• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. JessicaGrace24

    Covid w/GI symptoms? Infection? Food Poisoning? Flare?

    Hi All! Just jumping on here for some advice. Right now I have had ongoing symptoms of headache that comes and goes, stuffy nose that comes, fatigue, aching muscles and digestive upset. This has been ongoing for at least two weeks. I am wondering whether I should get a COVID test since my...
  2. JessicaGrace24

    Anticipating my first resection surgery...

    Hi All, As you know, I've been having trouble off and on with bowel obstructions due to stricturing. At first they thought I only had one fibrotic stricture and that the other two problem areas were mainly inflammation. However, after my recent MRI it looks like I have two significant...
  3. JessicaGrace24

    Diffuse Jejunoileitis- Anyone have experience with this?

    Hi All. So the type of Crohn's is diffuse jejunoileitis and it has been very hard for my doctors to get it under control which (from everything I've read in medical journals is very common as this is a very uncommon and complicated type of Crohn's). It usually results in surgery at some point...
  4. JessicaGrace24

    Sibling Possibly Diagnosed

    Hi All, My brother has been struggling with symptoms off and on for the last couple of years. Endoscopy and Colonoscopy as well as CRP and fecal cal have all been normal however some mild inflammation in the small intenstine (I'm assuming the jejunum or ileum like mine) showed up twice on MRI...
  5. JessicaGrace24

    SIBO and Motility Issues

    Hi All, I've been extremely frustrated as you may have gathered from my previous posts. My current GI suspects that I have SIBO (most likely methane dominant) due to my motility issues from areas of narrowing in both the jejunum and ileum. Rather than dealing with the structural issues with...
  6. JessicaGrace24

    Stricture Advice- Surgery or not?

    Hi All. I have some upcoming appointments with both my GI and Surgeon next week and was hoping for a little advice. At the beginning of the month I did a fecal cal test that according to what my GI told the MOA was essentially normal (I'll find out the number at my appointment) which means...
  7. JessicaGrace24

    Diet Help and Advice

    So my GI has now put me on a low fodmap (so canned peaches and applesauce are out), low carb (due to bloating and gas), low fibre diet and I am like, what am I supposed to eat?????? Any advice would be helpful. I'm thinking a little bit of orange juice, eggs, banana chocolate peanut butter...
  8. JessicaGrace24

    Turner's Syndrome and impact of HRT on Crohn's

    Anybody else here have Turner's Syndrome and diagnosed with IBD after starting HRT? I'm almost positive that my HRT is having a negative impact on my Crohn's and would like some advice on what other options for HRT others might have found that were less harmful than straight up birth control...
  9. JessicaGrace24

    Stricture and post flare up help!!!!

    Hi All, As I shared yesterday, I have jejunoileitis. I have a 3-3.5 cm permanent stricture in my TI which has caused some problems with constipation and narrowing from acute and possible chronic changes in my proximal ileum and jejunum as well which led to an SBO and hospitilization in the end...
  10. JessicaGrace24

    Small bowel patchy Crohn's

    Hi All, My name is Jessica and I was diagnosed back in January 2017 after suffering since end of high school (about 7 years). My Crohn's has presented in the jejunum and the beginning and end of the ileum and when I was first diagnosed I had a fistula and abscesses. Initial treatment was...
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