• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Lynda Lynda

    Thyroid

    Well, this sucks. I have to have my thyroid removed. My Endocrinologist has been monitoring my thyroid and thyroid nodules for a very long time. The nodules have been biopsied more than once, really nothing conclusive came from the biopsies. I am going to see the Otolarynologist in August. I'm...
  2. Lynda Lynda

    Budesonide

    https://www.ncbi.nlm.nih.gov/books/NBK563201/#:~:text=Budesonide%20is%20a%20medication%20used,the%20corticosteroid%20class%20of%20medications
  3. Lynda Lynda

    Dicyclomine

    Was prescribed this at the Hospital recently. I have Crohns Disease, stricture and inflammation of the terminal Ileum. I am really sick right now. I need to know if anyone has used this drug. I'm not taking it if it makes my symptoms worse. I can't even eat food right now. Thank You.
  4. Lynda Lynda

    Calprotectin Level Accurate ?

    I was just in the Hospital for Crohn's related symptoms. I now have access through a patient portal for that Hospital system. Apparently my Calprotectin was checked while at the Hospital. A year ago it was 522. This recent test result says only 176. The Hospital sends the sample to the same...
  5. Lynda Lynda

    Hospital

    The nurse practitioner at my gastroenterologist office took me off of my one 3mg Budesonide on March 26th and I have been sick ever since. I was just in the hospital for 3 days. Got prednisone in the hospital, no Budesonide. Was released from hospital with 40 mg of Prednisone each morning but...
  6. Lynda Lynda

    Two Steroids

    I am in the Hospital. The past 2 days / afternoons I have been taking a total of three 3mg Budesonide and 40 mg of Prednisone. I know it's a lot of medicine, but I need to stop this watery diarrhea. I need to go home. It's wierd to say this, but I am more interested in my quality of life that...
  7. Lynda Lynda

    Lactose Free

    My GI Doctor at the Hospital has me on a lactose free regular diet. I'm doing research on lactose free foods. Is dairy free the same as lactose free ? I have not been diagnosed as lactose intolerant. Some labels say " likely" to be lactose free. Also, Is whey considered "dairy."
  8. Lynda Lynda

    Antibiotics

    I'm really confused about antibiotics and Crohn's Disease. I am going to my NP at my PCP office on Thursday to check me for a possible UTI. If I am prescribed an antibiotic will it be bad for my Crohn's Disease ? My current treatment plan is Stelara, MTX, Folic acid and Budesonide.
  9. Lynda Lynda

    Ensure

    I need to know the pros and cons of drinking Ensure? Do you recommend drinking it or not drinking it ? Your experiences with Ensure ? Thanks.
  10. Lynda Lynda

    GERD / Acid Reflux / Bile Acid Reflux

    How are GERD and Acid Reflux and Bile Acid Reflux different ?
  11. Lynda Lynda

    Crohn's and High Triglycerides

    Does anyone here with Crohn's have High Trigycerides ? What treatment or advice were you given to lower your triglycerides ? I wanted a lipid panel test because I never recalled having one and I am 62 years old. I am in constant communication with my FMP at my Gastroenterologist office, so...
  12. Lynda Lynda

    Stress and Crohn's

    I've been on Stelara, Budesonide, Methotrexate and Folic acid for over a year. I have been doing good. I was renting a room in someone's house for almost 2 years and it went well. I lived happily and indepently. Unfortunately my landlord was diagnosed with Alzheimers and I had to move out. It...
  13. Lynda Lynda

    Severe Obesity and Losing Weight at Age 62

    I am 62 years old and weigh 200 pounds. During the past 42 years I have weighed between 129 pounds and 232 pounds. Right now it is difficult for me to do much of anything as far as activity. I am having heart and lung tests and will see my Cardiologist and Pulmonolgist later this month to...
  14. Lynda Lynda

    MRE Results

    I had an MRE a week ago. Of course my G.I. office has not called me yet. So I called the imaging place and they sent me the report. Can anyone help me with understanding these results. Four years ago I was diagnosed with Crohn's Disease [ stricture and inflammation of the terminal Ileum. ] I...
  15. Lynda Lynda

    I'm going to the ER

    Since my PCP is not available to see me until 3 weeks from now, I am now going to the ER to have the ER doctors determine if I have an anal fistula or a rectal abscess. I had an anal fistula in 1992 and two rectal abscesses ( 2002 & 2009. ) I had an anal fistulectomy ( or otomy ) in 1992. And...
  16. Lynda Lynda

    MR Enterography

    I was recently told by my GI, on the Patient Portal, that I will need have an MR Enterography. I have had CT scans with the contrast material and the IV dye. I don't ever recall having a MR Enterography. Can anyone share their experiences with this procedure. I have been on the Internet reading...
  17. Lynda Lynda

    Hydration

    What do you drink to stay hydrated ? [ for example : if a person has a lot of diarrhea due to their IBD, they would have to make sure they don't get dehydrated. ] I know that water is the logical answer, but what about Gatorade or drinks like that ? Lynda
  18. Lynda Lynda

    Testing : How often ?

    How often does your Gastroenterologist order : 1) a blood draw 2) a poop sample 3 ) a colonoscopy or endoscopy I haven't had a colonoscopy for almost 4 years. I haven't had an endoscopy for almost 2 years. I haven't had my poop tested for about 1 year. I haven't had a blood draw for 1...
  19. Lynda Lynda

    Adrenal Insufficiency

    How would a doctor check me for adrenal insufficiency ? I have a GI doctor, but I also have and Endocrinologist plus a Primary Care Physician. My GI hasn't done a blood test or stool test for a while.
  20. Lynda Lynda

    Food Additive

    https://news.gsu.edu/2021/11/30/ubiquitous-food-additive-alters-human-microbiota-and-intestinal-environment/
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