-
Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.
Search results
-
T
In remission but stopping Remicade
Has anyone been in remission but had to stop Remicade? I'm afraid I will have to discontinue my Remicade treatment because of a possible Lupus-like reaction to it. My Crohn's has been in remission for 18+months now. I'm wondering if I can go back to a regular maintenance med like Asacol or... -
T
Mononucleosis and Remicade?
Has anyone had Mono while on Remicade? I'm in my mid 30's and have never had Mono (or at least that produced symptoms). My doctor thinks I have Mono, just waiting on some lab work to be done in a week. I'm wondering if the Remicade re-activated a latent virus in my body (similar to what... -
T
LASIK while on Remicade? or LASIK stories in general...
I'm set to have LASIK on my eyes tomorrow and am starting to mildly panic. I've worn glasses/contacts for 30+ years and have wanted to have LASIK done for the past 13 or so years. I've been to a few Doctors who have all said I'm a candidate for the procedure but always freaked out and decided... -
T
The day or two after infusion, what's it like?
I start Remicade this Friday. I have a very busy schedule helping to care for my nephew who has Lymphoma. On Sunday morning, I have to drive back down to FL to stay with him the week. Am I going to be feeling like I got hit by a truck on Sunday or should I be feeling okay by then? When I... -
T
Has anyone failed other biologics before trying Remicade?
Cimzia stopped working for me. Even though my previous GI doc thought Remi would be a waste of time, I'm going to give it a try. I don't see what it could hurt. I'm not on anything at the moment and I actually feel great. But I learned my lesson years ago when I decided I didn't need meds... -
T
Mayo clinic.. I've ran out of other options
It's time for me to find a new GI. I've ran out of options for medications other than Methotrexate. I don't want to take it because 6 months ago my GI told me it wouldn't work. But now that I've failed everything else, he wants me to take it. No thanks. I tried to get into a drug study but... -
T
Clinical drug trials...those of you who have participated
Since I've failed just about everything, I'm debating participating in a Clinical drug trial. http://www.clinicaltrials.gov/ct2/show/study/NCT01287897?term=crohn%27s&rank=41&show_locs=Y#locn I'm certainly not excited about it, but I'm afraid I don't have any other options left. I have read... -
T
Cimzia injections-1st time doing it myself EEK!!!!
I've been on Cimzia for over a year now. I did my injections once or twice last year but have since counted on my awesome husband to do them for me. Something about how sweet he is when he says "just a little pinch, hun" that always put me at ease. Well, fast forward to today. I'm fighting... -
T
Boost-packaging change
They FINALLY changed the packaging on Boost! I used to whine and complain about how difficult it was to remove the stinkin' piece of foil. As a 35 year old woman it was hard, I can't imagine a geriatric, arthritic person trying to pry that piece of crud off the top. So anyway, if you are a...- ThanksP
- Thread
- Replies: 0
- Forum: Diet, Fitness, and Supplements
-
T
What to pack for the hospital
What to pack for the hospital...ideas? Since I've been in a flare for awhile recently, I have been thinking a lot about this. I know so many of you have unfortunately been in and out of the hospital sometimes with long stays. So what would you say is essential to bring or not bring with you...- ThanksP
- Thread
- Replies: 21
- Forum: General IBD Discussion
-
T
Cimzia Club Support Group
I know there aren't a lot of us yet, but I have a feeling our numbers will grow. So I figured we could start a Cimzia Club, the newest addition to the biologics group. If you have the Remi's and Humis, what are we? The Cimzians, Cimheads, Cimis? I've been on it since March '10 and so far... -
T
Sharps containers. How do you dispose of them?
For those on Humira, Cimzia, or any other injectable, how do you dispose of your sharps containers? Luckily, I noticed in the local paper that my county is sponsoring a prescription/medical waste disposal drive in October. But I can't count on that always being available since it's the first... -
T
"Moon Face"
How long does it take for"Moon face" to go away after taking Prednisone? It's bad enough Pred has so many other side efffects as it is. I could have really done without looking like a moon pie as well.- ThanksP
- Thread
- Replies: 14
- Forum: General IBD Discussion
-
T
First day on Cimzia, first day posting here
Hello all! I've been lurking around here for a little while now and figured today would be a good day to introduce myself. I've been diagnosed with Crohn's since March 2006 and had been in remission for years. In fact, I even stopped taking meds for over two years and life was good. My...