• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. CharlotteLucas

    First flare after stopping steroid, to be expected?

    I have had my diagnosis since November and did almost 3 months of Prednisone. First 10 mg then 5 and then I just quit. I had a quick flare up the first couple of days but that subsided. Now I have been off for about a month and symptoms are back for sure. It is weird how quickly I forget...
  2. CharlotteLucas

    Prednisone and swelling in hands

    I have been on Prednisone about 2 weeks. We started with 10 mg and then have just gone down to 5 mg like two days ago. The last day of the 10 mg. I forgot to take it and by the end of the day my hands were so swollen I could hardly do anything with them. Next morning same, I took one more 10...
  3. CharlotteLucas

    If steroids help, does that mean it is IBD after all?

    GI originally said, after scopes and a pill camera, that there was nothing wrong. But my primary doc went over my paperwork and he said it did indicate some inflammation, so he conferred with GI and then GI had me come back in. GI said they usually attribute the level of inflammation that I...
  4. CharlotteLucas

    IBD? IBS? Inconclusive results so far

    Symptoms IBS diagnosis since 1999, long time high fiber diet Pain got worse about 3 years ago. Pelvic pain. Differential diagnosis of Interstitial Cystitis based on symptoms. Did not have cystoscopy. Hysterectomy in Dec. 2013 did not relieve pain. IC flared after surgery. Early 2014...
  5. CharlotteLucas

    IBS or IBD?

    I have colonoscopy Wed. Cat scan did not show Crohn's but she said it might not. I have been eating lots of fiber for years thinking I had IBS and in the past year or two my pain got worse. I lost 100 pounds since July 2014 from not eating much due to pain and loss of appetite. I had just...
  6. CharlotteLucas

    Introducing myself

    Hi, I am waiting for a bunch of tests to be completed to see if I have Crohn's. I have a diagnosis of IBS and Interstitial Cystitis so when my hysterectomy did not make the pain go away, I started focusing on what foods cause pain. After a year an a half and a weight loss of almost 100 pounds...
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