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    Pain from Stricture?

    I started Entyvio about 6-8 months back and after a few months started to feel better. In July my GI did colonoscopy and it looked great. About 90% improved from when Stelara was not stopping inflammation. Only problem is one short stricture in the ileum near the terminal ileum. The scarring is...
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    Fails with other Biologics

    Just started talking with my Dr about trying Entyvio because I have already been through Remade (two years of working then nothing), Stelara (apparently never worked for me) and, of course, all the other early diagnosis fails with Budesonide, etc. I have Crohn's only in my terminal ileum and it...
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    Doctor considering first surgery

    I just had a colonoscopy that showed that Stelara is not working for me. This is only a year since Remade stopped working for me after working for only a couple of years. My doctor mentioned that we should also consider surgery at this point since biologics don't seem to be working for me. He...
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    Symptoms after injection

    Does anyone else get GI reactions the first week or so after injections? I’m trying to determine if it is actual Crohn's or the drug. For something that seems to be helping GI issues I continue to see a pattern of GI side effects immediately following dose. I tend to have a few days of...
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    Remade Not working, Dr suggested Stelara - Advice?

    I have been on Remade for about 2.5 years and it worked great at first but about the last 6-8 months I noticed symptoms more persistent again and my ferritin was very low so Dr did colonoscopy and said there was inflammation. Not as bad as before Remade but bad enough. Going to get the blood...
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    Side Effects?

    I have started to have some new symptoms and my GI doc seems to dismiss as having no relation to starting Remicade less than 3 months ago. Afraid I have some new issues happening but wondering if maybe others here have experienced anything similar. First two infusions I experienced some fatigue...
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    Edema, Neuropathy anyone?

    Has anyone experienced ankle edema? I have never had it in my life now shortly after my 3rd infusion my socks are leaving deep marks on my skin. I also have neuropathy in my right foot - started after 2nd infusion. B-12 low normal so tried shots and it helped a little but over a month after sky...
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