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  1. E

    Ustekinumab or tofacitinib positives and negatives

    That is what I was thinking, Crohn's is in remission or controlled, so do not want to mess. Thanks for the tip re combination. As to my little penguin , yes the spine is the main area, Ankylosing spondylitis, a bit of a handful to write lol.
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    Ustekinumab or tofacitinib positives and negatives

    I am in the UK, the used to think it was chrons and other was inflammation in the upper region before it now only in the lower and at the moment apparently, it is uc. i am looking for opinions and experiences from users, my adalimumab keeps my seronegative arthritis in control, but not my...
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    Ustekinumab or tofacitinib positives and negatives

    Hi looking for an opinion about 2 drugs, side effects like was muscle/joint pains, and how effective are they? Dr wants me on Ustekinumab or tofacitinib as current drugs, adalimumab, and azathioprine, are not working, but I also got Rheumatoid arthritis /seronegative arthritis and do not want to...
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    Azatioprine side effects

    Hi i got a Question re Azathioprine, i was on 100mg, my Dr now asked me to increase to 150mg, when i first started i had side effects for about 8 weeks which made me feel horrible, like bone ache flu-like symptoms and dizzy feeling, has anybody increased there dose and got those symptoms side...
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    Cholestagel Colesevelam to treat Diarrhea

    thanks
  6. E

    Cholestagel Colesevelam to treat Diarrhea

    Thanks
  7. E

    Cholestagel Colesevelam to treat Diarrhea

    Has anybody here tried Cholestagel Colesevelam to treat Diarrhea and is on Cholestagel? How long does it take to work? Thanks
  8. E

    Vedolizumab and Humira

    Hi My gastroenterologist is thinking of starting me on Vedolizumab as well as Humira, but my rheumatologist says that one cannot get or be on 2 biological drugs the same time. So I am wondering who is right. Is anybody here on Vedolizumab and Humira together, I am from the UK anybody in the UK...
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    Can you take ibuprofen with budesonide (Entocort)

    Hi Leaflet info says not to take ibuprofen with budesonide together, but at times when joint pain is to bad it is tempting. Has any body got any experience of taking ibuprofen with budesonide at the same time? Thanks
  10. E

    Azathioprine opinions experiences and risks

    Hi I have been on MEZAVANT and humira weekly injections which have not been completely working. My new gastroenterologist has now put me on azathioprine 100mg . My question is what are your experiences and opinions of aza and the side affects, is this just a lot of scaremongering as the benefits...
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    Colonoscopy fasting diet UK

    Colonoscopy fasting diet Hi Can somebody tell me if it is ok to have Marmite in hot water or oxo stock cube "soup" the day before a colonoscopy as part of the `clear liquid diet. Any tips how to cope with nausea due hunger and to much liquid also welcome. Thanks
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    Scotland NHS versus Wales NHS

    Hi I noticed all the reply here go back a few years and things have changed a lot, so can any body tell me of recent experiences of getting humira in Scotland on the nhs? i am on weekly injections and live at the moment in wales uk and i am thinking of moving to the highlands in Scotland. how...
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    Medicine for crohns with Diarrhoea help and info needed

    Hi I hope to get some info and help I have Crohn’s Disease and Ankylosing spondylitis for over 15 years now and have taken steroids and Mezavant XL 4800mg which always have worked, but have caused a cataract. I am now on Mezavant XL 4800mg and weekly Humira injections for 6 month. At first...
  14. E

    Medicine for crohns with Diarrhoea help and info needed

    Hi I hope to get some info and help I have Crohn’s Disease and Ankylosing spondylitis for over 15 years now and have taken steroids and Mezavant XL 4800mg which always have worked, but have caused a cataract. I am now on Mezavant XL 4800mg and weekly Humira injections for 6 month. At first...
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    Diarrhea

    Hi I have now been on Humira since July, also taking Mezavant XL1200mg and Loperamide 2mg up to 16mg a day. My Diarrhea and urgency to go is still out of control up to 15 times a day plus and i suffer bad flare ups. The Humira is controlling my "arthritis" and other symptoms but not the...
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    Lavender aromatherapy oil

    Hi I am going to start shortly Humira injections. I have used aromatherapy extensively for a lot of years and when i have any injections or have my blood taken, i do not bruise after putting lavender on the place where the needle went. also when i have accidents like shutting a door on my finger...
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    "Loading Doses" for Humira

    Hi I found out from my nurse that i will only get one standard dose to start with and then fortnightly there after. Does it make make a difference not to have any loading does? They say they only got funding / license for one dose at the beginning in wales!!:mad2: Thanks
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    Humira and health care at home

    Hi I am in the UK Wales and my Dr has decided to put me on Humira. They have taken the bloods and xrays. They said that a company called health care at home would deliver and show me how to use the pens. does any body know how long the health care nurse takes to make the appointment and come to...
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