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  1. autumn_rose

    Anyone else suffer from pelvic floor dysfunction?

    Hey, guys. After 6 years, I was finally diagnosed with pelvic floor dysfunction- specifically, my levator muscle is confused and no longer functions correctly- it tightens randomly, causing discomfort, then goes into spasm, which is very painful. The doctors think it happened because of holding...
  2. autumn_rose

    Lactose intolerance and whey protein powder?

    I'll be doing a video on youtube about this in the near future, and I would like to do a little research with you guys first. As a side effect of IBD, some of us develop lactose intolerance. I'm one of those people. Now, it's natural to assume that because whey is a by-product of milk, it...
  3. autumn_rose

    How IBD gave my life direction

    Hey, everyone. Just wanted to blubber a bit, and share a little positivity. I have been through a lot with this disease, but through it, I have found my passion- what I feel I was meant to do in life. I'm spiritual, I believe in the universe, so to speak. So maybe the universe wanted me to...
  4. autumn_rose

    Reintroduction and Appreciation!

    Hello, everyone. I haven't been active on the boards for a while, but as I just did a YouTube video about ostomies, and wanted to link some good resources/support groups, I thought of this forum quite fondly, and added a link in the info bar of my video. After another period of time with an...
  5. autumn_rose

    Smoothie ideas?

    Hey, guys. Hope everyone is doing well. I did a blog post this morning (http://crohnykitchen.blogspot.com) about my favorite smoothies. I have a bunch of kale leftover, though, and was wondering if anyone had any decent tasting smoothie recipes using kale? Preferably with few ingredients; I like...
  6. autumn_rose

    Worried about weight gain from Imuran

    Hey, guys. So, I've been off all immuno drugs for about 2 years while we fought infections, had surgeries, etc. I have a temp loop ostomy at the moment, and I'm about to restart my Imuran. Aka Azathioprine. In the past when I was on this med, I was very underweight. Now I'm actually max...
  7. autumn_rose

    Starting Humira: I have a question...

    Hi, everyone. So, I recently changed GI doctors because I've been having strange leg and buttock pain for over a year now, which I thought was related to my Crohn's, but my previous doctor told me it wasn't and wouldn't do any tests or change my treatment. My new doctor did a lot of poking...
  8. autumn_rose

    Don't know how long I can take this...

    I've been a member here for around 2 years. I joined when I was really sick. After quite a while, I started getting better, and soon achieved remission with the drug Imuran. It was a great time. However, on occasion, I would get some strange leg cramps. The pain starts in my buttocks, usually...
  9. autumn_rose

    "colonoscopy diet"

    I'm having my very first conoloscopy on October 6th. I know I can only have clear fluids, so that means the obvious (jello, gummi candy, nothing with red dye or purple dye), but I thought you guys might have some other things that qualify as clear fluids that I haven't thought of. Any input is...
  10. autumn_rose

    I may not have crohn's? Confused! Help!

    Accidentally posted this in the polls first. Sorry! Anyway, now that I have it in the right place, here's my story... So, two years ago I was diagnosed with crohn's disease. The method the doctors used for diagnosing was an upper and lower GI (x-rays), an ultra-sound, and blood work, which...
  11. autumn_rose

    National Guard

    This is a strange question, and I wasn't really sure which forum to ask in, so I hope this is an acceptable location. Anyway, prior to coming down with Crohn's, I had been interested in joining the National Guard. Now I'm on Imuran daily, but I'm in remission and doing well. Does anyone know if...
  12. autumn_rose

    Piercings?

    I've asked this kind of indirectly before, but now I'm going to be more direct with the question. :-) I am on 150mg of Imuran per day. I want to get my lip pierced. I know that I am at a higher risk of infection, but even after being on Imuran, I rarely get sick, even when I am exposed to...
  13. autumn_rose

    Ladies on birth control...

    So, I'm just wondering if anyone has any info on what birth control methods are best for us chicklets with Crohn's. I'm currently on 150mg of Imuran. I've heard some birth control (oral variety, I believe) say to check with your doc if you have IBD or other inflammatory conditions. So... any...
  14. autumn_rose

    ANOTHER question about coming off Prednisone

    So, I've been weaning off Prednisone. My last dose was last night. While I was weaning off (I can't remember what amount I had gotten down to), I began to develop a bit of a rash on the back of my neck. I also started getting itchy eyes, and styes on my eyes pretty frequently. I showed the rash...
  15. autumn_rose

    Stricture relief?

    Well, I'm guessing that I have some narrowing in my small bowel due to my Crohn's. I no longer get much in the way of sharp pains when I eat, but during or right before a BM, I get a... strange, straining, tight sensation... It feels like a tight muscle being stretched, in a way... that's the...
  16. autumn_rose

    Alcohol with medications

    So, I am currently taking 150mg of Immuran and I'm down to 5mg of Pred. I'm not a big drinker, and now I avoid it all together, because I was under the impression that Immuran is hard on the liver. So I figured that my liver doesn't need any more stress than what it already has. Am I correct in...
  17. autumn_rose

    Oh, and a question about B12 shots

    I recently started getting B12 shots. I get one every week for the first 4 weeks, and then once a month. Can anyone tell me how long it will be before I start feeling the effects (increased energy) of the B12? Thanks!
  18. autumn_rose

    Exercise and nutrition

    Hello, hello! So, now that I am up to my goal weight (actually a few pounds over, but that's ok), I really want to get in some exercise to get back into good shape, and tone up/repair my muscles. I don't want to be buff or anything, just toned and in decent shape. But I know that if you aren't...
  19. autumn_rose

    Special thanks

    Hi, everyone! It's been a while since I've been on the board, as my laptop was broken, but now I'm back, and I just wanted to take a moment to express gratitude towards everyone that has helped me out on here by answering my many questions. It's nice to have a group that knows what I'm going...
  20. autumn_rose

    Odd question about Imuran

    This may seem like an odd question, but it's better safe than sorry, right? I am on 150mg of Imuran, which as we know, is an immune system suppressant. I currently wear glasses, and have never even tried contacts in the past, but I'm interested in doing so now (wearing contacts, that is)...
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