• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. JackG

    Entyvio, Imodium and Me

    I've been on Entyvio for a year and a half or more, and for the most part I'm pleased with it. I have a lot less psoriasis for one thing. But occasionally even when I'm avoiding my triggers I get diarrhea. And then it stays around. A while back I tried Imodium to stop it and it did amazingly...
  2. JackG

    Can't Get Shingles Shot

    I have been meaning to ask the group if anyone has any information or experience with Shingles and Crohns. I was refused the Shingles vaccine at Walgreens because it's a live virus that you're injected with, and Humira makes it harder for us to defend ourselves. Do we therefor have a greater...
  3. JackG

    Will Humira Go Generic?

    In the last 6 months to a year I have read in several places that Humira is due to go generic this fall. I have also heard they are tweaking the drug to avoid this. The drug is currently $4000 a month in Illinois; I would be interested in what it costs round the world. But the point is, I have...
  4. JackG

    Is It Important to Stay on Humira As Long As Possible?

    I've had Crohn's for decades, I'm on Humira, and I'm trying to retire, but the cost of my Humira is stopping me. One GI suggests I stay on it as long as possible and eat the side effects and the prohibitive cost. There's only so many of these biologics, he says, and you might have problems with...
  5. JackG

    Crohns for 34 Years

    I've had Crohns since 1981. Not many local docs knew about it then and I went undiagnosed for 6 months, all the while with fevers and diarrhea. Luckily I wound up at the University of Chicago weighing 90 lbs, with an emergency abscess and subsequent ileostomy & reconnect. Since then I've been...
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