• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Lynda Lynda

    Sick and tired of being sick.

    Sick and tired of being sick.
  2. Lynda Lynda

    What Does IBD mean for you?

    But how can your treat an illness if you are not properly diagnosed ? Over many years now I have had a lower GI, flexible sigmoidoscopy, endoscopies, colonoscopies, CT scans, blood draws, stool sample tests. I hope you can find a good Gastroenterologist soon and get the testing you need. Take...
  3. Lynda Lynda

    Medicare Coverage for Stelara

    I got my Stelara for free in 2023 and have been approved for 2024. I am 63 years old, have United HealthCare Health Insurance and I collect Social Security Disability.
  4. Lynda Lynda

    Medicare Coverage for Stelara

    Call 833-742-0791
  5. Lynda Lynda

    At the restaurant

    Hi viquita. I have had Crohn's for almost 6 years, but have been sick for over 26 years. I understand what you are talking about. I haven't been able to eat whatever I want for years. Eating restaurant food is tricky, you don't know what is in the food and how it is prepared. Yes, I have eaten...
  6. Lynda Lynda

    Couple fistula questions.

    WAY before I was diagnosed with Crohn's, I had an anal fistula operated on in 1992. A brutal surgery that left a lot of scaring. No oral or IV medications and no seton, but instead a huge deep cut. It took many, many, many years to get the proper diagnosis of my Crohn's Disease and Bile Acid...
  7. Lynda Lynda

    Many small or few large meals during the day?

    I don't even eat what people would consider "small" meals. I eat bits of food throughout the day. Two pieces of cheese or a mini bagel with peanut butter or a meal replacement drink or a Greek yogurt.
  8. Lynda Lynda

    Stelara Support Group

    Started my Stelara "every 6 week" first injection today. I really have no patience for all of these unknowns. Try this drug, try that drug. It is a circle of illnesses, medications, doctor visits, blood draws and scans. Just had a thyroidectomy too. 🤦‍♀️
  9. Lynda Lynda

    Anyone take Budesonide instead of Prednisone

    Well, still on Budesonide for 2 years now. They tried to taper me off of it and my terrible diarrhea came back. Now starting Stelara every 6 weeks instead of every 8 weeks to try to get my.Stelara level higher. Still on methotrexate too. And yipee, had a thyroidectomy 2 weeks ago.
  10. Lynda Lynda

    Overview of Azathioprine & 6-MP

    It is 2023 now. I have a diagnosis of Crohn's Disease. I give myself Stelara injections and take Budesonide, Methotrexate and Folic Acid.
  11. Lynda Lynda

    Standard drug level for Stelara?

    I know that this has nothing to do with this thread or Crohn's disease but I am having my thyroidectomy next Tuesday. My endocrinologist has been monitoring my thyroid nodules for quite a while now and has even done biopsies and the biopsies come back inconclusive. So my endocrinologist finally...
  12. Lynda Lynda

    Standard drug level for Stelara?

    My Otolaryngoloist is going to schedule my thyroidectomy for October 2023. My Stelara injections are going to be every 6 weeks instead of 8 weeks starting September 26, 2023.
  13. Lynda Lynda

    Stelara Support Group

    I will soon start Stelara at home injections every 6 weeks instead of every 8 weeks. I am hoping that this will raise my Stelara levels so that I can discontinue my Budesonide and Methotrexate medications.
  14. Lynda Lynda

    Standard drug level for Stelara?

    For two months the MA at my GI's office has been bumbling with the simple paperwork to get my Stelara from Janssen every 6 weeks. I have been doing my injections every 8 weeks, since my initial infusion, in October 2021. The MA, at the time, in 2018, could not even figure out how to do all of...
  15. Lynda Lynda

    Thyroid

    Thank You for your thoughts 😊 I have been seeing my Endocrinologist for probably 20 years. She is my favorite doctor. I trust her decision that it's finally time for my thyroid to be removed. She has been doing ultrasounds of my thyroid nodules consistently and even biopsies for quite a while...
  16. Lynda Lynda

    Thyroid

    Well, this sucks. I have to have my thyroid removed. My Endocrinologist has been monitoring my thyroid and thyroid nodules for a very long time. The nodules have been biopsied more than once, really nothing conclusive came from the biopsies. I am going to see the Otolarynologist in August. I'm...
  17. Lynda Lynda

    Budesonide

    https://www.ncbi.nlm.nih.gov/books/NBK563201/#:~:text=Budesonide%20is%20a%20medication%20used,the%20corticosteroid%20class%20of%20medications
  18. Lynda Lynda

    Corn starch?

    No popcorn for me. No corn chips. Flour tortilla chips are ok.
  19. Lynda Lynda

    Sigmoidoscopy???

    I had a sigmoidoscopy in 1997. It was painless. I just lay on my side while the doctor scopes just the sigmoid colon area only. He could look at a screen while he was scoping. Of course that was a long time ago.
  20. Lynda Lynda

    Dicyclomine

    Was prescribed this at the Hospital recently. I have Crohns Disease, stricture and inflammation of the terminal Ileum. I am really sick right now. I need to know if anyone has used this drug. I'm not taking it if it makes my symptoms worse. I can't even eat food right now. Thank You.
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