• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Jennifer

    Allergic Reaction to Entyvio During 1st Infusion

    This isn't meant to scare anyone away from trying this or any medication. I'm just sharing my experience so people can have an idea of what to expect in this type of situation. I believe less than five minutes had passed since they began the infusion. A nurse was trying to set up the followup...
  2. Jennifer

    Inability to Absorb B12 INCLUDING Injections

    As of right now this thread does not have much information. The purpose of this thread is to figure out what would cause someone to not absorb B12 injections. Both my GP and GI do not understand why my body doesn't seem to be absorbing B12 in injection form. I've been getting B12 injections...
  3. Jennifer

    The Immune Response and IBD - Video by the CCFA

    This is a great video that talks about why certain treatments seem to work for other people yet not everyone. If you've ever had a hard time understanding why some treatments for IBD work for others but not you even if you have the same symptoms and diagnosis then hopefully this video helps you...
  4. Jennifer

    LIVE NOW - The CCFA is doing a 24hr Gaming4Guts Fundraiser Dec 5-6 on Twitch

    Go to Twitch now and search for #gaming4guts I wanted to share this in case anyone is interested in participating or watching the gaming, I know I'll be watching. This is not a request for anyone to donate as you're all aware of the CCFA but I think this is a great way to raise awareness so...
  5. Jennifer

    A Child with Crohn's Before and After Surgery Video Documentary

    https://www.youtube.com/watch?v=jPbkYPj3wtI This video was sent to me through email by the boy's parents. He made this documentary to help other kids, teens and adults who are facing surgery (bowel resections). Feel free to comment and offer your support to him on his Youtube channel. :) On...
  6. Jennifer

    A Child with Crohn's Before and After Surgery Video Documentary

    https://www.youtube.com/watch?v=jPbkYPj3wtI This video was sent to me through email by the boy's parents. He made this documentary to help other kids, teens and adults who are facing surgery (bowel resections). Feel free to comment and offer your support to him on his Youtube channel. :) On...
  7. Jennifer

    Need Help with 5 year old who's Afraid to Potty - Blood with BM

    First off I want to say that this is for my niece and she has not been diagnosed with any form of IBD. Her Ped isn't concerned that it is and feels that she's just holding it. She has a bowel movement about every 4-5 days. When she does go it's hard and has some bright red blood (not a lot but...
  8. Jennifer

    To Post in this Section You Must be Approved by an Administrator

    If you're looking to interview, engage in any commercial activity, survey members, or post research recruiting information you must first be cleared by an administrator by emailing webmaster@crohnsforum.com or by sending myself or Lisa a PM. Thank you.
  9. Jennifer

    Transgender teen committed suicide - Suicide and transgender hotlines included

    http://www.11alive.com/story/news/nation-now/2014/12/30/transgender-teen-death-means-something/21059923/ This story is so sad yet happens pretty often, not just among the GLBT community. I wish everyone, especially parents, would be more tolerant if their child grows up different than what they...
  10. Jennifer

    Posting Links/Information in This Section

    When making a new thread in this section please add some quotes and even your own personal thoughts about the study/news/book etc in your post. Many times when you just post a link, most people won't read it/watch it/check it out and wont learn anything from it because they might not have the...
  11. Jennifer

    Two Patients with Disseminated Cancer are now in remission from a High Dose Measles Vaccine

    http://www.iflscience.com/health-and-medicine/cancer-knocked-out-measles-vaccine More studies and research are needed for treating other types of cancer but I thought this was pretty awesome. :)
  12. Jennifer

    Sufferers of Multiple Illnesses & IBD Support Group

    This support group is for members who seem to suffer from almost everything under that sun (or at least it feels that way sometimes). "If it's not one thing it's another," takes on a whole new meaning here. In this group we can discuss multiple topics including: - What do you have? - How do...
  13. Jennifer

    Military/Armed Forces with IBD Support Group

    This support group is for members who have been diagnosed with IBD (Crohn's, Ulcerative Colitis, Microscopic Colitis etc) and who are currently in the military/armed forces or if you were in the military or if you plan on joining the military. Members who have friends or family with IBD who...
  14. Jennifer

    Possible Face Rash From Pentasa

    I have a rash on my face (sometimes itches or hurts/burns) that started about two weeks ago and my GI and I are hoping that it and my other symptom (blood in urine) are caused by the Pentasa and not the Allopurinol that I need to help me tolerate the 6MP (hard to tell because they can both cause...
  15. Jennifer

    For Those Who Use Facebook and are Interested in More Support

    There's a Facebook site called Crohn's & Ulcerative Colitis Support Site. It's private so no friends or family members can see your posts unless they are a member as well. The Administrators were kind enough to allow me to post a link to our forum and in turn I'm posting their site on here in...
  16. Jennifer

    Crohsforum.com is being featured in EmaxHealth.com

    There will be a fair amount of stories in EmaxHealth about IBD to help people cope and learn more about it. So far I've answered a couple of questions for them and they would like to work with the forum on a regular basis. First article: Knowledge is Power in Crohn's Disease and Colitis, How...
  17. Jennifer

    GI Wants me to Try VSL#3 but its too Expensive

    Only problem I have with trying it is that its expensive and my insurance wont cover it. I did a search on the forum and found an assistance program for VSL#3 DS (stands for Double Strength) but its for UC and for people who have an ileal pouch. http://www.crohnsforum.com/showthread.php?t=40161...
  18. Jennifer

    Afidz Went to the ER and is now Admitted Again :(

    She said she had been in a lot of pain and wasn't able to pass much stool. Said she thought she was constipated yet stool softeners weren't helping so she went to the ER. She had blood work and a CT scan done once she got to the ER. White blood count is high. They didn't see an obstruction but...
  19. Jennifer

    Need Help With Understanding High Ferritin Level

    I got my blood results back and I'm confused (I've never been good at dealing with blood work). On my paper normal ferritin is 15-150 and my result is high at 729. My iron is in the normal range (its 139, normal being 35-155) so I don't see how it could be related to having too much iron. My...
  20. Jennifer

    Updates on My Current Flare

    Rather than bump my old thread about me being in the hospital I decided to make a new update thread with a far less scary title. Don't want anyone thinking I'm still in the hospital. :tongue: My GI called me yesterday saying that my CRP has gone up and is getting a little high. Its 59.63 from...
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