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  1. K

    Major skin issues

    Hey everyone, my son has developed what seems to be a chronic rash/break out/dryness in his face and neck. He woke up in major pain today. Dermatologist can’t seem to figure it out and said it’s dermatitis. But it keeps coming back. Anyone else deal with this? Could it be a side effect of Inflectra?
  2. K

    Remicade to Inflectra

    Our Insurance will no longer cover Remicade...if you’ve made the switch, any issues? I suppose we don’t have a choice so just hoping and praying it will work well!
  3. K

    Pain in tailbone area

    Hey everyone, My son has been having terrible pain in his tailbone area for the three weeks that doesn’t seem to be going away. He’s had no falls. It doesn’t hurt when touched...just there when he moves in certain ways. His GI Dr. checked him out and said that it doesn’t look like it’s Crohn’s...
  4. K

    504 plan?

    Hey everyone, Does anyone here have experience setting up a 504 plan for high school? We just set up a health plan with his school’s nurse, and would like to move to the next step? Anyone have a template or advice as to what I should ask for? For eg, his grades slipped after his hospital stay...
  5. K

    Low remicade levels

    Hey everyone, Just got the test results back for blood test on 4th infusion, and sadly looks like low remicade levels detected for my son. Dr. said he would up the dosage at his next appointment. Hoping for it to work. Any experience with dosage adjustments?
  6. K

    Height in teens

    Hey everyone, I was wondering if any of your kids have had an increase in height and when did you see the results. My son is 16 and 5’6”...hoping to see some growth over the next year or so. He went from 89lbs in November to 111lbs today. That’s such an improvement.
  7. K

    Bloating and Stool Color

    Hey everyone. It seems like when one symptom improves, something else creeps up:( My son is quite fatigued, bloated and his stool has been an odd greyish color. No pain, just stomach is hard and noticeably distended. We gave him an iron pill day before yesterday, and yogurt with no added sugar...
  8. K

    Inflammation when BM

    Hey everyone, My son has been complaining about inflammation and “burning” during bm. He said that a sac is poking out. It doesn’t hurt, but is there. Does this sound like hemorrhoids?
  9. K

    Remicade rash?

    My son has developed a rash on his chest. He’s on prednisone also so I’m not sure which meds are causing this...any experience with this? He has his 2nd infusion tomorrow. Thanks!
  10. K

    Blood in stool

    Hey guys, My son has blood in his stool. This has never happened before. He was constipated most likely bc of the prednisone and EEN. Is this common?
  11. K

    16 yr old boy/just diagnosed

    Hey everyone, My son was recently diagnosed with moderate to severe Crohn’s. What a stressful few months:( It started with stomach aches, then weight loss, then throwing up. He constantly felt the need to go to the bathroom. Luckily no diarrhea. After CT, endoscopy/colonoscopy, a week in the...
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