• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. R

    Better time to stop Methotraxate

    Hello I am a male in my 30’s and I am on methotraxate from past 1 year. How early we need to stop the medication when you are planning for a baby? My doctor suggested 3 months is enough but I would like to hear real experiences. Thanks
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    Can kids inherit IBD

    With a heavy heart I am writing this post. I am a male in my 30's and I was diagnosed with crohns in 2016 since then my life is very uncertain. We only have one kid born in 2018. My wife is more interested to have second kid but I really scared about this IBD genetics since I heard from the...
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    Any experience on carrying Humira on flights

    Hi all, I need to carry Humira during my international travel, humira sent me a kit to use it for travel but that kit only with hold coolness upto 8 hours but my journey is overall 36 hours. Humira is recommending me to ask the cabin crew to keep the medication in the fridge once I onboard the...
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    My first robotic surgery experience

    Hi Everyone, I would like to share my first robotic colon surgery experience as I was so panic before Day before I had to empty my stomach by fasting and using dulclolax powder On the day of surgery Admitted 5:30AM Surgery started 7:30 Surgery done around 11:00 (9 inches colon was removed)...
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    Foods that triggering in me

    Hi everyone, how can I figure out foods thats making my bowel worse and raising inflammation because every food I eat I don't see any issue including dairy and wheat as long as I am on the medicine. I see most of people complaining about the foods that can trigger symptoms in them how do you...
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    Remicade stopped worked

    Hi all, I am on highest dosage of remicade which is 10mg/kg every 4 weeks. I was not into remission but it was keeping all my symptoms under control. Now my insurance denied 4 weeks infusions by seeing my remicade levels are normal. I am on my 6th week and had all my symptoms back. Ery badly...
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    Travelling overseas for a vacation

    Hope you all doing good. I live in US and I am planning to travel my home country for a long vacation which is about 3 to 4 months. Currently I am on hichest dose of Remicade for every 4 weeks. In my country Remicade is way expensive to buy. Are there anyways to get it through shipment from here...
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    Methotrexate during covid times

    Hi All, I know Methotroxate will suppress our immune power. My GI has prescribed me this since my body formed anti bodies to Remicade. My concern is how safe is to take this drug during covid situation. Has anybody had any experiences with covid while on this drug?
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    Is Alpha probiotic good for crohns?

    Hey, I am planning to start alpha proboitics for my crohn's. Any one using any thought on this specific proboitic? I feel it is expensive. Thanks
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    Not gaining weight on Remicade

    Hi all, I started taking Remicade 4 months back so far it gave me good results but I am not gaining weight at all. I lost almost 20lbs when I was sick. I am also getting light join pains. Any suggestions or any experiences please share. Thank you in advance
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    Causes of Crohns any guess

    Hi all, As everyone aware no doctor has an idea about Crohn’s disease causes but as from my experience I am sharing my thoughts. I usually don’t drink milk and also in India we drink buffalo milk. Here people don’t give steroids to buffalos to get more milk like in western countries(please...
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    Remicade Infusion time in US

    HI all, I reside in USA and recently I came to my home country India for the treatment and doctor suggested to take remicade for my inflammation. Here they are taking about 7 hours to inject Remicade(300MG). I hope in USA they don't take this long. Can somebody share their experience Since I...
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