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  1. L

    Levels are back

    WE did michaels levels on Monday after 4weeks 2days of his Remicade. Results show 0 levels of Remicade in his body and he developed antibodies.. Any thoughts? Dr wants to scoop and see what's next. We have appt with his GI next Thursday. Lizette
  2. L

    Remicade

    Hi all, my son started Remicade in Aug he already had 6 infusions evety 8 weeks, he has gain weight since started. But the bathroom issues are still there, he runs quite few times to the bathroom with gases and mucus, sometimes stools are mushy or solid. Other times he has urgency and he has had...
  3. L

    Remicade. 4th infusion

    Hi all, its being 2 months since my last post. Michael had his flu shot 2 weeks and few days before his 4th infusion , His Ifusion was Dec 3. He labs came all good with the expecting of 2 things that are low but normal there is no concern of that. His CRP was low after 7 months of being very...
  4. L

    Fever with remicade

    Hi all, Do your kids get fevers with Remicade, it seams that after 10-12 days of taking Remicade, Michael gets feves for only one day? He got his infusion last week on Monday and last night was all hot. Is this normal or should I contact his doctor? His fever was 100 degrees F. Lizette
  5. L

    Remicade is it working

    Hi, Michael will go for his 3rd infusion Monday, so far we have not seen any changes, he still goes to the bathroom a lot. Sometimes mushy, watery or solid stool but he has to run, his appetite has gotten better, his energy is much better than the summer when he had anemia, his hemoglobin is...
  6. L

    Finally decision taken towards Remicade

    Hi, after years and years avoiding Remicade, it is time to give Michael a new medication, in the past 10 years he did good with 6mp, asacol, Flagyl, cipro, prednisone, a lastly Uceris.. For the past 8mobths is being ups and downs, until he got c diff in March.. So the only way to keep him...
  7. L

    MRI, MrE, COlonoscopy

    Hi All, I need some advice. Here goes the story. In March I took Mkchael to a colorectal surgeon to check on his anal abscesses, he said definitely the Crohn could be there, he suggested a sigmoidoscopy, prior to visiting he was going to the bathroom quite often, fate visiting the colorectal and...
  8. L

    Constipation after MRE,MRI

    MIchael had and MRI!MRE this past Sunday, and he had to drink that barium sulfate, he did great, but after the tests he became gassy, and constipated, he has not gone the the bathroom and poop since yesterdY, he does have the urge but only gasses and very small amount of mucus. He was going to...
  9. L

    Iron infusion

    Hello, how long does it take for iron infusions to see difference In Michael he got his second IV today but last week he was tired and exhausted. They did a blood test today and his hemoglobin when from 10.3 to 10.1 we did not have the iron levels yet But to give you an idea of how low there...
  10. L

    C-diff

    Hi, on my last post i mention Michael will have a sigmoidoscopy, will he had a colonoscopy, he had Colitis, all colon inflammation due to C-diff. Dr start him on medicine for 14 day, vicomizyn, 4 pills 4 a days.. Any one with Cdiff..
  11. L

    C reactive protein

    If you have the C reactive protein high, does that mean you have inflammation? same as the Sed Rate. As I was checking Michaels blood tests the C reactive has always been in normal range and the Sed rate the same. I thought if you have higher levels it means there is inflammation somewhere...
  12. L

    New to forum

    Hello, I'm new to this forum. My son was diagnosed at age 6. Due to anal fissures and abscesses he took prednisone then 6mp for almost 4 years, with asacol , Flagyl and cipro every 6 months each and vitamin D, in 2010 we stop 6mp since the abscesses were still coming, but we kept Flagyl and...
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