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  1. violetcreams

    Preggaz

    preggaz Hey, long time no talk!!! I'm pregnant, but only just. 8 weeks. Haven't told anyone yet. Saw heartbeat on scan at 6 weeks. Cross your fingers for me everyone. I'm feeling pretty rough!! Lots of love, Violet. xxx
  2. violetcreams

    Osteopenia

    Hello All. I've just been for a bone density scan & I've been told I have osteopenia (pre-osteoporosis). They showed me a graph & my scores were at the very top end of the graph. Hmmmmm. I've been taking max dose of budesonide (entocort) for about a year & a half. My Mum had osteoporosis...
  3. violetcreams

    I need your advice on this

    :sorry: Gross, graphic arse related question coming up folks (but I know I'm in the right place for such questions!!!) :sorry: Ok, here goes (I am VILE). This is a new symptom for me : blobs of foul smelling jelly - like mucus (I apologise for graphic description. Am absolutely horrified at...
  4. violetcreams

    Blip?

    blip? Hi All. I'm worried. I've been feeling loads better over the past 2 months. (to recap: 100mg azathioprine daily, 900mg budesonide, 6 x pentasa - reduced from 9, 3 X mebeverine, calcium, blah blah...I'm sick of reciting that boring list). Today I've got the familiar pain in my sides &...
  5. violetcreams

    GrrrrrrrrrRRRRRrrRRRRrRRRR!!!!!!!!!!!!!!

    I am completely fed up people. Just to recap, here are the daily meds I'm currently taking: 75mg azathioprine (to be increased to 100mg next week) 9mg budesonide 9 x 500mg pentasa 3 mebeverine 2 calcium Folic acid & multivitamins I've been on the aza for just over 5 weeks now (on 75mg for a...
  6. violetcreams

    Acupuncture, hypnosis etc

    acupuncture, hypnosis etc Hi all. Ok I have another question for you. Has anybody tried acupucture or hypnosis for their symptoms? Or any other alternative therapies? Any success? Shaz, I think I remember you mentioning that you find meditation helpful? To be honest, I'd paint myself pink...
  7. violetcreams

    Azathioprine

    Hi all, I know that the literature states that azathioprine takes 6 to 12 weeks to have beneficial effects. What have your experiences of this drug been? How long was it before those of you taking aza began to feel better & see a reduction in symptoms? This is a nasty med. Omg - the increased...
  8. violetcreams

    The wildies

    the wildies So I've got the wildies again. :poo: Grrrrrrrr!!!!!! Revolting. My consultant raised my Aza dosage when I spoke to him on the phone this morning. I'm back on my flare favourites: strawberry jelly, marigold vegetable stock & creme caramel. I'm supposed to start my new job at the...
  9. violetcreams

    Is anybody else in this situation?

    is anybody else in this situation? I just can't get this thing into remission. I've been a complete mess for over a year now. I've been on budesonide & pentasa for a year & I started taking azathioprine two weeks ago. It's 2 a.m here & everyone's asleep & I'm in dreadful pain & I feel really...
  10. violetcreams

    New job worries

    new job worries Hi all. This morning I was offered a job in an area that I'm really keen to get into but my health is still all over the place. I'm worried that I won't be able to perform well in the role because of my disease not going fully into remission. I haven't mentioned my diagnosis to...
  11. violetcreams

    Huge obscene bloated self

    Hiyah. Sometimes I bloat up & I look like I'm about six months pregnant. I look obscene & I have to wear 'fat trousers & smock tops'. Today my stomach is absolutely ENORMOUS & as solid as a rock (a huge vile bulbous rock!!!). I'm really uncomfortable. I don't eat any pulses or any stalky veg...
  12. violetcreams

    Hi, I'm new

    Hi, Lovely to 'meet' you all! I'm new here. I'm feeling pretty low with the whole thing at the moment to be honest. I wondered if anybody could share their pearls of wisdom with me? This disease can be quite isolating can't it? My medication / this disease is making my hair fall out at an...
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