• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Ricky_V

    Switching from Remicade to Stelara

    My daughter is in remission on Remicade and Doctor feels it is a good time to move to a more gut targeted biologic. What are others advice and experiences moving to Stelara?
  2. Ricky_V

    Stopping 6MP while continuing on Remicade

    My daughter Renee has been doing well on a 6MP / Remicade combo for several years now and is technically in remission. She does experience headaches and fatigue occasionally. Several months ago her 6MP dose was reduced from 100mg to 50mg/day. Recent blood tests show no Remicade antibody...
  3. Ricky_V

    Post your 2016 - Cost of Crohn's Treatment - Mine = $130,000

    Amount paid by Insurance; $130,000. Billed by Hospital and Doctors was even more! 1) Gall Bladder Removal 2) Liver Infections 3) Remicade and other Meds 4) Multiple Colonoscopies Thanks to Anthem/Blue Cross Insurance for being a great partner this year
  4. Ricky_V

    Remicade Advice

    My daughter is on Remicade/6MP and has tested with no immunity to chickenpox. She had the vaccine as a child. She needs the chickenpox booster vaccine to continue in nursing school which she can not have while on Remicade. We are discussing with her GI the possibility of suspending Remicade...
  5. Ricky_V

    Abscess on Liver

    Renee developed an abscess on her liver and had to have 15cc of pus drained. Spent 3 days in the hospital on morphine and antibiotics. Doctors decided to discontinue all meds except for Remicade and antibiotics believing that 100mg of 6MP over suppressed her immune system. Think I will...
  6. Ricky_V

    Newbie

    Hi, I am new to the forum. Father of two daughters with Crohn's. Renee was recently dx in September. She failed with Humira after 3 months so we have started Remicade and completed the first loading dose. She is feeling good so far and I am trying to get her started exercising. Really...
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