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  1. M

    Evinature's cura

    I was curious if anyone has tried Cura from Evinature. If so, did it seem to help?
  2. M

    Skyrizi? Rinvoq?

    For someone with colonic Crohn's who has failed Stelara, Entyvio, what thoughts do people have about the safety and efficacy of Skyrizi or Rinvoq? Thanks.
  3. M

    Fleet enema suggestions for prep?

    Is there anyone out there who has used this type of prep for a flex sig? And if so, do you have any warnings or tips about doing it? Is it difficult? How long does it usually take? Thank you!
  4. M

    foam - how difficult is it to use?

    Would anyone out there be willing to share how difficult is it to use the Budesonide foam for a young adult? I'm asking about logistics at this point. Is it uncomfortable? Is it hard to figure out how to do? I understand that many people believe that it doesn't go deep enough to touch Crohn's...
  5. M

    Canada for a US citizen

    Hi, My son is a US citizen very interested in applying to a couple of grad schools in Canada. I'm concerned about his being able to get his infusions there every 4 weeks. Does anyone have any experience with this? Thanks so much.
  6. M

    does a flare mean the biologic isn't working?

    Do your doctors switch you off of a medication as soon as you've had a flare? My son flared for three days and then his symptoms went away. He has been on Entyvio for around 10 months, and up until now we thought it might be working because his numbers were good. However, his calprotectin level...
  7. M

    flare without diarrhea?

    Do some people experience flares by getting a fever but no diarrhea? For someone with Crohn's restricted to the colon, is it possible that a fever is the main symptom of a flare? Softer poop, but certainly not diarrhea or blood. No congestion or sore throat, and it's not flu or covid. CRP is...
  8. M

    when biologics don't work

    I have twin sons with colonic Crohn's. When they were first diagnosed, we were given the choice of Stelara, Entyvio, or Remicade/Humira. One of my sons already moved on from Stelara to Entyvio, and after 10 weeks, we aren't seeing signs that the Entyvio is really working. I've heard very mixed...
  9. M

    Antibiotics for Crohn's?

    I have twins who were both diagnosed with Crohn's about a year ago as young adults. In both cases, it is limited to their colons. They have no abcesses. My one son got quite sick a year ago - he was rapidly losing weight and just lay around the house (very unusual for him). While we were waiting...
  10. M

    doesn't want to self-inject

    Hi, You folks have been helpful to me in the past, so I thought I would see if anyone out there has ideas for our most recent dilemma. My son, age 21, doesn't want to give himself injections. I know that he'll probably need to get over this at some point, but he was only diagnosed a year ago...
  11. M

    Will anything work?

    One of my sons (young adult) was diagnosed with Crohn's 10 months ago, so we're still early in the process of trying to find a treatment. At this point, his Crohn's is restricted to his colon - almost exclusively the lower third. However, his inflammation is severe. So far, we've tried Stelara...
  12. M

    Travel- how do you get your infusions?

    Hi, I'm the mom of college-aged twins. Both of them were diagnosed with Crohn's disease less than a year ago. As if it isn't difficult enough to deal with this new diagnosis, we've been finding the logistics of obtaining infusions for their biologics maddening. My sons go to college in a...
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