• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. M

    Bleeding

    How to tell if bleeding is from IBD or something else? I had bleeding which stopped after being on prednisone for a week. However it came back a day after I decreased my prednisone dose.
  2. M

    Capsule

    I had the capsule study done today as part lf the IBD workup. I have been on pred for 2 weeks prior to this. The capsule passed before I was supposed to return to have the belt and such removed
  3. M

    Beyond frustrated

    How long has it taken to get a IBD diagnosis? I have been out on prednisone 3 times since the end of May without a diagnosis. Just getting told it is likely IBD but that there is no concrete evidence. I am not a fan of prednisone especially during a pandemic and especially for a condition no...
  4. M

    Rectal bleeding

    I am having many episodes of rectal bleeding each day. I notified GI on Monday and in Wednesday he ordered labs shich came back normal. His advice was to see how things play out. I know that it canot be normal to have rectal bleeding. I am at my wits ends and am not sure what to do at this point.
  5. M

    Flare question

    I have been off prednisone for a week and a half. I haven’t had a “flare” yet. Does the support my theory that it is in IBD? My GI has taken a watch and see approach to determine the next steps.
  6. M

    Question regarding symptoms

    I have been off prednisone for a week and a half. I haven’t had a “flare” yet. Does the support my theory that it is in IBD? My GI has taken a watch and see approach to determine the next steps.
  7. M

    Flare or something else

    How do you tell if it is a flare or something else such as a stomach bug?
  8. M

    Colonoscopy while on prednisone

    I had a colonoscopy after being on prednisone for 6 weeks. Can this affect the biopsy results?
  9. M

    Questions to ask when newly diagnosed

    I have my scopes next week for what is presumed to be IBD. I am very much in denial that this could be IBD, but if it does happen to be what questions are essential to ask? What questions do you wish you had asked when newly diagnosed but didn't?
  10. M

    Journey

    Back in 2013 I had the Promethus IBD blood test that came back as Crohn's. My GI had done every test and never found any evidence. A month ago I was having large amounts of rectal bleeding and had a CT which showed 60 percent of my colon inflamed more so on the right (right colon and transverse)...
  11. M

    Prednisone necessary?

    I am almost on week 2 of prednisone on an 8 week taper. I have not been difinitively diagnosed yet. I was on prednisone before and my symptoms came back within days of stopping the steroid. I am not a fan of the prednisone and would like to stop it. My GI does not recommend that yet. I don't...
  12. M

    Can CTs miss inflammation?

    Can CTs miss inflammation? I had a CT a month ago which showed significant inflammation. I have a CT enterography this past week which was normal. My GI said that CTs can miss inflammation. Anyone have this happen?
  13. M

    My Journey

    Back in 2013 I had the Promethus IBD blood test that came back as Crohn's. My GI had done every test and never found any evidence. A month ago I was having large amounts of rectal bleeding and had a CT which showed 60 percent of my colon inflamed more so on the right (right colon and transverse)...
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