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  1. S

    Newly diagnose late teen son

    In the Hospital mainly for nutrition and hydration as nothing was going in and staying down. Still pretty inflamed and getting 2nd Remicade tomorrow morning. Dr and nurses have been great. Finally got in and seeing Mt Sinai next week for another opinion of care and maintenance. Fingers crossed...
  2. S

    Newly diagnose late teen son

    Moved him back up to 60MG. Very very sleepy day with not much activity at all.
  3. S

    Newly diagnose late teen son

    Ok thanks. We called the GI today and filled them in and they asked us to report back tomorrow morning. They said possibility of doing next Remicade much sooner than 2 weeks after checking levels in the blood etc etc
  4. S

    Newly diagnose late teen son

    Ok thank you
  5. S

    Newly diagnose late teen son

    Blood was much reduced/ almost gone and yes we were on 60mg Prednisone in hospital but now taking 40mg for 7 days.
  6. S

    Newly diagnose late teen son

    Ok fingers crossed. Thank you
  7. S

    Newly diagnose late teen son

    Does anyone have any guidance as to when bloody diarrhea ends and harder "clean" stool begins to form after 1st Remicade infusion and on Steroids?
  8. S

    Newly diagnose late teen son

    Thanks so much
  9. S

    Newly diagnose late teen son

    Just a quick update to share information with this group who have been so helpful and really helped us through this. My son went to ER on Monday 7/19 morning because we were afraid he was getting dehydrated (diarrhea and vomiting since 7/13 and getting worse daily) and he was admitted...
  10. S

    Newly diagnose late teen son

    That’s great info and we have calls into My Sinai and CHOP and waiting to hear back from both.
  11. S

    Newly diagnose late teen son

    Thanks. Wry much for the response and your input on CHOP.
  12. S

    Newly diagnose late teen son

    He is taking 40 mg of Prednisone daily but is a bug kid Thanks so much for your insight. Take care
  13. S

    Newly diagnose late teen son

    Thanks so much. I have called Mt Sinai- Dr Dubinsky seems to be one of the best but having a very hard time getting an appointment. That would be my first choice for sure.
  14. S

    Newly diagnose late teen son

    How do you choose between polymeric or enteral for ulad
  15. S

    Newly diagnose late teen son

    Thank you so much. Not vomiting Prednisone up immediately just overall not well and seems to vomit when he poops. Also has had bad stomach pains so taking 625mg Tylenol every 4-6 hours Dr has not prescribed any maintenance medicine yet as we are waiting to see her this week and she is hoping...
  16. S

    Newly diagnose late teen son

    17 year old son diagnosed in late April. On 5 ASA for two months( pills plus enima) and was doing really great. Flare up started last Tuesday so we have had a very tough week. He has lost a lot of weight and is suffering badly. Not sure what to feed him and reading a lot but it’s all so...
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