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  1. S

    I don’t even know where to go...

    I don’t even know where to go... I’ve debated posting this for a couple weeks now, mostly because I know that I put myself in this situation, but it still stinks! So I was on Medicade last year, but I got married in November knowing it was going to affect the status of my medicade (my husband...
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    Nasty growth wearing on my confidence

    Okay, so I’ve ignored it for a long time because my doctor hasn’t shown much concern, but it’s gross and affecting my confidence. I have a growth about the size of a thumbprint on the back of my thigh, (I know I’m lucky it’s in a place easy to hide, but still) it looks like a glob of chewed...
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    Sinus infection after every infusion

    So the first month after I get my remicade infusion EVERY time I get a horrid sinus infection, my nose gets raw and bloody and it's awful, after every infusion. It starts clearing up after about 4 weeks but then after another 4 weeks I get my infusion and it comes back. My GI wants me to avoid...
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    Severe sinus issues

    When I first stared remicade I got 3 sinus infections with like 5 days of relief between antibiotics, after the third round I had a week or so of relief and then I started having issues again. My nose is dry and stuffed and cracks and bleeds. There was an issue with my remicade and I ended up...
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    Infusion center doesn't have my remicade

    I am so frustrated, my infusion is today at 11:30 I live and hour away, and the infusion center just called me to tell me they don't have my remicade. They hospital the infusion center is at decided to stop carrying it, so my doctors office now has to special order it or something, it wasn't...
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    Having a hard time

    I know I am pretty fortunate, I have an incredible fiancé who supports me completely. I haven't needed surgery. I've been mostly alright, but I feel like I'm never going to be someone in life. When I got diagnosed I was 19 in college, I didn't handle the diagnosis well and flunked out. I went...
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    No reason for pain??

    I'm currently in the ER because I woke up with horrible abdominal pain in the lower right abdomen. They did an X-ray to check for obstruction and blood work. The X-ray was clear and she said my inflammation markers and white blood cells were perfect... any ideas on where the pain is coming from...
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    Blood work on imuran?

    How often does your doctor check your bloodwork on remicade, how important is it? My doctor hasn't checked my bloodwork once since I've started remicade, and I'm also on imuran, but I haven't had bloodwork in months and my doctor said I could make an appointment in December if I wanted to so we...
  9. S

    Starting to feel like the problem is me!

    I can just never feel good for more than a few weeks! I have been doing alright for the most part. But then I got a sinus infection and did a 10 day round of Augmenten, now my stomach hurts constantly again, I can't even pinpoint where it just feels almost sore, and like hunger pains, but the...
  10. S

    Serious anger

    I'm currently on remicade and imuran, but for the past couple months (now getting worse) I've been so angry. The smallest thing will set me off and I want to hit something, and I've never been like that. My mom got me these mood vitamins called 5-HTP, and they somewhat help, but before I take...
  11. S

    Joint pain

    Do you use braces for your joint pain? I've been dealing with awful pain in my knee and hip, I'm not aloud to take NSAIDs and Tylenol is basically ineffective anymore. I'm going to try a knee brace at work today, has anyone else had luck with braces?
  12. S

    Feeling super out of it, tired and detached?

    I don't know what's going on, but lately I have been feeling super out of it, it's hard to concentrate on anything and I can barley hold a conversation, I'm tired from when I wake up until I go to sleep even though I'm getting over 8 hours a night. And I feel detached from myself if that makes...
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    Probiotics

    My doctor prescribed me a certain probiotic, but insurance won't cover it, and it's like $150, so I can't afford that. The other one he told me to get is OTC, but it's still pricey. I'm just wondering what probiotics you use and how much they are, and honestly how much of a difference you feel...
  14. S

    Start remicade tomorrow for the first time.

    I'm just wondering if anyone has any tips or advice. Also, is it okay to eat before? Would you suggest it?
  15. S

    "Normal" pain?

    Hi, I'm new to this forum, and I have a couple questions I'm unsure of. I was diagnosed at age 19 on 2012, I was put on a lot of different things due to reactions and such it changed often. My doctor and I settled on imuran. Then after a few months of feeling better I decided to be dumb and...
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