• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. KiwiJo

    LDN and Hairloss

    Eeek! My hair is falling out in truck loads! And the only new thing in my life is the LDN. anyone else had this?? Or does anyone have any solutions to hair loss? Ive onl yhad one wierd dream so far, and would rather have them than my hair falling out:(
  2. KiwiJo

    Muscle cramps, is this a mineral deficiency issue?

    Hi people Just wondering if the cramps in my feet and lower legs could be because of a malabosorbtion issue? I htink Ive heard of this before, and my grandad used to get really bad cramps and he had crohns. does anyone have any ideas? Ive just started taking a magnesium supplement because Im...
  3. KiwiJo

    Stricture or adhesion diagnosed with Gastrograffin

    hi there, Just wondering if anyone out there has had a stricture or adhesion successfully diagnosed with a gastrograffin xray? this will be the second time Im going in for one for the same pain. Nothing showed on the last xray, well the doctor looking at it couldnt see anything anyway. I asked...
  4. KiwiJo

    High Vitamin B12, but no ileum?

    Anyone have any ideas why my B12 would be high (like, through the roof high!)? Im on heaps of medication (Cortisol, DHEA, Progesterone, some times estrogen and thyroid meds). could it be my liver crapping out? It's just wierd because i dont have an ileum (resection took care of that), so...
  5. KiwiJo

    Just about to start LDN

    Hi everyone, me again. So I now have my prescription for my first lot of LDN. Im not sure why, but my doctor has only prescribed me 3mg? Im not a big person (52kg 170cm tall), but I thought it was supposed to be 4.5mg. I am planning to start taking it at 1mg and working my way up to full dose...
  6. KiwiJo

    A question for people with ileostomy's

    Hi there this is a bit of a gross question, but it's been bugging me for a while so I'll go ahead and jump right in now that Ive finally found some people I can ask..... I have an ileostomy bag (for about 7 years now), and three years ago I had the surgery to make it permenant. ever since that...
  7. KiwiJo

    LDN and Strictures

    Hi Everyone well, I think I might be in a unique position where my doctor is willing to trial me on LDN, but I still have some questions! My Crohn's is slightly wierd in that I dont often have the raging diarrhea that most have, but because I get strictures and narrowing, i have what feels...
  8. KiwiJo

    Hi From Masterton, New Zealand!

    Hi Everyone I came accross your site on google, and Ive spent hours reading it ever since. There is something comforting knowing that I am not the only one sufferin gtheir way through this disease. I'll try and briefly fill you in on my story/ journey so far with Crohn's. I first began having...
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