• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. sibelius

    What do you do when you're in remission?

    Do you stay involved in Crohn's walks/research/chatrooms/etc when you don't have any symptoms? Or do you just sigh a big sigh of relief, and pretend nothing had ever happened to you... until the next round starts? I've fortunately been in remission now for about 9 months, which is wonderful...
  2. sibelius

    How predictable are the flares/remissions?

    Do your flares tend to last the same amount of time each time you get them? Or do they vary unpredictably in length and severity? How about the remissions? Do you think the meds really help you into remission; or do the remissions come when they come, and meds simply make the flares somewhat...
  3. sibelius

    Going to the desert for 2 weeks...

    going to the desert for 2 weeks... I'm volunteering at a youth camp in Israel for 2 weeks in August. It's a wonderful program -- they're bringing kids from a city in the North (Sderot) which has been attacked by unguided rockets for quite a long time, to a camp in the South near the Egyptian...
  4. sibelius

    Free book on Crohn's / Colitis

    free book on Crohn's / Colitis Someone sent me a link to this website: http://www.crohnsonline.com to get a free copy of this book: I read part of it during my Remicade infusion the other day, and it's very helpful and interesting! I have no idea what sorts of e-mails the website sends...
  5. sibelius

    What do you do during those 2.5-hour infusions?

    I'm doing Remicade every 2 months, and the infusions are 2.5 hours each. But I'm just a noobie, so I'm looking for ideas about what to do during that time! Here's my list so far: read, sleep, engage the nurse in an intense philosophical discussion on the quasi-creationist origins of the human...
  6. sibelius

    Are you involved in raising awareness / money?

    Last year, I read this amazing article: http://www.dispatch.com/live/content/local_news/stories/2007/12/21/better_to_give.ART_ART_12-21-07_A1_DH8RE7Q.html?rfr=nwsl In short, a priest gave each of his congregants $50 and challenged them, within a certain time frame, to use their "talents" to...
  7. sibelius

    Is it a shame to have Crohn's?

    Do you feel at all embarrassed or ashamed that you have Crohn's, or that other people might know you have Crohn's? I don't feel embarrassed at all, and I have casually told some of my friends/family, even about some of the details of treatment, symptoms, etc. To paraphrase Tevye the Dairyman...
  8. sibelius

    Methotrexate vs. Remicade -- Help me pick my bride!

    So, my doctor told me I need to get married soon, and the bride will either be Methotrexate or Remicade. I hear they're both pretty high-maintenance, but I'm sure we'll be old cro(h)nies in no time! I know there's been some recent discussion here about remicade -- how do you think it compares...
  9. sibelius

    How Crohn's spirals itself

    I feel like one reason Crohn's is such an awful disease, is that it spirals itself downwards; symptoms beget symptoms and play off each other, etc. For example...... One of my symptoms is weight loss. One of my other symptoms is decreased appetite. So.... if I eat less, because of lower...
  10. sibelius

    Sleeping, Part 2

    I have the opposite problem as Jeff -- he can't sleep, but I sleep too much! I like to get up early, around 6:00, to get some work done before my 8:30 class -- so it's a problem if I can't even wake up or get out of bed until 8 or 8:30 or later! (I once overslept/missed a midterm exam this...
  11. sibelius

    Convincing yourself to eat.

    One of my symptoms has been decreased appetite -- which actually gets worse as I continue to lose weight (and vice-versa). I barely ate today, though I knew all along that I should have eaten much more. For example, tonight at about 9:00, I finally convinced myself to eat dinner, so I had one...
  12. sibelius

    Do you buy new clothing when losing weight?

    I used to be somewhat judgmental of people who wore their pants low. It always seemed to me as a juvenile expression -- why not buy a pair that fits? Now, my own pants hang low! I've lost 10-15 pounds due to my Crohn's, and so all of the brand new pants that I just bought last fall (before my...
  13. sibelius

    Keeping a diary

    Hello, I was just diagnosed with Crohn's in January, after several months of enigmatic symptoms (loss of appetite, weight loss, anal fissure that is now an ulcer, daily abdominal pains). It's a relief to know what was causing it all, because even though it's getting progressively worse...
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