• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Pirate

    Had a Dr. appointment today.

    Well today I went to see my GI. Things are going great other then I lost 11 lbs. No stomach pains and the best BMs I've had in years. The only concern was the joint pains I experiance after my Remi treatments which are normal. Though I had a stretch where the pain lasted longer then usual. She...
  2. Pirate

    My Rave

    I have to rave about my support team. Okay, its about my wife. I've had CD for 26 yrs. We have been married for 34 yrs and when I was diagnosed she was 23 and we had 3 young boys. She has for those 26 yrs been my rock, my leaning post, my nurse, my health advocate but most of all my best...
  3. Pirate

    If a cure was found?

    I was recently asked if a cure was found but it was a limited supply, what would I do to make sure I got it? Nothing!! I've lived with this disease for the last 26 yrs, I'm 54 yrs old and I can wait my turn. I told them that I would hope that all the young kids and young adults would get it...
  4. Pirate

    A poem about Crohns

    This is a poem I wrote just to put my Crohns in perspective. Crohns This monster inside of me Has caused me much pain It tears at my insides Trying to drive me insane. And at times it came close To ending my life Leaving three young children And my beautiful wife But we became strong After...
  5. Pirate

    Just me

    Hi everyone. Just thought I'd drop by and see how everyone is doing and to let you all know how I'm doing with my Crohns. I'm just starting my 3rd year of Remicade treatments and I've been in remission for about the last year and a half. I still get the usual cramps once in a while and the D...
  6. Pirate

    Sticky Crohn's Forum Candle Room

    Janis and I light a candle every evening for the Brave men and women of our combined militaty forces with Prayers that they will come home safe. May you all be Protected and your Families be Strong until you come home.
  7. Pirate

    Chicken pox

    Well, my 1 yr old grandson has chicken pox. I know this can be a problem for me because of the lowered immune system. Both Janis and I will have to be careful since she just had Shingles in the last 6 months and I have the lowered immune system. I guess I am now a part of an unofficial experiment.
  8. Pirate

    My support team

    I am lucky enough to have a super large support group of friends. My Patriot Guard Riders family is always concerned with how I am doing and when things are a little down for me they know how to cheer me up. This is one I received today. Me Mudder When me prayers were poorly said, Who tucked...
  9. Pirate

    Pen

    Pen, how's yer pooper prep going? Are you in the john with the Hershey squirts? Inquiring minds want to know!!!!! lol Good luck tomorrow, hon. Hope everything comes out good. Get it? Comes out good!!!! lmao.
  10. Pirate

    Porcelain God

    Oh Porcelain God, please let me rest. I have prayered to you this night and left many offerings for your Glory. I have made sacrifices this night in your name to help satisfy your hunger. Please allow me a few hours sleep, in Pooper's name I pray. Bad enough having CD but to come down with a...
  11. Pirate

    Here to help.

    Hello everyone. My name is Pirate and I am an old member that has been gone a while. There are times you just need to leave to clear your head and to spend time with family. And that is the biggest reason I am post in this section. First let me tell you that the Crohns forum is a great place...
  12. Pirate

    GI follow up

    Today I went in for my Remicade follow up with my GI. I've gained weight and she gave me a a thumbs up to drop the Bentyl. Still have to take the Pentasa, but when I go back in 6 months she may drop that also. SHE SAID I'M IN REMISSION!!!!!!!! I'M FLYING!!!!!!!!!!! Now let's get to work...
  13. Pirate

    Worst Fear

    I have had the thing that I fear the most placed in front of me today. My son, that just had the new baby boy, his third child, at the age of 28, told me that he is being checked out for Crohns. He had talked to Janis quite sometime ago about it and they had decided to not tell me. When I talked...
  14. Pirate

    Does it ever end

    Okay, this is what's up. I'm doing great with the Remicade. No problems other then really stiff joints with pain. I am dealing with that okay, but I had a physical the week before last and did my usual blood work. Monday I get a call from the GR office and my hemiglobin counts are low, 10.2, and...
  15. Pirate

    Good day

    Well I went to my Dr. appointment today and we talked and I told her about the shaky feelings, light headness and the problem with thrush that has been flaring up now and then. We decided to taper the Entocort since I have had my 3rd Remi treatment. 2 weeks and I'm done. Yahoooo. Go back in May...
  16. Pirate

    Crohns, CF and Relationships.

    As people have mentioned before about Crohns being a strain on relationships, it is also worth mentioning that though we all find great support here on the CF we need to learn to balance our time here and our time with our partners. It is possible to get so wrapped up being here talking to...
  17. Pirate

    Crohns Anonymous

    Hello, My name is Greg and I have Crohns Disease.
  18. Pirate

    My brother's grandson

    My brother's 2 1/2 yr pld grandson has had Hirshsprung disease since he was born and has had many procedures to try to get it under control. This week he was rushed to Ann Arbor due to intestinal infection and had part of his large intestine remove and a bag attached. Yesterday they had to go...
  19. Pirate

    Tylenol

    tylenol I don't know if this is the place to post this, but here goes. Has anyone checked out the Tylenol recall or I'm I behind a little bit. Janis had just bought a bottle of Tylenol the other day and we found out about this recall. When I went to thier web site and checked out the lot# it...
  20. Pirate

    "Black" Moods

    Its raining here today and I hate it. Its one of those days that I get into one of those "black" moods as I have come to call them. I feel depressed and tired and have the old feelings of why me. I've been up since 2:30 with anxiety attacks, my body feels like its going to explode and...
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