• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    About stelara side effects

    Hi, I haven’t been on here in a long time. I started stelara back in April and it has been nearly a year since I have been on it. However, since the dose I have taken in December (I have taken another dose last week) I have noticed that there is dry skin under my right eye. It is red and is...
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    Anyone else feeling extremely fatigue with Stelara?

    So I just started Stelara last Friday as it was a last resort after being on vedoluizmab for 6 months. However in the last few days, I have been feeling extremely tired. I have pain all over my body and sometime struggle to get out of bed. I do have exams and deadlines coming up as well, so that...
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    Anyone else get numbness whilst on prednisone?

    So I’ve been prednisone for the past 5 weeks as I had a bad relapse before Christmas and was in hospital for two week (I was released two days before Christmas though) and it has been tapered down. I’m currently on 20mg and have been for two weeks. The doctors want me to stay at 20 for a month...
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    How do I shower with a Picc Line?

    Hi so I had another relapse and have been in hospital for a week with hydrocortisone and IV fluids. Today they put a picc line in as my veins are all damaged from the cannulas and they said it’s better for the long term with me being on treatment; although they may have to stop vedoluzimab as it...
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    Joint pain which is particularly bad in winter. Anyone have same problem?

    Hi. So I’m 21 and have had Crohns since I was 9 and I’ve noticed in the winter that my joints are in agony especially in the cold weather. It has been much colder with it being 1-2 degrees Celsius and I wake up in the middle night crying in pain. I have had a flare up two weeks ago and still...
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    There is a gap between my stoma and skin, is it serious?

    Hi. So I had a total colectomy 3 years ago and I changed my bag this morning when I noticed there was a gap between the skin and the stoma. It was bleeding quite badly and it felt slightly out of place. I have been feeling stressed these past couple of weeks and I have been feeling tired and...
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    New to the site, but had Crohn's since I was 9

    Hi. I'm new to this site and obviously to this group. I thought I'd join to meet people who are going through similar things as me. So I basically I was diagnosed with Crohn's Disesase when I was 9 (I'm 21 now). After two months of loosing 2 stone and having severe diarrhoea and refererred...
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