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  1. M

    Bleeding

    How to tell if bleeding is from IBD or something else? I had bleeding which stopped after being on prednisone for a week. However it came back a day after I decreased my prednisone dose.
  2. M

    Capsule

    I had the capsule study done today as part lf the IBD workup. I have been on pred for 2 weeks prior to this. The capsule passed before I was supposed to return to have the belt and such removed
  3. M

    Question regarding symptoms

    Saw GI. Plan is to do the capsule. If it shows something then start meds. If not then go back off prednisone and if symptoms happens again then maybe go on an oral maintenance med to see if it or events symptoms from reoccurring
  4. M

    Beyond frustrated

    I might switch PCPs to the provider who saw me this last hospitalization as he is seeing new patients. He at least seemed to understand that frustration and offered to contact other providers and even run my case by the rest of his colleagues. One thing that was mentioned was Behcet's disease...
  5. M

    Beyond frustrated

    I am working on that. My PCP instead suggests I stop eating meat. His exact words were you are going to keep doctoring and you are going to end up on humira or remicade and That he wouldn’t even put those meds in his own body. It is hard to get testing done while off prednisone when everyone...
  6. M

    Beyond frustrated

    I am working with GI. This last round of bleeding he told me to see how it progresses. I ended up being admitted to the hospital. My GI said he is suspicious that it is IBD but has no concrete evidence.
  7. M

    Beyond frustrated

    I had a CT that showed 60% inflammation of the colon. I was put in prednisone. I stopped prednisone symptoms returned. Was out back on prednisone for 8 weeks. Had a scope done while being on prednisone for that amount if time which was normal. I was told that could have been due to the...
  8. M

    Beyond frustrated

    How long has it taken to get a IBD diagnosis? I have been out on prednisone 3 times since the end of May without a diagnosis. Just getting told it is likely IBD but that there is no concrete evidence. I am not a fan of prednisone especially during a pandemic and especially for a condition no...
  9. M

    Rectal bleeding

    My hgb was a little over 10 on discharge
  10. M

    Rectal bleeding

    The provider in the hospital was going to talk to other GIs but I don’t think he did. I will have to talk to my PCP although my GI gave me a referral to another GI many years ago. The hospital provider prescribed me 40 mg for 10 days so I will have to talk to my GI on how to taper off it.
  11. M

    Rectal bleeding

    I do not. I will have to talk to my pcp or my gi about sending a referral
  12. M

    Rectal bleeding

    I am going home on 40 mg prednisone
  13. M

    Rectal bleeding

    I had messaged my primary care physician regarding my flare of symptoms and his suggestion was to stop eating all meats and increase fiber.
  14. M

    Rectal bleeding

    Gave me some IV steroids and now oral prednisone. The doctor is going to check with other providers to get other insight on what else he can do/try. He even mentioned he would call other GIs.
  15. M

    Rectal bleeding

    I am being admitted right now for IV steroids and antibiotics. My GI is gone until next week so I went to the ER.
  16. M

    Rectal bleeding

    I am having many episodes of rectal bleeding each day. I notified GI on Monday and in Wednesday he ordered labs shich came back normal. His advice was to see how things play out. I know that it canot be normal to have rectal bleeding. I am at my wits ends and am not sure what to do at this point.
  17. M

    Flare question

    He did nothing during my flare except wait for weeks to order the scopes. My labs during the initial colitis were normal. I
  18. M

    Question regarding symptoms

    No. He said he is concerned it is IBD but has no concrete evidence except my symptoms go away with prednisone and the CT which showed inflammation of more than 60% of my large intestine. I was scoped while being on prednisone for 7 weeks. My GI told me to wait to see if I flare again and...
  19. M

    Flare question

    I have been off prednisone for a week and a half. I haven’t had a “flare” yet. Does the support my theory that it is in IBD? My GI has taken a watch and see approach to determine the next steps.
  20. M

    Question regarding symptoms

    I have been off prednisone for a week and a half. I haven’t had a “flare” yet. Does the support my theory that it is in IBD? My GI has taken a watch and see approach to determine the next steps.
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