down to 25mg Pred, and seem to be coping well. However, In February I had a bad seizure/tongue bite and they have continued daily...
  2. Rev Rog

    Going 'full flare' for diagnostics / GI Specialist suspects some 'rare' form of IBD

    Great news, I saw my new 'public hospital' GI Specialist yesterday, and are scheduled to begin a raft of diagnostic tests, including Pill Cam, endoscopies and laparascopic biopsies of small bowel. In NZ we have a totally free public health-care system, and pretty much all of the 'private'...
  3. Rev Rog

    Unclassified IBD after 40 years :0)

    Quick intro and history. Had my first endoscopy at 9 years of age to try and find out why I experienced such pain and reflux/vomiting after food. 40 years later and still unclassified. Had an 'open' Nissen Fundoplication in 1995, but just got worse after surgery. Got to my lowest in 2013 and...
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