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  1. shazamataz

    Positive thoughts please

    Hi all, I have been mostly absent from the forum recently for a number of reasons. The primary one right now is because my father is very, very sick. he has finally been hospitalised for treatment of his pneumonia, which has been dragging on since Christmas. he is looking pretty good at the...
  2. shazamataz

    Messed up!!!!

    Okay, so more weirdness going on with me!!! I've never been a great sleeper and this got really bad on high doses of Pred :( Now I have practically finished the Pred and for the past month or so my sleep is worse than ever before!!! It is really quite strange and disturbing. Basically I feel...
  3. shazamataz

    Adrenal Fatigue

    So, one of our new members has brought the issue of adrenal fatigue to my attention and it really makes sense to me. I feel so exhausted and unwell all the time (I'd say I'm down to functioning at about 30% of a normal person if I'm lucky), but I actually am not having any Crohn's symptoms and...
  4. shazamataz

    Eye wonder what this is!

    Hey all, thought I'd start a thread about eye-related stuff as I am noticing some issues, particularly with the super sunny weather at the moment. My eyes seem to go quite blurry a lot. It kind of feels like there's something in them, but there isn't. It doesn't feel like a focusing problem...
  5. shazamataz

    Thank you from the heart of my bottom

    Hi everyone! :) I just decided that I really felt I needed/wanted to say a big THANK YOU to all of you wonderful people for basically being so wonderful! I think this site has saved my sanity on numerous occasions since being diagnosed in July. 2009 was a VERY rough year for me, and you lot...
  6. shazamataz

    Red, sore gums

    Okay, so I have a question! Yup, another one :) My gums are generally pretty sensitive and have been for years. Today I cleaned my teeth and they actually hurt. I had a look and they are very red, especially the upper ones! Is this a Crohn's thing? If so, what can I do about it? Some sort of...
  7. shazamataz

    Things happening I do not like

    And, another wee thread for you all! I've started having some symptoms again after several months of pretty much everything in the bowel department being fine. I expect this may be stricture-related as it happens after eationg, but anywhere between 1 and 4 hours. I call them 'episodes' and...
  8. shazamataz

    Weird leg stuff

    So, I've got a new mystery to ask everyone about! It's happened about 5 times in the last 2-3 weeks and puzzling and really annoying me. I get this excruciating, stabbing pain on the outside of my leg near the ankle. It happens at night mostly and lasts just a few seconds, then subsides and...
  9. shazamataz

    Bad night

    Hi all, I'm needing a little vent! Had a pretty bad night last night and it scared me a little bit. For years I have had these 'episodes' once in a while where in the evening I start getting cramps and a lot of gurgling down the left side and pain and hot flushes and spend an hour or so having...
  10. shazamataz

    CRP and inflammation

    hey guys, me starting another thread!! Now, I have been tapering pred for a while now and am now on 7.5 mg, should be going down a dose tomorrow. Anyway, a month ago I got my first CRP test back that was over 4 (which is what it is supposed to be). I got a 10, so the doc suggested wekly tests...
  11. shazamataz

    The humiliation of poverty

    I need a vent! I hope no-one minds! I've just been at our benefit office to review my entitlements of assistance from the government due to only being able to work part-time and havign extra costs associated with having Crohn's (meds and supplements etc) and basically they expect you to not...
  12. shazamataz

    Mucus anyone?

    Oh what a lovely word mucus is!? I've been here a while now and not been able to relate to any of the stuff about mucus in poo until very recently. Now, mine may not be that at all but it always pays to ask. I did google it before starting this thread but can't find any pictures. Perhaps there...
  13. shazamataz

    Struggling

    Hi all, Me again with probably some similar things to say/ask that I have before, but his is what this place is for right? It's been 4 months since I was in hospital and got the dreaded diagnosis. I've been tapering Prednisone since then and am now down to 10 mg. Ever since reaching 20mg I...
  14. shazamataz

    Pred tapering yuckiness

    Hi all, Yet another 'pred thread'. I was wondering about everyone's experiences with tapering pred as I feel I am struggling with it a lot and feel really ill! As far as the Crohns goes, everything feels pretty much okay but the rest of my body feels terrible. I went from 12.5 to 10 on Sunday...
  15. shazamataz

    It always pays to ask - B12 shots

    Well, I had an unexpected experience today! Went back to my GP as SOOOOO tired and having some sleep/anxiety issues as well. We decided that B12 may help, even though my last test for it in July came up fine. I gather from some of you that it helps regardless? Anyway, I have to have injection...
  16. shazamataz

    Female growing sideburns and a beard on Prednisone

    Hi all, I'm after some advice from any girlies out there. Am on Pred and thankfully not having many of the side effects I was concerned about like weight gain or moonface. However, my face is getting really hairy, like sideburns and a beard! Ack! It's silly because I feel embarrassed even...
  17. shazamataz

    Fatigue and crampy diarrhea

    Hi all, Just after some words of advice/encouragement here. So, three months into the Prednisone and down to 15mg a day. have dragged it out a bit due to the fact that I have been wanting to consider treatment options and didn't want to go on anythign radical until November as i have some...
  18. shazamataz

    For a laugh

    hey guys I just thought I'd share something amusing with you all. I have just booked tickets to take my young nephews to a play called: ........................ ....wait for it.............. .....it's brilliant really................. THE DAY MY BUM WENT PSYCHO! :ylol2: Its a kids...
  19. shazamataz

    Incessant Gurgling and Weird BMs

    Hi all, I have a couple of weird symptoms to share and see if anyone else has them and what they could mean! For the past couple of weeks I have been experiencing this annoying a persistant gurgling that tends to start late evening and go all through the night. There is no pain with it, just...
  20. shazamataz

    Fatigue and insomnia

    Hey guys, I know this topic has been done before but I thought there was no harm in revisiting, especially as there seem to be so many new members joining lately. The FATIGUE and INSOMNIA are doing my head in! And I am sure it is getting worse. When i was on the higher dose of Pred I didn't...
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