• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. thike1966

    Hotel Crohn's Forever, The Return Of The Fistula

    Please keep an open mind to these thoughts. I do, by no means, intend to offend. So if you are willing to not have any hateful or mean responses, read on. I am not here to fight with anyone but myself. I thought I was on my way to getting my ileostomy reversed, when a sudden anal roid popped...
  2. thike1966

    Christmas Eve, my car was lost, later found

    On Christmas Eve, I was so excited, I got to a Denver Bronco Game. My good cousin gave me two free tickets. I had a friend who bailed at the last minute. Luckily, I met a nice young lady near the gate and told her, "I have an extra seat I will trade you if you buy my a Sprite soda. We had a...
  3. thike1966

    The Man Who Laughs, a Wonderful Film

    I watched a fantastic movie tonight about a boy who gets cursed with a permanent smile. It goes through his life as a man, who on the surface is just a circus attraction. The silent film say more about humanity than any movie I have ever seen. It was at the time considered a monster movie, but...
  4. thike1966

    Better than Last Year

    Hello to all the Wonderful People who are better than any physical condition that they deal with. Skyrizzi is the best drug I've been on. no flare for nearly a year for the first time since diagnosed 6 years 372 days in the hospital since, is enough. And I went through losing my father and also...
  5. thike1966

    Trying to ignore on oncoming flare

    I’m in an ICU with my father, yesterday, he had most of a tumor removed from his spine with two areas of his spine. L6 and L7 now have acflexible cage filled with fluid, six screws and two rods. His spine was straitened and he is a 1 inch taller now. There was s cancer in his liver bile ducts...
  6. thike1966

    All Summer Long

    I spent most of June and July going four times to the hospital for one flare that just wouldn't go away. Then on August 15, I had surgery to repair a hernia, that was causing 4 hour blockages underneath my stoma. What I thought was to be an hour long procedure took four hours and part of my...
  7. thike1966

    Refused Care

    Every time that I go through extreme stress, When someone I love dies from natural causes, I flare from stress. My mother, than my brother, then my sister and a week ago Monday one of my dear friends was murdrered which was compounded by other stresses too, have a major flare in my esophagus...
  8. thike1966

    Doctors screwed me over

    6 Rounds of C-Diff, begging for an FTM, fecal transplant, 85% effective. One doctor was ready to refer me to get one. Then he left. His replacement telling me, "Not right now" or, "Your are not healthy enough," or "There is a rouge bacteria loose." All of it bunk and just putting me off, since...
  9. thike1966

    Am I Crazy?

    It’s been a rough week few weeks. On June 7th I was sitting with my friend watching something great on TV and my hands started itch, shortly after I finished a Red Popsicle. It was the compromise for sweet cravings exacerbated greatly by steroids, both Prednisone and Budesonide that I use to...
  10. thike1966

    New Supplement Works

    Hello, I recently started using Aloe Select and Xtra from a company called Univera. I'm feeling better, my stools are now fully solid for the first time in a very long time. My afternoon crashes where I was getting weak and dizzy and would sleep for two hours are nearly gone. I don't need to...
  11. thike1966

    C-Diff hospitalized

    I got antibiotics after getting two teeth pulled and it woke UP the C--Diff cells we all have to aggresiv propagate and take over inflaming my intestines. Went to ER on Sunjday with sever diarrhea that grew to green and got darker and darker until black. After the test came back, everybody...
  12. thike1966

    Crashing hard again

    Just when I thought I was on the road to remission, I've crashed for the 5th time. Since all was well I tappered off Prednisone, 60 mg, 40 mg, 20 mg, 10 mg and my last dose last Sunday. The last three days I've gotten progressively worse. Now I'm running fevers and loosey goosey, as mom used to...
  13. thike1966

    Withdrawal

    I was on 60 mg, then 40, then 20. I went to 0 and I was miserable. The doctor in my support group said that was too drastic of a drop-off. I called my GI office and they said to cut the 20 mg pills in half, which stabilized me. Yesterday I went cold turkey again and it's still a shock to my...
  14. thike1966

    Humira Working

    Good News, It's working, in my 5th week, Humira and Imuran have solidified and somewhat regulated my caboose' s output. I'm still feeling exhausted due to 3 nightly bathroom visits, down from 4 and daytime down to 3 or 4 down from 5 to 8. I am cautiously optimistic, since the last three times...
  15. thike1966

    Savings Card, as low as $5

    Abbvie sent me a booklet with 27 thick pages with info on how to use their drug Humira and why. It also included a savings card to pay as little as $5 with a phone number for activation and connecting with a Nurse Ambassador to answer any concerns about Humira and how to get the most savings...
  16. thike1966

    Feeling Sorry For Myself

    First of all, Crohn's is such a cruel and individual disease that we all grieve the loss of our previous selves in our own way. Today, I realized that my way is not as simple as I thought. I attended a Vigil (Memorial Mass) for my my Uncle Bob. The common thread from everyone was that with a...
  17. thike1966

    Almost Lost My Mind

    Today, the straw on the camel's back broke and I almost lost all control of myself at the grocery store. My vision has been blurring and I went to an ophthalmologist today at the advice of my GI. The blurred vision is caused by the Prednisone and my cornea is bending due to swelling. The good...
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