• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Luciana

    Pain killers

    What kind of pain killers do you take for you Crohns??? And how do you deal with the stigma of pain killers? My fear is not being taken seriously by doctors if i ask for pain killers. That they might look at me like a drug addict. So i often rather suffer. Or take Kratom and Marijuana. Which...
  2. Luciana

    Ozanimod & Janus kinase (Trial)

    Hello Everybody! I'm just wondering if anyone here has tried Ozanimod or Janus kinase (JAK) inhibitor?? After other medications have failed. I'm at that point of the road right now. i've been unable to taper off prednisone, for 2 years now. And I'm not a candidate for surgery. Now it seems...
  3. Luciana

    LDN & Stem Cells

    1/ What happened to the LDN Page??? Is it not considered a treatment anymore or did something else happened? Anyone has any updates? It seemed to have so much potential 2/ Anyone has any success stories for Crohns and Stem Cell Treatment?? When i google it i don't find much, but a few clinics...
  4. Luciana

    Vomiting Blood

    Hello Crohns Family! Im currently in the hospital, so i am in a safe place. But i feel alone and scared and have to write somebody who might be able to relate?? I started Stelara in August and since then i been tapering down my prednisone. I had managed to taper down my prednisone to 5mg...
  5. Luciana

    LDN & Prednisone

    I have just been given the go ahead to start LDN! (low-dose naltrexone) I am so happy right now and i finally feel hopeful that things are gonna work out :) But I'm on 30mg Prednisone still after a bad flare, since march this year….So my question is has anyone else started LDN while being on...
  6. Luciana

    Today is a good day!

    Today is a good day…..I have just been given the go ahead to start LDN!!! (low-dose naltrexone) I am so happy right now and i finally feel hopeful that things are gonna work out :-) But I'm on 30mg Prednisone still after a bad flare….So my question is has anyone else started LDN while being on...
  7. Luciana

    LDN (convince doctor)

    Hello :-) I understand that LDN (Low-dose naltrexone) is not officially accepted as a treatment for Crohn's everywhere but that some doctors still prescribe it to their patients, especially when presented with enough Scholarly evidence that it works. I am based in Germany and i want to ask my...
  8. Luciana

    LDN (How to get your doctor to prescribe it)

    LDN (Convince Doctor) I understand that LDN (Low-dose naltrexone) is not officially accepted as a treatment for Crohn's everywhere but that some doctors still prescribe it to their patients, especially when presented with enough Scholarly evidence that it works. I am based in Germany and i...
  9. Luciana

    Prednisone and Bone Loss

    A quick little question :-) How do you guys protect your bones while on Prednisone? I've taken so much Prednisone in my life i already have slight bone loss, which shows on my DEXA scans. And i want to prevent it from happening any further since i will be on prednisone for the next couple of...
  10. Luciana

    Prednisone Can't sleep!

    :ywow: I'm on 100mg Prednisone IV in the hospital. Bed time is 9pm, it's 2am now and i'm sooooo tired but it's impossible to sleep. Meditated, read a book, netflixed, tried sleeping hypnosis on youtube. nothing is working. Any advice? What kind of sleeping pill could i ask for? without...
  11. Luciana

    Biologics or Surgery ?

    Hello Fellow Crohnies!!! I need some urgent advice from you guys if possible. I am currently hospitalised, receiving 100mg Prednisone IV to give me a few days to decide what to do next. About a month ago i ended up in the emergency room, throwing up, big cramps and bloody stools, with...
  12. Luciana

    Humira and Flare up

    Hello Fellow Crohnies! :-) i'm quite worried at the moment as i think i am starting a flare up. I've had a little bit of blood in my stools the past few days, a lot of gas, and running to the toilet a lot more than usual. I developed a cold soar on my lip too, and in general i'm very tired...
  13. Luciana

    Medically Induced Lupus from Remicade / Infliximab

    37 year old Woman with Chrohn’s Colitis. Diagnosed at the age of 14. This post is about Infiximab / Remicade / Lupus / Azathioprine / Imuran / Humira / Oxycontin / Arcoxia I started infliximab / remicade in November 2017, after being hospitalised with a severe flare up of my crohns. I’ve had...
  14. Luciana

    Curcumin x DMSO x Vitamin C

    Happy Sunday to you all :-) Has anyone had Curcumin x DMSO infusion treatment for Crohn's? Or Vitamin C x DMSO Infusion Treatment? What are your thoughts on this? I have recently started Infliximab. But i don't want to stay on it for too long if possible. And i'm looking for alternative ways...
  15. Luciana

    Infliximab and Blood

    Hello Everyone. I am new to the forum, this is my first post, and i need your advice :sign0085: I recently started Infliximab / Remicade for the first time, because i could not taper down my Prednisone without flaring up. I have been on prednisone for half a year now. Thankfully the Infliximab...
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